David Feeny, William Furlong,

   and George W. Torrance

Health Utilities Incorporated

 

Note: This information is also available at: http://www.healthutilities.com/

25March2024

 

                                                     A Few Sources of Information

                                       on the Health Utilities Index (HUI) (APA Format)

 

Methodological Studies [Cross-Cultural Validation; Description; Development of Systems; Interpretability; Reliability; Responsiveness; Scoring; Theory; Validity]

Arnold, D., Girling, A., Stevens, A., & Lilford, R. (2009). Comparison of direct and indirect methods of estimating health state utilities for resource allocation: review and empirical analysis. BMJ (Clinical Research Edition), 339, b2688. https://doi.org/10.1136/bmj.b2688 [HUI2; HUI3; Scoring]

Asada Y. (2005). Medical technologies, nonhuman aids, human assistance, and environmental factors in the assessment of health states. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 14(3), 867–874. https://doi.org/10.1007/s11136-004-0910-z [HUI3; Construct Validity]

Austin, P. C., Escobar, M., & Kopec, J. A. (2000). The use of the Tobit model for analyzing measures of health status. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 9(8), 901–910. https://doi.org/10.1023/a:1008938326604 [HUI3; Ceiling Effects; based on provisional scoring]

Grootendorst P. (2000). Censoring in statistical models of health status: what happens when one can do better than '1'. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 9(8), 911–914. https://doi.org/10.1023/a:1008938429316 [HUI3; Ceiling Effects]

Avorn, J., Benner, J., Ford, I., Ganz, D. A., Gaw, A., Glynn, R. J., Jackson, J., Lagaay, A. M., Schneeweiss, S., Walley, T., Wang, P. S., & Outcomes Research Working Group and the PROSPER Study Group. (2002). Measuring the cost-effectiveness of lipid-lowering drugs in the elderly: the outcomes research and economic analysis components of the PROSPER trial. Controlled Clinical Trials, 23(6), 757–773. https://doi.org/10.1016/s0197-2456(02)00228-3 [HUI3; Study Design]

Barofsky, I. (2012). Quality: Its Definition and Measurement as Applied to the Medically Ill. New York, Springer Publishing Company. https://link.springer.com/book/10.1007/978-1-4419-9819-4 [HUI2; HUI3; Textbook]

Barr, R., Petrie, C., Furlong, W., Rothney, M., & Feeny, D. (1997). Health-related quality of life during post-induction chemotherapy in children with acute lymphoblastic leukemia in remission. International Journal of Oncology, 11(2), 333–339. https://doi.org/10.3892/ijo.11.2.333 [HUI2; Construct Validity; Responsiveness]

Barr, R. D., Feeny, D., & Furlong, W. (2004). Economic evaluation of treatments for cancer in childhood. European Journal of Cancer (Oxford, England: 1990), 40(9), 1335–1345. https://doi.org/10.1016/j.ejca.2004.01.033 [HUI2; HUI3]

Bas Janssen, M. F., Birnie, E., & Bonsel, G. J. (2007). Evaluating the discriminatory power of EQ-5D, HUI2 and HUI3 in a US general population survey using Shannon's indices. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 16(5), 895–904. https://doi.org/10.1007/s11136-006-9160-6 [HUI2; HUI3; Construct Validity]

Bernier, J., Feng, Y., & Asakawa, K. (2011). Strategies for handling normality assumptions in multi-level modeling: a case study estimating trajectories of Health Utilities Index Mark 3 scores. Health Reports, 22(4), 45–51. Link [HUI3]

Blanchard, C., Feeny, D., Mahon, J. L., Bourne, R., Rorabeck, C., Stitt, L., & Webster-Bogaert, S. (2003). Is the Health Utilities Index responsive in total hip arthroplasty patients? Journal of Clinical Epidemiology, 56(11), 1046–1054. https://doi.org/10.1016/s0895-4356(03)00203-8 [HUI2; HUI3; Construct Validity; Responsiveness]

Blanchard, C.M., Côté, I., & Feeny, D. (2004). Comparing short form and RAND physical and mental health summary scores: results from total hip arthroplasty and high-risk primary-care patients. International Journal of Technology Assessment in Health Care, 20(2), 230–235. https://doi.org/10.1017/s0266462304001011 [HUI3; Construct Validity]

Blanchard, C., Feeny D, Mahon, J.L., Bourne, R., Rorabeck, C., Stitt, L. & Webster-Bogaert, S. (2004). Is the Health Utilities Index valid in total hip arthroplasty patients? Quality of Life Research, 13(2), 339-348. https://doi.org/10.1023/B:QURE.0000018479.52075.bf [HUI2; HUI3; Construct Validity]

Boman, K.K. (2007). Assessing psychological and health-related quality of life (HRQL) late effects after childhood cancer. Acta Paediatrica, 96(9), 1265-1268. https://doi.org/10.1111/j.1651-2227.2007.00447.x [HUI3; Content Validity]

Bosch, J.L., Hammitt, J.K., Weinstein, M.C., Hunink, M.G. (1998). Estimating general-population utilities using one binary-gamble question per respondent. Medical Decision Making, 18(4), 381-390. https://doi.org/10.1177/0272989X9801800405 [Scoring]

Bosch, J.L., Halpern, E.F., Gazelle, G.S. (2002). Comparison of preference-based utilities of the Short-Form 36 Health Survey and Health Utilities Index before and after treatment of patients with intermittent claudication Medical Decision Making, 22(5), 403-409. https://doi.org/10.1177/027298902236928 [HUI2, HUI3, Construct Validity; Responsiveness]

Boyle, M.H., & Torrance, G.W. (1984). Developing multiattribute health indexes. Medical Care, 22(11), 1045-1057. https://doi.org/10.1097/00005650-198411000-00007 [Development of Systems]

Boyle, M.H., Furlong, W., Feeny, D., Torrance, G., & Hatcher, J. (1995) Reliability of the Health Utilities Index—Mark III used in the 1991 cycle 6 Canadian General Social Survey Health Questionnaire. Quality of Life Research, 4(3), 249-257. https://doi.org/10.1007/BF02260864 [HUI3; Test-retest Reliability]

Brauer, C.A., Rosen, A.B., Greenberg, D., Neumann, P.J. (2006). Trends in the measurement of health utilities in published cost-utility analyses. Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research, 9(4), 213-218. https://doi.org/10.1111/j.1524-4733.2006.00116.x [HUI2; HUI3; Review Article]

Brazier, J., Roberts, J., Tsuchiya, A., Busschbach, J. (2004). A comparison of the EQ-5D and SF-6D across seven patient groups. Health Economics, 13(9), 873-884. https://doi.org/10.1002/hec.866 [HUI3; Construct Validity; Responsiveness]

Brazier JE, Yang Y, Tsuchiya A, Rowen DL. (2010). A review of studies mapping (or cross walking) non-preference-based measures of health to generic preference-based measures. European Journal of Health Economics, 11(2), 212-225. https://doi.org/10.1007/s10198-009-0168-z [HUI2; HUI3; Review Article]

Brazier, J., Deverill, M., Green, C., Harper, R., Booth, A. (1993). A review of the use of health status measures in economic evaluation. Health Technology Assessment, 3(9), 1-164. https://doi.org/10.1177/135581969900400310 [HUI2; HUI3; Review Article]

Bremner, K.E., Tomlinson, G., Krahn, M.D. (2007). Marker states and a health state prompt provide modest improvements in the reliability and validity of the standard gamble and rating scale in prostate cancer patients. Quality of Life Research, 16(10), 1665-1675. https://doi.org/10.1007/s11136-007-9264-7 [HUI3; Construct Validity]

Cadman, D., & Goldsmith, C. (1986). Construction of social value or utility-based health indices: the usefulness of factorial experimental design plans. Journal of Chronic Diseases, 39(8), 643–651. https://doi.org/10.1016/0021-9681(86)90189-x [Development of Systems; Scoring]

Cadman, D., Goldsmith, C., & Bashim, P. (1984). Values, Preferences, and decisions in the care of children with developmental disabilities. Journal of Developmental and Behavioral Pediatrics, 5(2), 60–64. https://doi.org/10.1097/00004703-198404000-00004 [Development of Systems; Scoring]

Cadman, D., Goldsmith, C., Torrance, G. W., Boyle, M., & Furlong, W. (1986). Development of a Health Status Index for Ontario Children. Final Report to the Ontario Ministry of Health on Research Grant DM648 (00633). Hamilton, Ontario: McMaster University, Centre for Health Economics and Policy Analysis. No link available. [Development of Systems; Scoring]

Chen, G., Khan, M. A., Iezzi, A., Ratcliffe, J., & Richardson, J. (2016). Mapping between 6 Multiattribute Utility Instruments. Medical Decision Daking: An International Journal of the Society for Medical Decision Making, 36(2), 160–175. https://doi.org/10.1177/0272989X15578127 [HUI3; Construct Validity]

Cheung, Y. B., Tan, H. X., Wang, V. W., Kandiah, N., Luo, N., Koh, G. C. H., & Wee, H. L. (2019). Mapping the Alzheimer's Disease Cooperative Study-Activities of Daily Living Inventory to the Health Utility Index Mark III. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 28(1), 131–139. https://doi.org/10.1007/s11136-018-1991-4 [HUI3; Construct Validity]

Cheung, Y. B., Tan, H. X., Luo, N., Wee, H. L., & Koh, G. C. H. (2019). Mapping the Shah-modified Barthel Index to the Health Utility Index Mark III by the Mean Rank Method. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 28(12), 3177–3185.
https://doi.org/10.1007/s11136-019-02254-1 [HUI3; Construct Validity]

Committee to Evaluate Measures of Health Benefits for Environmental, Health, and Safety Regulation; Institute of Medicine; Board on Health Care Services. (2006). Valuing Health for Regulatory Cost-Effectiveness Analysis. Wilhelmine Miller, Lisa A. Robinson, and Robert S. Lawrence, (Eds.), The National Academies Press. https://doi.org/10.17226/11534 [HUI2; HUI3; Review Volume]

Conner-Spady, B., & Suarez-Almazor, M. E. (2003). Variation in the estimation of quality-adjusted life-years by different preference-based instruments. Medical Care, 41(7), 791–801. https://doi.org/10.1097/00005650-200307000-00003 [HUI3; Construct Validity; Responsiveness]

Cookson R. (2005). QALYs and the capability approach. Health economics, 14(8), 817–829. https://doi.org/10.1002/hec.975 [HUI2; HUI3]

Coons, S.J. & Shaw, J.W. (2005). Generic Adult Health Status Measures. In Peter Fayers and Ron Hays, (Eds.), Assessing Quality of Life in Clinical Trials (2nd ed., pp 325-338). Oxford University Press. Link [HUI2; HUI3; Review Article]

Costet, N., Le Galès, C., Buron, C., Kinkor, F., Mesbah, M., Chwalow, J., & Slama, G. (1998). French cross-cultural adaptation of the Health Utilities Indexes Mark 2 (HUI2) and 3 (HUI3) classification systems. Clinical and Economic Working Groups. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 7(3), 245–256. https://doi.org/10.1023/a:1024998300494 [Cross-Cultural Validation; Translation]

Côté, I., Farris, K., & Feeny, D. (2003). Is adherence to drug treatment correlated with health-related quality of life? Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 12(6), 621–633. https://doi.org/10.1023/a:1025180524614 [HUI2; HUI3; Construct Validity]

Cox, C. L., Lensing, S., Rai, S. N., Hinds, P., Burghen, E., & Pui, C. H. (2005). Proxy assessment of quality of life in pediatric clinical trials: application of the Health Utilities Index 3. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 14(4), 1045–1056. https://doi.org/10.1007/s11136-004-4714-y

·      Furlong, W., & Barr, R. D. (2006). Commentary on Cox CL, Lensing S, Rai SN et al. Proxy assessment of quality of life in pediatric clinical trials: application of the Health Utilities Index 3. Qual Life Res 2005; 14: 1045-1056. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 15(7), 1291–1296. https://doi.org/10.1007/s11136-005-4701-y

·      Hinds, P.S., Rai, S.N. (2006). Response to the Commentary by Furlong & Barr on Cox CL, Lensing S, Rai SN et al. Quality of Life Research 15, 1295–1296 https://doi.org/10.1007/s11136-006-0021-0 [HUI3; Reliability; Inter-Rater Reliability; Proxy Assessment]

Cranney, A. B., Coyle, D., Hopman, W. M., Hum, V., Power, B., & Tugwell, P. S. (2005). Prospective evaluation of preferences and quality of life in women with hip fractures. The Journal of Rheumatology, 32(12), 2393–2399. https://www.jrheum.org/content/jrheum/32/12/2393.full.pdf [HUI2; Construct Validity; Responsiveness]

Dakin, H., Petrou, S., Haggard, M., Benge, S., & Williamson, I. (2010). Mapping analyses to estimate health utilities based on responses to the OM8-30 Otitis Media Questionnaire. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 19(1), 65–80. https://doi.org/10.1007/s11136-009-9558-z [HUI2; HUI3; mapping]

de Vries, S. O., Kuipers, W. D., & Hunink, M. G. (1998). Intermittent claudication: symptom severity versus health values. Journal of Vascular Surgery, 27(3), 422–430. https://doi.org/10.1016/s0741-5214(98)70316-7 [HUI2; Construct Validity]

Dewitt, B., & Torrance, G. W. (2020). Incorporating Mortality in Health Utility Measures. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 40(7), 862–872. https://doi.org/10.1177/0272989X20951778 [HUI3; Scoring Systems]

Dixon, P. R., Feeny, D., Tomlinson, G., Cushing, S., Chen, J. M., & Krahn, M. D. (2020). Health-Related Quality of Life Changes Associated With Hearing Loss. JAMA Otolaryngology-- Head & Neck surgery, 146(7), 630–638. https://doi.org/10.1001/jamaoto.2020.0674 [HUI3 Hearing Attribute]

Dixon, P. R., Feeny, D., Tomlinson, G., Cushing, S. L., & Chen, J. M. (2022). Improving the Hearing Status Discrimination of the Health Utilities Index, Mark 3: Design of the Hearing Status Classification System. Otology & Neurotology, 43(10), e1069–e1076. https://doi.org/10.1097/MAO.0000000000003689

Drummond, M.F., Stoddart, G. & a Torrance, G. W. (1987). Methods for the Economic Evaluation of Health Care Programmes. Oxford University Press. No link available. [Description of Systems and Scoring; Theory]

Drummond, M.F., O'Brien, B., Stoddart, G., & Torrance, G. W. (1997). Methods for the Economic Evaluation of Health Care Programmes. (2nd ed.) Oxford University Press. No link available. [Description of Systems and Scoring; Theory]

Drummond, M.F., Sculpher, M. J., Torrance, G.W., O'Brien, B., Stoddart, G. Methods for the Economic Evaluation of Health Care Programmes. (3rd ed.) Oxford University Press, 2005. Link [Description of Systems and Scoring; Theory]

Drummond, M.F., Sculpher, M. J., Claxton, K., Stoddart, G. L., & Torrance, G. W. (2015). Methods for the Economic Evaluation of Health Care Programmes. (4th ed.) Oxford University Press. https://books.google.co.uk/books?id=lvWACgAAQBAJ [Description of Systems and Scoring; Theory]

Drummond M. (2001). Introducing economic and quality of life measurements into clinical studies. Annals of medicine, 33(5), 344–349. https://doi.org/10.3109/07853890109002088 [Review Article]

Eiser, C., & Morse, R. (2001). The measurement of quality of life in children: past and future perspectives. Journal of Developmental and Behavioral Pediatrics, 22(4), 248–256. https://doi.org/10.1097/00004703-200108000-00007 [Review Article]

Espallargues, M., Czoski-Murray, C. J., Bansback, N. J., Carlton, J., Lewis, G. M., Hughes, L. A., Brand, C. S., & Brazier, J. E. (2005). The impact of age-related macular degeneration on health status utility values. Investigative Ophthalmology & Visual Science, 46(11), 4016–4023. https://doi.org/10.1167/iovs.05-0072 [HUI3; Construct Validity]

Ettema, T. P., Dröes, R. M., de Lange, J., Mellenbergh, G. J., & Ribbe, M. W. (2005). A review of quality of life instruments used in dementia. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 14(3), 675–686. https://doi.org/10.1007/s11136-004-1258-0 [HUI2; HUI3; Review Article]

Faraji, H., Soleymani, F., Yaseri, M., Sahraian, M. A., Abdollahiasl, A., Meftah, A., & Nikfar, S. (2024). Choosing the Best Instrument for Measuring Health Spillover Effect in Caregivers of Patients With Multiple Sclerosis. Value in health regional issues39, 49–56. https://doi.org/10.1016/j.vhri.2023.08.008  [HUI3; Construct Validity]

Feeny, D. H., & Torrance, G. W. (1989). Incorporating utility-based quality-of-life assessment measures in clinical trials. Two examples. Medical Care, 27(3 Suppl), S190–S204. https://doi.org/10.1097/00005650-198903001-00016 [Theory]

Feeny, D., Furlong, W., Barr, R. D., Torrance, G. W., Rosenbaum, P., & Weitzman, S. (1992). A comprehensive multiattribute system for classifying the health status of survivors of childhood cancer. Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology, 10(6), 923–928. https://doi.org/10.1200/JCO.1992.10.6.923 [HUI2; Description; Construct Validity]

Feeny, D., Furlong, W., Boyle, M., & Torrance, G. W. (1995). Multi-attribute health status classification systems. Health Utilities Index. PharmacoEconomics, 7(6), 490–502. https://doi.org/10.2165/00019053-199507060-00004 [HUI2; HUI3; Description; Development of Systems]

Feeny, D.H., Torrance, G.W., Furlong, W.J. (1996). Health Utilities Index. In Bert Spilker (Ed). Quality of Life and Pharmacoeconomics in Clinical Trials. (2nd ed., pp 239-252) Lippincott-Raven Press. No link available. [HUI2; HUI3; Description of Systems; Reliability; Scoring; Validity]

Feeny, D.H., Torrance, G.W., & Labelle, R. (1996) Integrating Economic Evaluations and Quality of Life Assessments. In Bert Spilker (Ed). Quality of Life and Pharmacoeconomics in Clinical Trials. (2nd ed., pp 85-95) Lippincott-Raven Press. No link available. [Description of Systems and Scoring]

Feeny, D., Furlong, W., & Barr, R. D. (1998). Multiattribute approach to the assessment of health-related quality of life: Health Utilities Index. Medical and Pediatric Oncology, Suppl 1, 54–59. https://doi.org/10.1002/(sici)1096-911x(1998)30:1+<54::aid-mpo8>3.0.co;2-z [HUI2; Construct Validity; Responsiveness]

Feeny, D. (2000). A utility approach to the assessment of health-related quality of life. Medical Care, 38(9 Suppl), II151–II154. https://doi.org/10.1097/00005650-200009002-00022 [Theory]

Feeny, D., Furlong, W., Torrance, G. W., Goldsmith, C. H., Zhu, Z., DePauw, S., Denton, M., & Boyle, M. (2002). Multiattribute and single-attribute utility functions for the health utilities index mark 3 system. Medical Care, 40(2), 113–128. https://doi.org/10.1097/00005650-200202000-00006 [HUI3; Scoring]

Feeny, D. (2002). Health status classification systems for summary measures of population health. In Christopher J. L. Murray, Joshua A. Salomon, Colin D. Mathers, and Alan D. Lopez, (Eds.), Summary Measures of Population Health: Concepts, Ethics, Measurement and Applications. (pp 329-341). Geneva, World Health Organization. Link [HUI2; HUI3; Review Article]

Feeny, D. (2002). The Utility Approach to Assessing Population Health. In Christopher J. L. Murray, Joshua A. Salomon, Colin D. Mathers, and Alan D. Lopez, (Eds.), Summary Measures of Population Health: Concepts, Ethics, Measurement and Applications. (pp 515-528). Geneva, World Health Organization. Link [HUI2; HUI3; Review Article]

Feeny, D., Blanchard, C., Mahon, J. L., Bourne, R., Rorabeck, C., Stitt, L., & Webster-Bogaert, S. (2003). Comparing community-preference-based and direct standard gamble utility scores: evidence from elective total hip arthroplasty. International Journal of Technology Assessment in Health Care, 19(2), 362–372. https://doi.org/10.1017/s0266462303000321 [HUI2; HUI3; Scoring]

Feeny, D., Furlong, W., Saigal, S., & Sun, J. (2004). Comparing directly measured standard gamble scores to HUI2 and HUI3 utility scores: group- and individual-level comparisons. Social science & medicine (1982), 58(4), 799–809. https://doi.org/10.1016/s0277-9536(03)00254-5 [HUI2; HUI3; Scoring]

Feeny, D., Blanchard, C. M., Mahon, J. L., Bourne, R., Rorabeck, C., Stitt, L., & Webster-Bogaert, S. (2004). The stability of utility scores: test-retest reliability and the interpretation of utility scores in elective total hip arthroplasty. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 13(1), 15–22. https://doi.org/10.1023/B:QURE.0000015307.33811.2d [HUI2; HUI3; Test-retest reliability]

Feeny, D., Wu, L., & Eng, K. (2004). Comparing short form 6D, standard gamble, and Health Utilities Index Mark 2 and Mark 3 utility scores: results from total hip arthroplasty patients. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 13(10), 1659–1670. https://doi.org/10.1007/s11136-004-6189-2 [HUI2; HUI3; Scoring]

Feeny, D., Farris, K., Côté, I., Johnson, J. A., Tsuyuki, R. T., & Eng, K. (2005). A cohort study found the RAND-12 and Health Utilities Index Mark 3 demonstrated construct validity in high-risk primary care patients. Journal of Clinical Epidemiology, 58(2), 138–141. https://doi.org/10.1016/j.jclinepi.2004.08.005 [HUI3; Construct Validity]

Feeny, D. (2005). The Health Utilities Index: A Tool for Assessing Health Benefits. Patient Reported Outcomes Newsletter, 34, 2-6. Link [HUI2; HUI3; Review Article]

Feeny, D. (2005). The Roles for Preference-Based Measures in Support of Cancer Research and Policy. In Joseph Lipscomb, Carolyn Cook Gotay, & Claire Snyder, (Eds.), Outcomes Assessment in Cancer: Measures, Methods, and Applications, (pp 69-92). Cambridge University Press. Link [HUI2; HUI3; Review Article]

Feeny, D. (2005). Preference-Based Measures: Utility and Quality-Adjusted Life Years. In Peter Fayers and Ron Hays, (Eds.), Assessing Quality of Life in Clinical Trials (2nd ed., pp 405-429). Oxford University Press. Link [HUI2; HUI3; Review Article]

Feeny, D. (2005). Comparing and Contrasting Utilities and Willingness to Pay. In William R. Lenderking & Dennis A. Revicki, (Eds.), Advancing Health Outcomes Research Methods and Clinical Applications, International Society for Quality of Life Research and Degnon Associates, Inc., 2005, pp 353-367. No link available. [HUI2; HUI3; Review Article]

Feeny, D. (2006). The Multi-Attribute Utility Approach to Assessing Health-Related Quality of Life. In Andrew M. Jones, (Ed.), The Elgar Companion to Health Economics, (pp 359-370). Edward Elgar Publishing. https://doi.org/10.4337/9781845428914.00048 & In Andrew M. Jones, (Ed.), The Elgar Companion to Health Economics, 2nd Edition, (pp 383-394). Edward Elgar Publishing. https://doi.org/10.4337/9780857938138.00052 [HUI2; HUI3; Review Article]

Feeny, D., Huguet, N., McFarland, B. H., & Kaplan, M. S. (2009). The construct validity of the Health Utilities Index Mark 3 in assessing mental health in population health surveys. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 18(4), 519–526. https://doi.org/10.1007/s11136-009-9457-3. Erratum Quality of Life Research, 18(5), 667. https://doi.org/10.1007/s11136-009-9476-0 [HUI3; construct validity, mental health]

Feeny, D., Huguet, N., McFarland, B. H., Kaplan, M. S., Orpana, H., & Eckstrom, E. (2012). Hearing, mobility, and pain predict mortality: a longitudinal population-based study. Journal of clinical epidemiology, 65(7), 764–777. https://doi.org/10.1016/j.jclinepi.2012.01.003 [HUI3; Construct Validity; Predictive Validity]

Feeny, D. H., Eckstrom, E., Whitlock, E. P., & Perdue, L. A. (2013). A Primer for Systematic Reviewers on the Measurement of Functional Status and Health-Related Quality of Life in Older Adults. Agency for Healthcare Research and Quality (US). Report No.: 13-EHC128-EF. http://www.effectivehealthcare.ahrq.gov/search-for-guides-reviews-and-reports/?pageaction=displayProduct&productID=1727 [HUI2; HUI3; Review Article]

Feeny, D., Krahn, M., Prosser, L.A., & Salomon, J.A. (2016) Valuing Health Outcomes. In Peter J. Neumann, Gillian D. Sanders, Louise B. Russell, Joanna E. Siegel, & Theodore G. Ganiats, (Eds.), Cost-Effectiveness in Health and Medicine (2nd ed., pp 167-199. https://doi.org/10.1093/acprof:oso/9780190492939.003.0007 Online Appendices for Chapter 7 are available at https://chepa.mcmaster.ca/wp-content/uploads/2022/12/07-online-appendices-valuing-health-outcomes30sep2016double.pdf [HUI2; HUI3; Review Article]

Feeny, D., Furlong, W. & Torrance, G.W. (2018). What were they thinking when providing preference measurements for generic health states? The evidence for HUI3. Health and Quality of Life Outcomes, 16(1), 166. https://doi.org/10.1186/s12955-018-0993-9 [HUI3; Construct Validity]

Feeny, D., Furlong, W., & Torrance, G. W. (2019). Commentary. In Praise of Studies That Use More Than One Generic Preference-Based Measure. International Journal of Technology Assessment in Health Care, 35(4), 257–262. https://doi.org/10.1017/S0266462319000412 [HUI3; Review Article]

Felder-Puig, R., Frey, E., Sonnleithner, G., Feeny, D., Gadner, H., Barr, R. D., Furlong, W., & Topf, R. (2000). German cross-cultural adaptation of the Health Utilities Index and its application to a sample of childhood cancer survivors. European Journal of Pediatrics, 159(4), 283–288. https://doi.org/10.1007/s004310050071 [HUI2; Cross-Cultural Validation; Construct Validity; Reliability/Agreement; Translation]

Fisher, G.W. (1979). Utility Models for Multiple Objective Decisions: Do They Accurately Represent Human Preferences. Decision Sciences, 10(3), 451-479. https://doi.org/10.1111/j.1540-5915.1979.tb00037.x [Theory]

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Franks, P., Lubetkin, E. I., Gold, M. R., & Tancredi, D. J. (2003). Mapping the SF-12 to preference-based instruments: convergent validity in a low-income, minority population. Medical Care, 41(11), 1277–1283. https://doi.org/10.1097/01.MLR.0000093480.58308.D8 [HUI3; scoring]

Franks, P., Hanmer, J., & Fryback, D. G. (2006). Relative disutilities of 47 risk factors and conditions assessed with seven preference-based health status measures in a national U.S. sample: toward consistency in cost-effectiveness analyses. Medical Care, 44(5), 478–485. https://doi.org/10.1097/01.mlr.0000207464.61661.05 [HUI3; Construct Validity]

Fryback, D. G., Palta, M., Cherepanov, D., Bolt, D., & Kim, J. S. (2010). Comparison of 5 health-related quality-of-life indexes using item response theory analysis. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 30(1), 5–15. https://doi.org/10.1177/0272989X09347016 [HUI2; HUI3; construct validity]

Fu, L., Talsma, D., Baez, F., Bonilla, M., Moreno, B., Ah-Chu, M., Pena, A., Furlong, W., & Barr, R. D. (2006). Measurement of health-related quality of life in survivors of cancer in childhood in Central America: feasibility, reliability, and validity. Journal of Pediatric Hematology/Oncology, 28(6), 331–341. https://doi.org/10.1097/00043426-200606000-00003 [HUI2; HUI3; Construct Validity; Inter-rater Reliability]

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Furlong, W., Feeny, D., Torrance, G.W., Goldsmith, C., DePauw, S., Zhu, Z., Denton, M., & Boyle, M. (1998). Multiplicative Multi-Attribute Utility Function for the Health Utilities Index Mark 3 (HUI3) System: A Technical Report, McMaster University Centre for Health Economics and Policy Analysis Working Paper No. 98-11. Information on ordering Centre for Health Economics and Policy Analysis (CHEPA) Working Papers may be obtained from CHEPA, McMaster University, 1280 Main Street West, Communications Research Laboratory Building, Second Floor, Hamilton, ON L8S 4K1 Canada. chepa@mcmaster.ca; https://chepa.mcmaster.ca [Scoring]

Furlong, W., Feeny, D., Torrance, G.W., & Barr, R,D. (2001). The Health Utilities Index (HUI7) System for Assessing Health-Related Quality of Life in Clinical Studies. McMaster University Centre for Health Economics and Policy Analysis Working Paper No. 01-02, March, 2001. Information on ordering Centre for Health Economics and Policy Analysis (CHEPA) Working Papers may be obtained from CHEPA, McMaster University, 1280 Main Street West, Communications Research Laboratory Building, Second Floor, Hamilton, ON L8S 4K1 Canada. chepa@mcmaster.ca; https://chepa.mcmaster.ca [HUI2; HUI3; Description of Systems; Reliability; Scoring; Validity]

Furlong, W. J., Feeny, D. H., Torrance, G. W., & Barr, R. D. (2001). The Health Utilities Index (HUI) system for assessing health-related quality of life in clinical studies. Annals of Medicine, 33(5), 375–384. https://doi.org/10.3109/07853890109002092 [HUI2; HUI3; Description of Systems; Reliability; Scoring; Validity]

Furlong, W., Rae, C., Feeny, D., Ghotra, S., Breakey, V. R., Carter, T., Pai, N., Pullenayegum, E., Xie, F., & Barr, R. (2023). Generic Health-Related Quality of Life Utility Measure for Preschool Children (Health Utilities Preschool): Design, Development, and Properties. Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research, 26(2), 251–260. https://doi.org/10.1016/j.jval.2022.07.015 [HuPreschool; Construct Validity; Scoring]

Gabriel, S. E., Kneeland, T. S., Melton, L. J., 3rd, Moncur, M. M., Ettinger, B., & Tosteson, A. N. (1999). Health-related quality of life in economic evaluations for osteoporosis: whose values should we use? Medical decision Making: An International Journal of the Society for Medical Decision Making, 19(2), 141–148. https://doi.org/10.1177/0272989X9901900204 [HUI2; Scoring]

Gamst-Klaussen, T., Chen, G., Lamu, A. N., & Olsen, J. A. (2016). Health state utility instruments compared: inquiring into nonlinearity across EQ-5D-5L, SF-6D, HUI-3 and 15D. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 25(7), 1667–1678. https://doi.org/10.1007/s11136-015-1212-3 [HUI3]

Garber, A.M., Weinstein, M.C., Torrance, G.W., & Kamlet, M.S. (1996) Theoretical Foundations of Cost-Effectiveness Analysis. In Marthe R. Gold, Joanna E. Siegel, Louise B. Russell, & Milton C. Weinstein, (Eds.), Cost-Effectiveness in Health and Medicine, (pp 25-53). Oxford University Press. Link [Theory]

Garratt, A., Schmidt, L., Mackintosh, A., & Fitzpatrick, R. (2002). Quality of life measurement: bibliographic study of patient assessed health outcome measures. BMJ (Clinical Research Edition), 324(7351), 1417. https://doi.org/10.1136/bmj.324.7351.1417 [Review Article]

Garster, N. C., Palta, M., Sweitzer, N. K., Kaplan, R. M., & Fryback, D. G. (2009). Measuring health-related quality of life in population-based studies of coronary heart disease: comparing six generic indexes and a disease-specific proxy score. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 18(9), 1239–1247. https://doi.org/10.1007/s11136-009-9533-8 [HUI2; HUI3; Construct Validity]

Gemke, R. J., & Bonsel, G. J. (1996). Reliability and validity of a comprehensive health status measure in a heterogeneous population of children admitted to intensive care. Journal of Clinical Epidemiology, 49(3), 327–333. https://doi.org/10.1016/0895-4356(95)00528-5 [HUI2; Construct Validity; Reliability]

Ghotra, S., Feeny, D., Barr, R., Yang, J., Saigal, S., Vincer, M., Afifi, J., Shah, P. S., Lee, S. K., Synnes, A. R., Canadian Neonatal Follow-Up Network Investigators, & Canadian Neonatal Network Site Investigators (2022). Parent-reported health status of preterm survivors in a Canadian cohort. Archives of Disease in Childhood. Fetal and Neonatal Edition, 107(1), 87–93. https://doi.org/10.1136/archdischild-2021-321635

Glick, H. A., Polsky, D., Willke, R. J., & Schulman, K. A. (1999). A comparison of preference assessment instruments used in a clinical trial: responses to the visual analog scale from the EuroQol EQ-5D and the Health Utilities Index. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 19(3), 265–275. https://doi.org/10.1177/0272989X9901900305 [HUI2; Construct Validity; Scoring]

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Grange, A., Bekker, H., Noyes, J., & Langley, P. (2007). Adequacy of health-related quality of life measures in children under 5 years old: systematic review. Journal of Advanced Nursing, 59(3), 197–220. https://doi.org/10.1111/j.1365-2648.2007.04333.x [HUI2; HUI3; Comprehensive Health Status Classification System for Pre-School Children, CHSCS-PS; Review Paper]

Grima, D. T., Torrance, G. W., Francis, G., Rice, G., Rosner, A. J., & Lafortune, L. (2000). Cost and health related quality of life consequences of multiple sclerosis. Multiple Sclerosis, 6(2), 91–98. https://doi.org/10.1177/135245850000600207 [HUI2; Construct Validity]

Grootendorst, P. V., Feeny, D. H., & Furlong, W. (1997). Does it matter whom and how you ask? inter- and intra-rater agreement in the Ontario Health Survey. Journal of Clinical Epidemiology, 50(2), 127–135. https://doi.org/10.1016/s0895-4356(96)00314-9 [HUI3; Reliability]

Grootendorst, P., Feeny, D., & Furlong, W. (1999). Health Utilities Index Mark 3: Evidence of Construct Validity for Stroke and Arthritis in a Population Health Survey. McMaster University Centre for Health Economics and Policy Analysis Working Paper No. 99-06. Information on ordering Centre for Health Economics and Policy Analysis (CHEPA) Working Papers may be obtained from CHEPA, McMaster University, 1280 Main Street West, Communications Research Laboratory Building, Second Floor, Hamilton, ON L8S 4K1 Canada. chepa@mcmaster.ca; https://chepa.mcmaster.ca [Construct Validity]

Grootendorst, P., Feeny, D., & Furlong, W. (2000). Health Utilities Index Mark 3: evidence of construct validity for stroke and arthritis in a population health survey. Medical care, 38(3), 290–299. https://doi.org/10.1097/00005650-200003000-00006 [Construct Validity]

Grosse, S. D., Prosser, L. A., Asakawa, K., & Feeny, D. (2010). QALY weights for neurosensory impairments in pediatric economic evaluations: case studies and a critique. Expert Review of Pharmacoeconomics & Outcomes Research, 10(3), 293–308. https://doi.org/10.1586/erp.10.24 [HUI2; HUI3; Review Article]

Harsanyi, J. C. (1955). Cardinal Welfare, Individualistic Ethics, and Interpersonal Comparisons of Utility. Journal of Political Economy, 63(4), 309–321. https://www.jstor.org/stable/1827128 [Scoring; Theory]

Hatoum, H. T., Brazier, J. E., & Akhras, K. S. (2004). Comparison of the HUI3 with the SF-36 preference based SF-6D in a clinical trial setting. Value in health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research, 7(5), 602–609. https://doi.org/10.1111/j.1524-4733.2004.75011.x [HUI3; Construct Validity; Responsiveness]

Hawthorne, G., Richardson, J., & Day, N. A. (2001). A comparison of the Assessment of Quality of Life (AQoL) with four other generic utility instruments. Annals of medicine, 33(5), 358–370.
https://doi.org/10.3109/07853890109002090 [HUI3; Review Paper; Construct Validity]

Hawthorne, G., & Richardson, J. (2001). Measuring the value of program outcomes: a review of multiattribute utility measures. Expert Review of Pharmacoeconomics & Outcomes Research, 1(2), 215–228. https://doi.org/10.1586/14737167.1.2.215 [HUI3; Review Paper; Construct Validity]

Hays, R. D., Kim, S., Spritzer, K. L., Kaplan, R. M., Tally, S., Feeny, D., Liu, H., & Fryback, D. G. (2009). Effects of mode and order of administration on generic health-related quality of life scores. Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research,12(6), 1035–1039. https://doi.org/10.1111/j.1524-4733.2009.00566.x [HUI2; HUI3; Mode of Administration]

Hays, R. D., Revicki, D. A., Feeny, D., Fayers, P., Spritzer, K. L., & Cella, D. (2016). Using Linear Equating to Map PROMIS(®) Global Health Items and the PROMIS-29 V2.0 Profile Measure to the Health Utilities Index Mark 3. PharmacoEconomics, 34(10), 1015–1022. https://doi.org/10.1007/s40273-016-0408-x [HUI3]

Hille, E. T., den Ouden, A. L., Stuifbergen, M. C., Verrips, G. H., Vogels, A. G., Brand, R., Gravenhorst, J. B., & Verloove-Vanhorick, S. P. (2005). Is attrition bias a problem in neonatal follow-up? Early Human Development, 81(11), 901–908. https://doi.org/10.1016/j.earlhumdev.2005.07.006 [HUI3; Construct Validity]

Hirdes, J. P., Bernier, J., Garner, R., Finès, P., & Jantzi, M. (2018). Measuring health related quality of life (HRQoL) in community and facility-based care settings with the interRAI assessment instruments: development of a crosswalk to HUI3. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 27(5), 1295–1309. https://doi.org/10.1007/s11136-018-1800-0 [HUI3; interRAI; Construct Validity]

Horsman, J., Furlong, W., Feeny, D., & Torrance, G. (2003). The Health Utilities Index (HUI): concepts, measurement properties and applications. Health and Quality of Life Outcomes, 1, 54. https://doi.org/10.1186/1477-7525-1-54 [HUI2; HUI3; Review Article]

Houle, C., Berthelot, J. M. (2000). A head-to-head comparison of the Health Utilities Index Mark 3 and the EQ-5D for the population living in private households in Canada. Quality of Life Newsletter, Number 24 (January - June, 2000), 5-6. No link available. [Construct Validity]

Hung, S. Y., Pickard, A. S., Witt, W. P., & Lambert, B. L. (2007). Pain and depression in caregivers affected their perception of pain in stroke patients. Journal of Clinical Epidemiology, 60(9), 963–970. https://doi.org/10.1016/j.jclinepi.2006.12.010 [HUI3; Construct Validity; Inter-Rater Reliability]

Janse, A. J., Gemke, R. J., Uiterwaal, C. S., van der Tweel, I., Kimpen, J. L., & Sinnema, G. (2004). Quality of life: patients and doctors don't always agree: a meta-analysis. Journal of Clinical Epidemiology, 57(7), 653–661. https://doi.org/10.1016/j.jclinepi.2003.11.013 [HUI2; HUI3; Inter-rater Reliability]

Janse, A. J., Sinnema, G., Uiterwaal, C. S., Kimpen, J. L., & Gemke, R. J. (2005). Quality of life in chronic illness: perceptions of parents and paediatricians. Archives of Disease in Childhood, 90(5), 486–491. https://doi.org/10.1136/adc.2004.051722 [HUI3; Inter-rater Reliability]

Janse, A. J., Uiterwaal, C. S., Gemke, R. J., Kimpen, J. L., & Sinnema, G. (2005). A difference in perception of quality of life in chronically ill children was found between parents and pediatricians. Journal of Clinical Epidemiology, 58(5), 495–502. https://doi.org/10.1016/j.jclinepi.2004.09.010 [HUI3; Construct Validity; Reliability]

Jones, C. A., & Feeny, D. H. (2005). Agreement between patient and proxy responses of health-related quality of life after hip fracture. Journal of the American Geriatrics Society, 53(7), 1227–1233. https://doi.org/10.1111/j.1532-5415.2005.53374.x [HUI2; HUI3; Inter-Rater Agreement; Reliability; Construct Validity]

Jones, C. A., Feeny, D., & Eng, K. (2005). Test-retest reliability of health utilities index scores: evidence from hip fracture. International Journal of Technology Assessment in Health Care, 21(3), 393–398. https://doi.org/10.1017/s0266462305050518 [HUI2; HUI3; Test-Retest Reliability]

Joyce, V. R., Sun, H., Barnett, P. G., Bansback, N., Griffin, S. C., Bayoumi, A. M., Anis, A. H., Sculpher, M., Cameron, W., Brown, S. T., Holodniy, M., & Owens, D. K. (2017). Mapping MOS-HIV to HUI3 and EQ-5D-3L in Patients With HIV. MDM Policy & Practice, 2(2), 2381468317716440.
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Kaplan, M. S., Berthelot, J.-M., Feeny, D., McFarland, B. H., Khan, S., & Orpana, H. (2007). The Predictive Validity of Health-Related Quality of Life Measures: Mortality in a Longitudinal Population-Based Study. Quality of Life Research, 16(9), 1539–1546. http://www.jstor.org/stable/40212632 [HUI3; Construct Validity; Predictive Validity]

Kaplan, R. M., Groessl, E. J., Sengupta, N., Sieber, W. J., & Ganiats, T. G. (2005). Comparison of measured utility scores and imputed scores from the SF-36 in patients with rheumatoid arthritis. Medical Care, 43(1), 79–87. Link [HUI2; HUI3; Construct Validity; Responsiveness]

Kaplan, R. M., Tally, S., Hays, R. D., Feeny, D., Ganiats, T. G., Palta, M., & Fryback, D. G. (2011). Five preference-based indexes in cataract and heart failure patients were not equally responsive to change. Journal of Clinical Epidemiology, 64(5), 497–506. https://doi.org/10.1016/j.jclinepi.2010.04.010 [HUI2; HUI3; Construct Validity; Responsiveness]

Keeney, R. L. (1976). A Group Preference Axiomatization with Cardinal Utility. Management Science, 23(2), 140–145. Link [Scoring; Theory]

Keeney, R.L., (1988). Building Models of Values. European Journal of Operational Research, 37(2), 149-157. https://doi.org/10.1016/0377-2217(88)90324-4 [Scoring; Theory]

Keeney, R. L., & Raiffa, H. (1976). Decisions with multiple objectives: Preferences and value tradeoffs. Cambridge University Press. https://doi.org/10.1017/CBO9781139174084 [Scoring; Theory]

Keren, R., Pati, S., & Feudtner, C. (2004). The generation gap: differences between children and adults pertinent to economic evaluations of health interventions. PharmacoEconomics, 22(2), 71–81. https://doi.org/10.2165/00019053-200422020-00001 [HUI2, HUI3]

Kharroubi, S. A., & McCabe, C. (2008). Modeling HUI 2 health state preference data using a nonparametric Bayesian method. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 28(6), 875–887. https://doi.org/10.1177/0272989X08318460 [HUI2; Scoring Function, UK preferences]

Konerding, U., Moock, J., & Kohlmann, T. (2009). The Classification Systems of the EQ-5D, the HUI II and the SF-6D: What Do They Have in Common? Quality of Life Research, 18(9), 1249–1261. http://www.jstor.org/stable/40539892 [HUI2; Construct Validity]

Konerding U. (2011). Preference-based index measurement of health-related quality of life: when does it reflect only arbitrary settings of the researcher? Health Economics, 20(4), 471–483. https://doi.org/10.1002/hec.1604 [HUI2; HUI3; Scoring]

Koomen, I., Raat, H., Jennekens-Schinkel, A., Grobbee, D. E., Roord, J. J., & van Furth, M. (2005). Academic and behavioral limitations and health-related quality of life in school-age survivors of bacterial meningitis. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 14(6), 1563–1572. https://doi.org/10.1007/s11136-004-7706-z [HUI2; HUI3; Construct Validity]

Kopec, J. A., & Willison, K. D. (2003). A comparative review of four preference-weighted measures of health-related quality of life. Journal of Clinical Epidemiology, 56(4), 317–325. https://doi.org/10.1016/s0895-4356(02)00609-1 [HUI3; Review Article]

Kopec, J. A., Sayre, E. C., Flanagan, W. M., Fines, P., Cibere, J., Rahman, M. M., Bansback, N. J., Anis, A. H., Jordan, J. M., Sobolev, B., Aghajanian, J., Kang, W., Greidanus, N. V., Garbuz, D. S., Hawker, G. A., & Badley, E. M. (2010). Development of a population-based microsimulation model of osteoarthritis in Canada. Osteoarthritis and Cartilage, 18(3), 303–311. https://doi.org/10.1016/j.joca.2009.10.010 [HUI3; Construct Validity]

Krahn, M., Ritvo, P., Irvine, J., Tomlinson, G., Bremner, K. E., Bezjak, A., Trachtenberg, J., & Naglie, G. (2003). Patient and community preferences for outcomes in prostate cancer: implications for clinical policy. Medical Care, 41(1), 153–164. https://doi.org/10.1097/00005650-200301000-00017 [HUI3; Construct Validity]

Krahn, M., Bremner, K. E., Tomlinson, G., Ritvo, P., Irvine, J., & Naglie, G. (2007). Responsiveness of disease-specific and generic utility instruments in prostate cancer patients. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 16(3), 509–522. https://doi.org/10.1007/s11136-006-9132-x [HUI2; HUI3; Construct Validity; Responsiveness]

Kromm, S. K., Bethell, J., Kraglund, F., Edwards, S. A., Laporte, A., Coyte, P. C., & Ungar, W. J. (2012). Characteristics and quality of pediatric cost-utility analyses. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 21(8), 1315–1325. https://doi.org/10.1007/s11136-011-0049-7 [HUI2; HUI3; Review Article]

Kubba, H., Swan, I. R., & Gatehouse, S. (2005). Measuring quality of life in preschool children with sore throats and otitis media using the TAPQOL questionnaire. Otolaryngology—Head and Neck Surgery: Official Journal of American Academy of Otolaryngology-Head and Neck Surgery, 132(4), 647–652. https://doi.org/10.1016/j.otohns.2005.01.028 [HUI3; Construct Validity]

Kulkarni, A. V., Rabin, D., & Drake, J. M. (2004). An instrument to measure the health status in children with hydrocephalus: the Hydrocephalus Outcome Questionnaire. Journal of neurosurgery, 101(2 Suppl), 134–140. https://doi.org/10.3171/ped.2004.101.2.0134 [HUI2; Construct Validity]

Kulkarni A. V. (2006). Distribution-based and anchor-based approaches provided different interpretability estimates for the Hydrocephalus Outcome Questionnaire. Journal of Clinical Epidemiology, 59(2), 176–184. https://doi.org/10.1016/j.jclinepi.2005.07.011 [HUI2; Construct Validity]

Kulkarni, A. V., Cochrane, D. D., McNeely, P. D., & Shams, I. (2008). Comparing children's and parents' perspectives of health outcome in paediatric hydrocephalus. Developmental Medicine and Child Neurology, 50(8), 587–592. https://doi.org/10.1111/j.1469-8749.2008.03037.x [HUI3; Construct Validity]

Kwon, J., Smith, S., Raghunandan, R., Howell, M., Huynh, E., Kim, S., Bentley, T., Roberts, N., Lancsar, E., Howard, K., Wong, G., Craig, J., & Petrou, S. (2023). Systematic Review of the Psychometric Performance of Generic Childhood Multi-attribute Utility Instruments. Applied health economics and health policy, 21(4), 559–584. https://doi.org/10.1007/s40258-023-00806-8 [HUI2; HUI3; Review Article]

Lagacé, C., Perruccio, A., DesMeules, M., Badley, E. (2003). The impact of arthritis on canadians. In Badley, E., & DesMeules, M., (Eds.), Arthritis in Canada: An Ongoing Challenge. Ottawa: Health Canada, 2, 7-32. Catologue #H39-4/14-2003E. https://publications.gc.ca/Collection/H39-4-14-2003E.pdf [HUI3; Construct Validity]

Langfitt, J. T., Vickrey, B. G., McDermott, M. P., Messing, S., Berg, A. T., Spencer, S. S., Sperling, M. R., Bazil, C. W., & Shinnar, S. (2006). Validity and responsiveness of generic preference-based HRQOL instruments in chronic epilepsy. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 15(5), 899–914. https://doi.org/10.1007/s11136-005-5231-3 [HUI2; HUI3; Construct Validity; Responsiveness]

Lee, T. A., Hollingworth, W., & Sullivan, S. D. (2003). Comparison of directly elicited preferences to preferences derived from the SF-36 in adults with asthma. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 23(4), 323–334. https://doi.org/10.1177/0272989X03256009 [HUI2; Scoring]

Le Galès, C., Buron, C., Costet, N., Rosman, S., Slama, A. (2001). Développement d'un index d'états de santé pondéré par les utilités en population française: le Health Utilities Index. Économie & prévision, 150(4), 71-87. Communication Présentée au XIXème Séminaire des Économistes de la Santé. Lyon, October 16-17, 1997. https://doi.org/10.3917/ecop.150.0071 [Cultural Adaptation; Translation]

Le Galès, C., Buron, C., Costet, N., Kinkor, F., Feeny, D., Furlong, W., Chwalow, J., & G. Slama. Assessment of the Multi-Attribute Preference Function for Health Utility Index 3 in France. Preliminary Results. Quality of Life Research 6, no. 7/8 (1997): 678–678. (Abstract). http://www.jstor.org/stable/4035570 [Cross-Cultural Validation; Scoring]

Le Galès, C., Costet, N., Gentet, J. C., Kalifa, C., Frappaz, D., Edan, C., Sariban, E., Plantaz, D., & Doz, F. (1999). Cross-cultural adaptation of a health status classification system in children with cancer. First results of the French adaptation of the Health Utilities Index Marks 2 and 3. International Journal of Cancer. Supplement, 12, 112–118. No link available. [HUI2; HUI3; Cross-Cultural Adaptation]

Le Galès, C., Buron, C., Costet, N., Rosman, S., Slama, G. (2000). The French Health Utilities Index Mark 3. Value and Health, 3(2), 103. (Abstract). https://www.valueinhealthjournal.com/article/S1098-3015(11)70457-0/pdf [Cross-Cultural Validation; Scoring]

Le Galès, C., Buron, C., Costet N., Rosman, S., Slama G. (2001). Développement d'un index d'états de santé pondéré par les utilités en population française: le Health Utilities Index. Économie & Prévision, 150(4), 71-87. https://doi.org/10.3406/ecop.2001.6350 [HUI3; Cross-Cultural Validation; Scoring]

Le Galès, C., Buron, C., Costet, N., Rosman, S., & Slama, G. (2002). Development of a preference-weighted health status classification system in France: the Health Utilities Index 3. Health Care Management Science, 5(1), 41–51. https://doi.org/10.1023/a:1013201102918 [HUI3; Cross-Cultural Validation; Scoring]

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Mrus, J. M., Yi, M. S., Freedberg, K. A., Wu, A. W., Zackin, R., Gorski, H., & Tsevat, J. (2003). Utilities derived from visual analog scale scores in patients with HIV/AIDS. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 23(5), 414–421. https://doi.org/10.1177/0272989X03256884 [HUI2; Construct Validity]

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Nathan, P. C., Furlong, W., De Pauw, S., Horsman, J., Van Schaik, C., Rolland, M., Weitzman, S., Feeny, D., & Barr, R. D. (2004). Health status of young children during therapy for advanced neuroblastoma. Pediatric Blood & Cancer, 43(6), 659–667. https://doi.org/10.1002/pbc.20133 [Comprehensive Health Status Classification System for Pre-School Children, CHSCS-PS; Reliability; Construct Validity; Pediatric Oncology]

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Neumann, P. J., Sandberg, E. A., Araki, S. S., Kuntz, K. M., Feeny, D., & Weinstein, M. C. (2000). A comparison of HUI2 and HUI3 utility scores in Alzheimer's disease. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 20(4), 413–422. https://doi.org/10.1177/0272989X0002000405 [Construct Validity; Scoring]

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Nichol, M. B., Sengupta, N., & Globe, D. R. (2001). Evaluating quality-adjusted life years: estimation of the health utility index (HUI2) from the SF-36. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 21(2), 105–112. https://doi.org/10.1177/0272989X0102100203 [HUI2; Construct Validity; Scoring]

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Petrou S. (2003). Methodological issues raised by preference-based approaches to measuring the health status of children. Health Economics, 12(8), 697–702. https://doi.org/10.1002/hec.775 [HUI2; Construct Validitiy]

Petrou, S., McCann, D., Law, C. M., Watkin, P. M., Worsfold, S., & Kennedy, C. R. (2007). Health status and health-related quality of life preference-based outcomes of children who are aged 7 to 9 years and have bilateral permanent childhood hearing impairment. Pediatrics, 120(5), 1044–1052. https://doi.org/10.1542/peds.2007-0159 [HUI3; Construct Validity; Hearing]

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Pickard, A. S., Johnson, J. A., & Feeny, D. H. (2005). Responsiveness of generic health-related quality of life measures in stroke. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 14(1), 207–219. https://doi.org/10.1007/s11136-004-3928-3 [HUI2; HUI3; Construct Validity; Responsiveness]

Pickard, A. S., Wang, Z., Walton, S. M., & Lee, T. A. (2005). Are decisions using cost-utility analyses robust to choice of SF-36/SF-12 preference-based algorithm? Health and Quality of Life Outcomes, 3, 11. https://doi.org/10.1186/1477-7525-3-11 [HUI2; HUI3; Construct Validity]

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Quinn, G. E., Dobson, V., Saigal, S., Phelps, D. L., Hardy, R. J., Tung, B., Summers, C. G., Palmer, E. A., & CRYO-ROP Cooperative Group (2004). Health-related quality of life at age 10 years in very low-birth-weight children with and without threshold retinopathy of prematurity. Archives of Ophthalmology, 122(11), 1659–1666. https://doi.org/10.1001/archopht.122.11.1659 [HUI3; Construct Validity]

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Rashidi, A. A., Anis, A. H., & Marra, C. A. (2006). Do visual analogue scale (VAS) derived standard gamble (SG) utilities agree with Health Utilities Index utilities? A comparison of patient and community preferences for health status in rheumatoid arthritis patients. Health and Quality of Life Outcomes, 4, 25. https://doi.org/10.1186/1477-7525-4-25 [HUI2; HUI3; Construct Validity]

Ratcliffe, J., Stevens, K., Flynn, T., Brazier, J., & Sawyer, M. (2012). An assessment of the construct validity of the CHU9D in the Australian adolescent general population. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 21(4), 717–725. https://doi.org/10.1007/s11136-011-9971-y [HUI2; Construct Validity]

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Revicki, D. A., Feeny, D., Hunt, T. L., & Cole, B. F. (2006). Analyzing oncology clinical trial data using the Q-TWiST method: clinical importance and sources for health state preference data. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 15(3), 411–423. https://doi.org/10.1007/s11136-005-1579-7

Stephens R. (2006). Clinically important differences in Q-TWIST - one twist too many? Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 15(3), 425–426. https://doi.org/10.1007/s11136-005-4672-z

Revicki, D. A., Feeny, D., Hunt, T. L., & Cole, B. F. (2006). Clinically important differences in Q-TWIST - one twist too many? Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 15(3), 427-428. https://doi.org/10.1007/s11136-005-4673-y

[HUI2; HUI3; Interpretation]I

Revicki, D. A., Brandenburg, N., Matza, L., Hornbrook, M. C., & Feeny, D. (2008). Health-related quality of life and utilities in primary-care patients with generalized anxiety disorder. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 17(10), 1285–1294. https://doi.org/10.1007/s11136-008-9406-6 [HUI2; HUI3; Construct Validity]

Revicki, D. A., & Lenderking, W. R. (2012). Methods and issues associated with the use of quality-adjusted life-years. Expert Review of Pharmacoeconomics & Outcomes Research, 12(1), 105–114. https://doi.org/10.1586/erp.11.100 [HUI2; HUI3; Review Article]

Richardson, J., McKie, J., & Bariola, E. (2014) Multiattribute Utility Instruments and Their Use. In Anthony J. Culyer, (Ed.), Encyclopedia of Health Economics, Vol. 2, pp 341-357). Elsevier. https://doi.org/10.1016/B978-0-12-375678-7.00505-8 [HUI3; Review Paper]

Richardson, J., Khan, M. A., Iezzi, A., & Maxwell, A. (2015). Comparing and explaining differences in the magnitude, content, and sensitivity of utilities predicted by the EQ-5D, SF-6D, HUI 3, 15D, QWB, and AQoL-8D multiattribute utility instruments. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 35(3), 276–291. https://doi.org/10.1177/0272989X14543107 [HUI3; Construct Validity]

Richardson, J., Chen, G., Khan, M. A., & Iezzi, A. (2015). Can multi-attribute utility instruments adequately account for subjective well-being? Medical Decision Making: An International Journal of the Society for Medical Decision Making, 35(3), 292–304. https://doi.org/10.1177/0272989X14567354 [HUI3; Construct Validity]

Richardson, J., Iezzi, A., & Khan, M. A. (2015). Why do multi-attribute utility instruments produce different utilities: the relative importance of the descriptive systems, scale and 'micro-utility' effects. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 24(8), 2045–2053. https://doi.org/10.1007/s11136-015-0926-6 [HUI3]

Richardson, J., Iezzi, A., Khan, M. A., Chen, G., & Maxwell, A. (2016). Measuring the Sensitivity and Construct Validity of 6 Utility Instruments in 7 Disease Areas. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 36(2), 147–159. https://doi.org/10.1177/0272989X15613522

Rizzo, J. A., Pashko, S., Friedkin, R., Mullahy, J., & Sindelar, J. L. (1998). Linking the health utilities index to National Medical Expenditure Survey data. PharmacoEconomics, 13(5 Pt 1), 531–541.
https://doi.org/10.2165/00019053-199813050-00006 [HUI1; Construct Validity]

Rizzo, J. A., & Sindelar, J. L. (1999). Linking health-related quality-of-life indicators to large national data sets. PharmacoEconomics, 16(5 Pt 1), 473–482. https://doi.org/10.2165/00019053-199916050-00005 [HUI1; Construct Validity]

Robertson, C. M., Watt, J. M., Joffe, A. R., Murphy, D. B., Nagy, J. M., McLean, D. E., Pain, K. S., & Saunders, L. D. (2001). Childhood morbidity after severe traumatic brain injury: Increased detection with the Multiattribute Health Status Classification. Pediatric Critical Care Medicine: a Journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies, 2(2), 145–150. https://doi.org/10.1097/00130478-200104000-00009 [HUI2; Construct Validity; Inter-rater Agreement]

Rowen, D., & Brazier, J. (2011). Health utility measurement. In Sherry Glied and Peter C. Smith, (Eds.), The Oxford Handbook of Health Economics (pp 788-813). Oxford University Press.
https://doi.org/10.1093/oxfordhb/9780199238828.013.0033 [HUI2; HUI3; Review Article]

Rowen, D., Rivero-Arias, O., Devlin, N., & Ratcliffe, J. (2020). Review of Valuation Methods of Preference-Based Measures of Health for Economic Evaluation in Child and Adolescent Populations: Where are We Now and Where are We Going? PharmacoEconomics, 38(4), 325–340. https://doi.org/10.1007/s40273-019-00873-7 [HUI2; HUI3; Review Article]

Ruiz, M., Rejas, J., Soto, J., Pardo, A., & Rebollo, I. (2003). Adaptación y validación del Health Utilities Index Mark 3 al castellano y baremos de corrección en la población española [Adaptation and validation of the Health Utilities Index Mark 3 into Spanish and correction norms for Spanish population]. Medicina Clinica, 120(3), 89–96. https://doi.org/10.1016/s0025-7753(03)73612-4 [HUI3; Scoring; Generalizability]

Saigal, S., Rosenbaum, P., Stoskopf, B., Hoult, L., Furlong, W., Feeny, D., & Hagan, R. (2005). Development, reliability and validity of a new measure of overall health for pre-school children. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 14(1), 243–257. https://doi.org/10.1007/s11136-004-4228-7 [HUI2 and HUI3 for children under the age of 5]

Samsa, G., Edelman, D., Rothman, M. L., Williams, G. R., Lipscomb, J., & Matchar, D. (1999). Determining clinically important differences in health status measures: a general approach with illustration to the Health Utilities Index Mark II. PharmacoEconomics, 15(2), 141–155. https://doi.org/10.2165/00019053-199915020-00003 [Interpretability]

Sanghera, S., & Coast, J. (2020). Measuring Quality-Adjusted Life-Years When Health Fluctuates. Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research, 23(3), 343–350. https://doi.org/10.1016/j.jval.2019.09.2753 [HUI3; Recall Period]

Santana, M. J., Feeny, D., Johnson, J. A., McAlister, F. A., Kim, D., Weinkauf, J., & Lien, D. C. (2010). Assessing the use of health-related quality of life measures in the routine clinical care of lung-transplant patients. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 19(3), 371–379. https://doi.org/10.1007/s11136-010-9599-3 [HUI2; HUI3; Construct Validity; Interpretation; Routine Use]

Schünemann, H. J., Griffith, L., Stubbing, D., Goldstein, R., & Guyatt, G. H. (2003). A clinical trial to evaluate the measurement properties of 2 direct preference instruments administered with and without hypothetical marker states. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 23(2), 140–149. https://doi.org/10.1177/0272989X03251243 [HUI3, Construct Validity, Responsiveness]

Sengupta, N., Nichol, M. B., Wu, J., & Globe, D. (2004). Mapping the SF-12 to the HUI3 and VAS in a managed care population. Medical Care, 42(9), 927–937. https://doi.org/10.1097/01.mlr.0000135812.52570.42 [HUI3; Scoring]

Sgouros, S., Kulkharni, A. V., & Constantini, S. (2006). The International Infant Hydrocephalus Study: concept and rational. Child's Nervous System: Official Journal of the International Society for Pediatric Neurosurgery, 22(4), 338–345. https://doi.org/10.1007/s00381-005-1253-y [HUI3; Study Design]

Silberfeld, M., Rueda, S., Krahn, M., & Naglie, G. (2002). Content validity for dementia of three generic preference based health related quality of life instruments. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 11(1), 71–79. https://doi.org/10.1023/a:1014406429385 [HUI2; HUI3; Content Validity]

Speechley, K.N., Maunsell, E., Desmeules, M., Schanzer, D., Landgraf, J. M., Feeny, D. H., & Barrera, M. E. (1999). Mutual concurrent validity of the child health questionnaire and the health utilities index: an exploratory analysis using survivors of childhood cancer. International Journal of Cancer. Supplement, 12, 95–105. https://doi.org/10.1002/(sici)1097-0215(1999)83:12+<95::aid-ijc18>3.0.co;2-h [HUI2; Construct Validity]

Stevens, K. J., McCabe, C. J., & Brazier, J. E. (2006). Mapping between Visual Analogue Scale and Standard Gamble data; results from the UK Health Utilities Index 2 valuation survey. Health economics15(5), 527–533. https://doi.org/10.1002/hec.1076 [HUI2; Scoring Function]

Stevens, K., McCabe, C., Brazier, J., & Roberts, J. (2007). Multi-attribute utility function or statistical inference models: a comparison of health state valuation models using the HUI2 health state classification system. Journal of Health Economics, 26(5), 992–1002. https://doi.org/10.1016/j.jhealeco.2006.12.007 [HUI2; Scoring Function]

Sun J. (2003). Adjusting distributions of the Health Utilities Index Mark 3 utility scores of health-related quality of life. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 12(1), 11–20. https://doi.org/10.1023/a:1022017130014 [HUI3; Construct Validity]

Supina, A. L., Feeny, D. H., Carroll, L. J., & Johnson, J. A. (2006). Misinterpretation with norm-based scoring of health status in adults with type 1 diabetes. Health and Quality of Life Outcomes, 4, 15. https://doi.org/10.1186/1477-7525-4-15 [HUI3; Construct Validity]

Tarride, J. E., Burke, N., Bischof, M., Hopkins, R. B., Goeree, L., Campbell, K., Xie, F., O'Reilly, D., & Goeree, R. (2010). A review of health utilities across conditions common in paediatric and adult populations. Health and Quality of Life Outcomes, 8, 12. https://doi.org/10.1186/1477-7525-8-12 [HUI2; HUI3; Review Article]

Thoma, A., Sprague, S., Veltri, K., Duku, E., & Furlong, W. (2005). Methodology and measurement properties of health-related quality of life instruments: a prospective study of patients undergoing breast reduction surgery. Health and Quality of Life Outcomes, 3, 44. https://doi.org/10.1186/1477-7525-3-44 [HUI2; HUI3; Test-retest Reliability; Construct Validity; Responsiveness]

Torrance, G. W. (1982). Multi-attribute utility theory as a method of measuring social preferences for health states in long-term care. Values and Long Term Care, 127-156. In Robert L. Kane and Rosalie A. Kane, (Eds.), Values and Long-Term Care (pp 127-156). Lexington Books. No link available. [Description of Systems; Scoring; Theory]

Torrance, G. W., Boyle, M. H., & Horwood, S. P. (1982). Application of multi-attribute utility theory to measure social preferences for health states. Operations Research, 30(6), 1043–1069. https://doi.org/10.1287/opre.30.6.1043 [HUI1; Scoring; Theory]

Torrance, G. W., Feeny, D., & Furlong, W. (2001). Visual analog scales: do they have a role in the measurement of preferences for health states? Medical Decision Making: An International Journal of the Society for Medical Decision Making, 21(4), 329–334. https://doi.org/10.1177/0272989X0102100408 [Scoring; Measurement; Theory]

Torrance, G. W., Furlong, W., Feeny, D., & Boyle, M. (1995). Multi-attribute preference functions. Health Utilities Index. PharmacoEconomics, 7(6), 503–520. https://doi.org/10.2165/00019053-199507060-00005 [HUI2; Scoring; Theory]

Torrance, G. W., Furlong, W., & Feeny, D. (2002). Health utility estimation. Expert Review of Pharmacoeconomics & Outcomes Research, 2(2), 99–108. https://doi.org/10.1586/14737167.2.2.99 [Review Paper]

Torrance, G. W. (1992). Multi-attribute preference functions for a comprehensive health status classification system. McMaster University Centre for Health Economics and Policy Analysis Working Paper No. 92-18. Information on ordering Centre for Health Economics and Policy Analysis (CHEPA) Working Papers may be obtained from CHEPA, McMaster University, 1280 Main Street West, Communications Research Laboratory Building, Second Floor, Hamilton, ON L8S 4K1 Canada.chepa@mcmaster.ca; https://chepa.mcmaster.ca [HUI2; Scoring; Theory]

Torrance, G. W., Feeny, D. H., Furlong, W. J., Barr, R. D., Zhang, Y., & Wang, Q. (1996). Multiattribute utility function for a comprehensive health status classification system. Health Utilities Index Mark 2. Medical Care, 34(7), 702–722. https://doi.org/10.1097/00005650-199607000-00004 [HUI2; Scoring; Theory]

Torrance G. W. (1986). Measurement of health state utilities for economic appraisal. Journal of Health Economics, 5(1), 1–30. https://doi.org/10.1016/0167-6296(86)90020-2 [HUI1; Description of Systems; Scoring; Theory]

Torrance, G. W., & Feeny, D. (1989). Utilities and quality-adjusted life years. International Journal of Technology Assessment in Health Care, 5(4), 559–575. https://doi.org/10.1017/s0266462300008461 [Theory]

Tosh, J. C., Longworth, L. J., & George, E. (2011). Utility values in National Institute for Health and Clinical Excellence (NICE) Technology Appraisals. Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research, 14(1), 102–109. https://doi.org/10.1016/j.jval.2010.10.015 [HUI2; HUI3; Review Article]

Tosh, J., Brazier, J., Evans, P., & Longworth, L. (2012). A review of generic preference-based measures of health-related quality of life in visual disorders. Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research, 15(1), 118–127. https://doi.org/10.1016/j.jval.2011.08.002 [HUI3; Vision; Construct Validity; Review Article]

Ungar W. J. (2011). Challenges in health state valuation in paediatric economic evaluation: are QALYs contraindicated? PharmacoEconomics, 29(8), 641–652. https://doi.org/10.2165/11591570-000000000-00000 [HUI2; HUI3; Review Article]

Valderas, J. M., & Alonso, J. (2008). Patient reported outcome measures: a model-based classification system for research and clinical practice. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 17(9), 1125–1135. https://doi.org/10.1007/s11136-008-9396-4 [HUI2; HUI3; Review Article]

Verrips, G. H., Stuifbergen, M. C., den Ouden, A. L., Bonsel, G. J., Gemke, R. J., Paneth, N., & Verloove-Vanhorick, S. P. (2001). Measuring health status using the Health Utilities Index: agreement between raters and between modalities of administration. Journal of Clinical Epidemiology, 54(5), 475–481. https://doi.org/10.1016/s0895-4356(00)00317-6 [HUI3; Interrater Reliability; Inter-mode Reliability; Child Health]

Von Neumann, J., & Morgenstern, O. (1944). Theory of Games and Economic Behavior. Princeton University Press. https://philpapers.org/rec/VONTOG-4 [Theory]

Wang, Q., Furlong, W., Feeny, D., Torrance, G., & Barr, R. (2002). How robust is the Health Utilities Index Mark 2 utility function? Medical Decision Making: An International Journal of the Society for Medical Decision Making, 22(4), 350–358. https://doi.org/10.1177/0272989X0202200413 [HUI2; Scoring]

Wee, H. L., Machin, D., Loke, W. C., Li, S. C., Cheung, Y. B., Luo, N., Feeny, D., Fong, K. Y., & Thumboo, J. (2007). Assessing differences in utility scores: a comparison of four widely used preference-based instruments. Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research, 10(4), 256–265. https://doi.org/10.1111/j.1524-4733.2007.00174.x [HUI3; Construct Validity]

Wee, H.L., Li, S. C., Zhang, X. H., Xie, F., Feeny, D., Luo, N., Cheung, Y. B., Machin, D., Fong, K. Y., & Thumboo, J. (2008). Are symbols useful and culturally acceptable in health-state valuation studies? An exploratory study in a multi-ethnic Asian population. Patient Preference and Adherence, 2, 271–276. https://doi.org/10.2147/ppa.s4142 [HUI3; Methods for eliciting preference scores]

Wiebe, S., Eliasziw, M., & Matijevic, S. (2001). Changes in quality of life in epilepsy: how large must they be to be real? Epilepsia, 42(1), 113–118. https://doi.org/10.1046/j.1528-1157.2001.081425.x [HUI3; Interpretation; Reliability; Responsiveness]

Wiebe, S., Matijevic, S., Eliasziw, M., & Derry, P. A. (2002). Clinically important change in quality of life in epilepsy. Journal of Neurology, Neurosurgery, and Psychiatry, 73(2), 116–120. https://doi.org/10.1136/jnnp.73.2.116 [HUI3; Interpretation; Responsiveness]

Wilke, C. T., Pickard, A. S., Walton, S. M., Moock, J., Kohlmann, T., & Lee, T. A. (2010). Statistical implications of utility weighted and equally weighted HRQL measures: an empirical study. Health Economics, 19(1), 101–110. https://doi.org/10.1002/hec.1467 [HUI3; Construct Validity; Responsiveness; Test-Retest Reliability]

Wodchis, W. P., Hirdes, J. P., & Feeny, D. H. (2003). Health-related quality of life measure based on the minimum data set. International Journal of Technology Assessment in Health Care, 19(3), 490–506. https://doi.org/10.1017/s0266462303000424 [HUI2; MDS-HSI; Construct Validity]

Wodchis, W. P., Maxwell, C. J., Venturini, A., Walker, J. D., Zhang, J., Hogan, D. B., & Feeny, D. F. (2007). Study of observed and self-reported HRQL in older frail adults found group-level congruence and individual-level differences. Journal of Clinical Epidemiology, 60(5), 502–511. https://doi.org/10.1016/j.jclinepi.2006.08.009 [HUI2; MDS-HSI; Construct Validity; Inter-rater Reliability]

Young, N. L., Williams, J. I., Yoshida, K. K., & Wright, J. G. (2000). Measurement properties of the activities scale for kids. Journal of Clinical Epidemiology, 53(2), 125–137. https://doi.org/10.1016/s0895-4356(99)00113-4 [HUI3; Construct Validity]

Clinical and Evaluative Studies Using HUI [Clinical; Evaluative; Reliability; Responsiveness; Validity]

Abdin, E., Chong, S. A., Seow, E., Peh, C. X., Tan, J. H., Liu, J., Hui, S. F. S., Chua, B. Y., Sim, K., Verma, S., Vaingankar, J. A., & Subramaniam, M. (2019). A comparison of the reliability and validity of SF-6D, EQ-5D and HUI3 utility measures in patients with schizophrenia and patients with depression in Singapore. Psychiatry Research, 274, 400–408. https://doi.org/10.1016/j.psychres.2019.02.077 [HUI3; Construct Validity; Responsiveness; Test-Retest Reliability]

Abrams, H. B., Chisolm, T. H., & McArdle, R. (2005). Health-related quality of life and hearing aids: a tutorial. Trends in Amplification, 9(3), 99–109. https://doi.org/10.1177/108471380500900302 [HUI3; Review Article]

Adachi, J. D., Ioannidis, G., Pickard, L., Berger, C., Prior, J. C., Joseph, L., Hanley, D. A., Olszynski, W. P., Murray, T. M., Anastassiades, T., Hopman, W., Brown, J. P., Kirkland, S., Joyce, C., Papaioannou, A., Poliquin, S., Tenenhouse, A., & Papadimitropoulos, E. A. (2003). The association between osteoporotic fractures and health-related quality of life as measured by the Health Utilities Index in the Canadian Multicentre Osteoporosis Study (CaMos). Osteoporosis International, 14(11), 895–904. https://doi.org/10.1007/s00198-003-1483-3 [HUI2; HUI3; Construct Validity]

Adibe, M. O., & Aguwa, C. N. (2013). Sensitivity and responsiveness of health utility indices (HUI2 and HUI3) among type 2 diabetes patients. Tropical Journal of Pharmaceutical Research, 12(5), 835-842. https://www.ajol.info/index.php/tjpr/article/view/95958 [HUI2; HUI3; Construct Validity]

Albertsen, P. C., Nease, R. F., Jr, & Potosky, A. L. (1998). Assessment of patient preferences among men with prostate cancer. The Journal of Urology, 159(1), 158–163. https://doi.org/10.1016/s0022-5347(01)64043-6 [HUI2; Clinical]

Alessi, D., Dama, E., Barr, R., Mosso, M. L., Maule, M., Magnani, C., Pastore, G., & Merletti, F. (2007). Health-related quality of life of long-term childhood cancer survivors: a population-based study from the Childhood Cancer Registry of Piedmont, Italy. European Journal of Cancer, 43(17), 2545–2552.
https://doi.org/10.1016/j.ejca.2007.07.026 [HUI3; Construct Validity]

Alexander, M., Berger, W., Buchholz, P., Walt, J., Burk, C., Lee, J., Arbuckle, R., & Abetz, L. (2005). The reliability, validity, and preliminary responsiveness of the Eye Allergy Patient Impact Questionnaire (EAPIQ). Health and Quality of Life Outcomes, 3, 67. https://doi.org/10.1186/1477-7525-3-67 [HUI2; HUI3; Construct Validity]

Anis, A. H., Nosyk, B., Sun, H., Guh, D. P., Bansback, N., Li, X., Barnett, P. G., Joyce, V., Swanson, K. M., Kyriakides, T. C., Holodniy, M., Cameron, D. W., Brown, S. T., & OPTIMA Team1 (2009). Quality of life of patients with advanced HIV/AIDS: measuring the impact of both AIDS-defining events and non-AIDS serious adverse events. Journal of Acquired Immune Deficiency Syndromes (1999)51(5), 631–639.
https://doi.org/10.1097/QAI.0b013e3181a4f00d [HUI3; Construct Validity; Responsiveness]

Anthony, S. J., Selkirk, E., Sung, L., Klaassen, R. J., Dix, D., Scheinemann, K., & Klassen, A. F. (2014). Considering quality of life for children with cancer: a systematic review of patient-reported outcome measures and the development of a conceptual model. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 23(3), 771–789. https://doi.org/10.1007/s11136-013-0482-x [HUI2; HUI3; Review Article]

Anthony, S. J., Selkirk, E., Sung, L., Klaassen, R. J., Dix, D., & Klassen, A. F. (2017). Quality of life of pediatric oncology patients: Do patient-reported outcome instruments measure what matters to patients? Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 26(2), 273–281. https://doi.org/10.1007/s11136-016-1393-4 [HUI2; HUI3; Content Validity]

Arnoldner, C., Lin, V. Y., Bresler, R., Kaider, A., Kuthubutheen, J., Shipp, D., & Chen, J. M. (2014). Quality of life in cochlear implantees: comparing utility values obtained through the Medical Outcome Study Short-Form Survey-6D and the Health Utility Index Mark 3. The Laryngoscope, 124(11), 2586–2590. https://doi.org/10.1002/lary.24648 [HUI3; Construct Validity; Responsiveness]

Asakawa, K., Rolfson, D., Senthilselvan, A., Feeny, D., & Johnson, J. A. (2008). Health Utilities Index Mark 3 showed valid in Alzheimer disease, arthritis, and cataracts. Journal of Clinical Epidemiology, 61(7), 733–739. https://doi.org/10.1016/j.jclinepi.2007.09.007 [HUI3; Construct Validity]

Ashe, M. C., Miller, W. C., Eng, J. J., Noreau, L., & Physical Activity and Chronic Conditions Research Team (2009). Older adults, chronic disease and leisure-time physical activity. Gerontology, 55(1), 64–72. https://doi.org/10.1159/000141518 [HUI3 ambulation; HUI3 dexterity; HUI3 pain; Construct Validity]

Audhya, I., Rogula, B., Szabo, S. M., Feeny, D., Bolatova, T., & Gooch, K. (2023). Exploring the relationship between North Star Ambulatory Assessment and Health Utilities Index scores in Duchenne muscular dystrophy. Health and Quality of Life Outcomes, 21(1), 76. https://doi.org/10.1186/s12955-023-02160-8 [HUI3; Construct Validity]

Avorn, J., Benner, J., Ford, I., Ganz, D. A., Gaw, A., Glynn, R. J., Jackson, J., Lagaay, A. M., Schneeweiss, S., Walley, T., Wang, P. S., & Outcomes Research Working Group and the PROSPER Study Group (2002). Measuring the cost-effectiveness of lipid-lowering drugs in the elderly: the outcomes research and economic analysis components of the PROSPER trial. Controlled Clinical Trials, 23(6), 757–773. https://doi.org/10.1016/s0197-2456(02)00228-3 [HUI3]

Baladi, J. F., Menon, D., & Otten, N. (1996). An economic evaluation of finasteride for treatment of benign prostatic hyperplasia. PharmacoEconomics, 9(5), 443–454. https://doi.org/10.2165/00019053-199609050-00007 [HUI2; Evaluative]

Banks, B. A., Barrowman, N. J., & Klaassen, R. (2008). Health-related quality of life: changes in children undergoing chemotherapy. Journal of Pediatric Hematology/Oncology, 30(4), 292–297. https://doi.org/10.1097/MPH.0b013e3181647bda [HUI2; HUI3; Construct Validity; Inter-rater Reliability; Responsiveness]

Bansback, N., Czoski-Murray, C., Carlton, J., Lewis, G., Hughes, L., Espallargues, M., Brand, C., & Brazier, J. (2007). Determinants of health related quality of life and health state utility in patients with age related macular degeneration: the association of contrast sensitivity and visual acuity. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 16(3), 533–543. https://doi.org/10.1007/s11136-006-9126-8 [HUI3; Construct Validity]

Bansback, N., Sun, H., Guh, D. P., Li, X., Nosyk, B., Griffin, S., Barnett, P. G., Anis, A. H., & OPTIMA TEAM (2008). Impact of the recall period on measuring health utilities for acute events. Health Economics, 17(12), 1413–1419. https://doi.org/10.1002/hec.1351 [HUI2; HUI3; HIV; Recall Period; Construct Validity] 

Barr, R. D., Furlong, W., Dawson, S., Whitton, A. C., Strautmanis, I., Pai, M., Feeny, D., & Torrance, G. W. (1993). An assessment of global health status in survivors of acute lymphoblastic leukemia in childhood. The American Journal of Pediatric Hematology/Oncology, 15(3), 284–290. https://journals.lww.com/jpho-online/Abstract/1993/08000/An_Assessment_of_Global_Health_Status_in_Survivors.3.aspx [HUI2; Clinical; Construct Validity]

Barr, R., Furlong, W., Henwood, J., Feeny, D., Wegener, J., Walker, I., & Brain, M. (1996). Economic evaluation of allogeneic bone marrow transplantation: a rudimentary model to generate estimates for the timely formulation of clinical policy. Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology, 14(5), 1413–1420. https://doi.org/10.1200/JCO.1996.14.5.1413 [HUI2; Clinical; Evaluative]

Barr, R. D., Feeny, D., Furlong, W., Weitzman, S., & Torrance, G. W. (1995). A preference-based approach to health-related quality-of-life for children with cancer. International Journal of Pediatric Hematology/Oncology, 2(4), 305-315. No link available. [HUI2; Clinical; Construct Validity]

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Barr, R., Petrie, C., Furlong, W., Rothney, M., & Feeny, D. (1997). Health-related quality of life during post-induction chemotherapy in children with acute lymphoblastic leukemia in remission. International Journal of Oncology, 11(2), 333–339. https://doi.org/10.3892/ijo.11.2.333 [HUI2; Clinical; Construct Validity; Responsiveness]

Barr, R. D., Simpson, T., Whitton, A., Rush, B., Furlong, W., & Feeny, D. H. (1999). Health-related quality of life in survivors of tumours of the central nervous system in childhood--a preference-based approach to measurement in a cross-sectional study. European Journal of Cancer, 35(2), 248–255. https://doi.org/10.1016/s0959-8049(98)00366-9 [HUI2; Clinical; Construct Validity; Cross-Cultural Validation]

Barr, R. D., Chalmers, D., De Pauw, S., Furlong, W., Weitzman, S., & Feeny, D. (2000). Health-related quality of life in survivors of Wilms' tumor and advanced neuroblastoma: A cross-sectional study. Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology18(18), 3280–3287. https://doi.org/10.1200/JCO.2000.18.18.3280 [HUI2; HUI3; Clinical; Construct-Validity]

Barr, R. D., Gonzalez, A., Longchong, M., Furlong, W., Vizcaino, M. P., Horsman, J., Fu, L., & Castillo, L. (2001). Health status and health-related quality of life in survivors of cancer in childhood in Latin America: a MISPHO feasibility study. International Journal of Oncology, 19(2), 413–421. https://doi.org/10.3892/ijo.19.2.413 [HUI2; HUI3; Clinical; Construct Validity]

Barr, R. D., Saleh, M., Furlong, W., Horsman, J., Sek, J., Pai, M., & Walker, I. (2002). Health status and health-related quality of life associated with hemophilia. American Journal of Hematology, 71(3), 152–160. https://doi.org/10.1002/ajh.10191 [HUI2; HUI3; Clinical; Construct Validity]

Barr, R. D., Sek, J., Horsman, J., Furlong, W., Saleh, M., Pai, M., & Walker, I. (2003). Health status and health-related quality of life associated with von Willebrand disease. American Journal of Hematology, 73(2), 108–114. https://doi.org/10.1002/ajh.10327 [HUI2; HUI3; Clinical; Construct Validity]

Barr, R. D., Feeny, D., & Furlong, W. (2004). Economic evaluation of treatments for cancer in childhood. European Journal of Cancer, 40(9), 1335–1345. https://doi.org/10.1016/j.ejca.2004.01.033 [HUI2; HUI3]

Barr, R. D., & Sala, A. (2005). Quality-adjusted survival: a rigorous assessment of cure after cancer during childhood and adolescence. Pediatric Blood & Cancer, 44(3), 201–204. https://doi.org/10.1002/pbc.20099 [HUI2; HUI3; Review Article]

Barr, R. D., Silva, A., Wong, M., Frid, W., Posgate, S., & Browne, G. (2010). A comparative assessment of attendance and nonattendance at Camp Trillium by children with cancer and their families; including their utilization of health and social services. Journal of Pediatric Hematology/Oncology, 32(5), 358–365. https://doi.org/10.1097/MPH.0b013e3181dccc1f [HUI2; HUI3; Construct Validity]

Barr, R., Nayiager, T., Gordon, C., Marriott, C., & Athale, U. (2015). Body composition and bone health in long-term survivors of acute lymphoblastic leukaemia in childhood and adolescence: the protocol for a cross-sectional cohort study. BMJ Open, 5(1), e006191. https://doi.org/10.1136/bmjopen-2014-006191 [HUI2; HUI3; Construct Validity]

Barr, R. D., & Feeny, D. A. (2019). Health-related quality of life in adolescents and young adults with cancer - Including a focus on economic evaluation. Pediatric Blood & Cancer, 66(8), e27808. https://doi.org/10.1002/pbc.27808 [Review Article]

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Barton, G. R., Bankart, J., Davis, A. C., & Summerfield, Q. A. (2004). Comparing utility scores before and after hearing-aid provision: results according to the EQ-5D, HUI3 and SF-6D. Applied Health Economics and Health Policy, 3(2), 103–105. https://doi.org/10.2165/00148365-200403020-00006 [HUI3; Construct Validity; Responsiveness]

Barton, G. R., Bankart, J., & Davis, A. C. (2005). A comparison of the quality of life of hearing-impaired people as estimated by three different utility measures. International Journal of Audiology, 44(3), 157–163. https://doi.org/10.1080/14992020500057566 [HUI3; Construct Validity]

Barton, G. R., Stacey, P. C., Fortnum, H. M., & Summerfield, A. Q. (2006). Hearing-impaired children in the United Kingdom, IV: cost-effectiveness of pediatric cochlear implantation. Ear and Hearing, 27(5), 575–588. https://doi.org/10.1097/01.aud.0000233967.11072.24 [HUI3; Construct Validity]

Bashir, N. S., Walters, T. D., Griffiths, A. M., & Ungar, W. J. (2021). An Assessment of the Validity and Reliability of the Pediatric Child Health Utility 9D in Children with Inflammatory Bowel Disease. Children (Basel, Switzerland), 8(5), 343. https://doi.org/10.3390/children8050343 [HUI2; HUI3; Construct Validity; Reliability]

Bashir, N. S., Walters, T. D., Griffiths, A. M., Otley, A., Critch, J., & Ungar, W. J. (2023). A Comparison of Preference-Based, Generic and Disease-Specific Health-Related Quality of Life in Pediatric Inflammatory Bowel Disease. Journal of the Canadian Association of Gastroenterology, 6(2), 73–79.
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Bashir, N. S., Walters, T. D., Griffiths, A. M., Otley, A., Critch, J., & Ungar, W. J. (2023). A comparison of the Child Health Utility 9D and the Health Utilities Index for estimating health utilities in pediatric inflammatory bowel disease. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 32(9), 2527–2539. https://doi.org/10.1007/s11136-023-03409-x [HUI2; HUI3; Construct Validity]

Battié, M. C., Jones, C. A., Schopflocher, D. P., & Hu, R. W. (2012). Health-related quality of life and comorbidities associated with lumbar spinal stenosis. The Spine Journal: Official Journal of the North American Spine Society, 12(3), 189–195. https://doi.org/10.1016/j.spinee.2011.11.009 [HUI3; Construct Validity]

Bauer, M., Leavens, A., & Schwartzman, K. (2013). A systematic review and meta-analysis of the impact of tuberculosis on health-related quality of life. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 22(8), 2213–2235. https://doi.org/10.1007/s11136-012-0329-x [HUI2; HUI3; Review Article]

Baumann, N., Bartmann, P., & Wolke, D. (2016). Health-Related Quality of Life Into Adulthood After Very Preterm Birth. Pediatrics, 137(4), e20153148. https://doi.org/10.1542/peds.2015-3148 [HUI3; Construct Validity; Responsiveness]

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Berrigan, L. I., Fisk, J. D., Patten, S. B., Tremlett, H., Wolfson, C., Warren, S., Fiest, K. M., McKay, K. A., Marrie, R. A., & CIHR Team in the Epidemiology and Impact of Comorbidity on Multiple Sclerosis (ECoMS) (2016). Health-related quality of life in multiple sclerosis: Direct and indirect effects of comorbidity. Neurology, 86(15), 1417–1424. https://doi.org/10.1212/WNL.0000000000002564 [HUI3; Construct Validity]

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Boman, K. K., Hovén, E., Anclair, M., Lannering, B., & Gustafsson, G. (2009). Health and persistent functional late effects in adult survivors of childhood CNS tumours: a population-based cohort study. European Journal of Cancer, 45(14), 2552–2561. https://doi.org/10.1016/j.ejca.2009.06.008 [HUI2; HUI3; Construct Validity; Inter-rater Agreement; Proxy Assessment]

 

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Bondini, S., Kallman, J., Dan, A., Younoszai, Z., Ramsey, L., Nader, F., & Younossi, Z. M. (2007). Health-related quality of life in patients with chronic hepatitis B. Liver International: Official Journal of the International Association for the Study of the Liver, 27(8), 1119–1125. https://doi.org/10.1111/j.1478-3231.2007.01558.x [HUI2; HUI3; Construct Validity]

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Bosch, J. L., van der Graaf, Y., & Hunink, M. G. (1999). Health-related quality of life after angioplasty and stent placement in patients with iliac artery occlusive disease: results of a randomized controlled clinical trial. The Dutch Iliac Stent Trial Study Group. Circulation, 99(24), 3155–3160. https://doi.org/10.1161/01.cir.99.24.3155 [HUI2; Clinical; Construct Validity]

Bosch, J. L., & Hunink, M. G. (2000). Comparison of the Health Utilities Index Mark 3 (HUI3) and the EuroQol EQ-5D in patients treated for intermittent claudication. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 9(6), 591–601. https://doi.org/10.1023/a:1008929129537 [Clinical; Construct Validity; Responsiveness]

Bosch, J. L., Halpern, E. F., & Gazelle, G. S. (2002). Comparison of preference-based utilities of the Short-Form 36 Health Survey and Health Utilities Index before and after treatment of patients with intermittent claudication. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 22(5), 403–409. https://doi.org/10.1177/027298902236928 [HUI2, HUI3, Construct Validity; Responsiveness]

Boulton, M., Haines, L., Smyth, D., & Fielder, A. (2006). Health-related quality of life of children with vision impairment or blindness. Developmental Medicine and Child Neurology, 48(8), 656–661. https://doi.org/10.1017/S0012162206001381 [HUI3; Construct Validity]

Bowker, S. L., Pohar, S. L., & Johnson, J. A. (2006). A cross-sectional study of health-related quality of life deficits in individuals with comorbid diabetes and cancer. Health and Quality of Life Outcomes, 4, 17. https://doi.org/10.1186/1477-7525-4-17 [HUI3; Construct Validity]

Boyle, M. H., Torrance, G. W., Sinclair, J. C., & Horwood, S. P. (1983). Economic evaluation of neonatal intensive care of very-low-birth-weight infants. The New England Journal of Medicine, 308(22), 1330–1337. https://doi.org/10.1056/NEJM198306023082206 [HUI1; Clinical; Evaluative]

Brady B, McAuley L, Shukla V K. (2001). Economic evaluation of zanamivir for the treatment of influenza. Canadian Coordinating Office for Health Technology Assessment (CCOHTA) Technology Report, 13. https://www.inahta.org/upload/Briefs_1/01-06%20CCOHTA.pdf [HUI3; Clinical]

Bray, N., Noyes, J., Harris, N., & Edwards, R. T. (2017). Measuring the health-related quality of life of children with impaired mobility: examining correlation and agreement between children and parent proxies. BMC Research Notes, 10(1), 377. https://doi.org/10.1186/s13104-017-2683-9 [HUI2; HUI3; Self-report; Proxy Report]

Brazier, J. E., Green, C., Kanis, J. A., & Committee Of Scientific Advisors International Osteoporosis Foundation (2002). A systematic review of health state utility values for osteoporosis-related conditions. Osteoporosis International, 13(10), 768–776. https://doi.org/10.1007/s001980200107 [HUI2; HUI3; Review Paper]

Brazier, J., Roberts, J., Tsuchiya, A., & Busschbach, J. (2004). A comparison of the EQ-5D and SF-6D across seven patient groups. Health Economics, 13(9), 873–884. https://doi.org/10.1002/hec.866 [HUI3; Construct Validity; Responsiveness]

Brehaut, J. C., Kohen, D. E., Raina, P., Walter, S. D., Russell, D. J., Swinton, M., O'Donnell, M., & Rosenbaum, P. (2004). The health of primary caregivers of children with cerebral palsy: how does it compare with that of other Canadian caregivers? Pediatrics, 114(2), e182–e191. https://doi.org/10.1542/peds.114.2.e182 [HUI3; Construct Validity]

Bremner, K. E., Tomlinson, G., & Krahn, M. D. (2007). Marker states and a health state prompt provide modest improvements in the reliability and validity of the standard gamble and rating scale in prostate cancer patients. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 16(10), 1665–1675. https://doi.org/10.1007/s11136-007-9264-7 [HUI3; Construct Validity]

Briel, M., Sprague, S., Heels-Ansdell, D., Guyatt, G., Bhandari, M., Blackhouse, G., Sanders, D., Schemitsch, E., Swiontkowski, M., Tornetta, P., 3rd, Walter, S. D., Goeree, R, & SPRINT Investigators. (2011). Economic evaluation of reamed versus unreamed intramedullary nailing in patients with closed and open tibial fractures: results from the study to prospectively evaluate reamed intramedullary nails in patients with tibial fractures (SPRINT). Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research, 14(4), 450–457. https://doi.org/10.1016/j.jval.2010.10.034 [HUI3; Economic Evaluation]

Briggs, R., Birman, C. S., Baulderstone, N., Lewis, A. T., Ng, I. H. Y., Östblom, A., Rousset, A., Tari, S., Tong, M. C. F., & Cowan, R. (2022). Clinical Performance, Safety, and Patient-Reported Outcomes of an Active Osseointegrated Steady-State Implant System. Otology & neurotology : official publication of the American Otological Society, American Neurotology Society [and] European Academy of Otology and Neurotology43(7), 827–834. https://doi.org/10.1097/MAO.0000000000003590 (HUI3: clinical studies)

Brisson, M., Sénécal, M., Drolet, M., & Mansi, J. A. (2010). Health-related quality of life lost to rotavirus-associated gastroenteritis in children and their parents: a Canadian prospective study. The Pediatric Infectious Disease Journal, 29(1), 73–75. https://doi.org/10.1097/INF.0b013e3181b41506 [HUI2; Construct Validity; Responsiveness]

Brown, C. C., Tilford, J. M., Payakachat, N., Williams, D. K., Kuhlthau, K. A., Pyne, J. M., Hoefman, R. J., & Brouwer, W. B. F. (2019). Measuring Health Spillover Effects in Caregivers of Children with Autism Spectrum Disorder: A Comparison of the EQ-5D-3L and SF-6D. PharmacoEconomics, 37(4), 609–620. https://doi.org/10.1007/s40273-019-00789-2 [HUI3; Construct Validity]

Brown, J. S., Neumann, P. J., Papadopoulos, G., Ruoff, G., Diamond, M., & Menzin, J. (2008). Migraine frequency and health utilities: findings from a multisite survey. Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research, 11(2), 315–321. https://doi.org/10.1111/j.1524-4733.2007.00246.x [HUI3; Construct Validity]

Brunner, H. I., Maker, D., Grundland, B., Young, N. L., Blanchette, V., Stain, A. M., & Feldman, B. M. (2003). Preference-based measurement of health-related quality of life (HRQL) in children with chronic musculoskeletal disorders (MSKDs). Medical Decision Making: An International Journal of the Society for Medical Decision Making, 23(4), 314–322. https://doi.org/10.1177/0272989X03256008 [HUI3; Clinical; Construct Validity]

Bullinger, M., Globe, D., Wasserman, J., Young, N. L., & von Mackensen, S. (2009). Challenges of patient-reported outcome assessment in hemophilia care—a state of the art review. Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research, 12(5), 808–820. https://doi.org/10.1111/j.1524-4733.2009.00523.x [HUI2; HUI3; Review Article]

Buysse, C. M., Raat, H., Hazelzet, J. A., Hulst, J. M., Cransberg, K., Hop, W. C., Vermunt, L. C., Utens, E. M., Maliepaard, M., & Joosten, K. F. (2008). Long-term health status in childhood survivors of meningococcal septic shock. Archives of Pediatrics & Adolescent Medicine, 162(11), 1036–1041.
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Calvert, S., Miller, H. E., Curran, A., Hameed, B., McCarter, R., Edwards, R. J., Hunt, L., & Sharples, P. M. (2008). The King's Outcome Scale for Childhood Head Injury and injury severity and outcome measures in children with traumatic brain injury. Developmental Medicine and Child Neurology, 50(6), 426–431. https://doi.org/10.1111/j.1469-8749.2008.02061.x [HUI2; HUI3; Construct Validity]

Cardarelli, C., Cereda, C., Masiero, L., Viscardi, E., Faggin, R., Laverda, A., Bisogno, G., & Perilongo, G. (2006). Evaluation of health status and health-related quality of life in a cohort of Italian children following treatment for a primary brain tumor. Pediatric Blood & Cancer, 46(5), 637–644. https://doi.org/10.1002/pbc.20480 [HUI2; Construct Validity]

Carreño, A., Fernández, I., Badia, X., Varela, C., & Roset, M. (2011). Using HAQ-DI to estimate HUI-3 and EQ-5D utility values for patients with rheumatoid arthritis in Spain. Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research, 14(1), 192–200.
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Chen, G., McKie, J., Khan, M. A., & Richardson, J. R. (2015). Deriving health utilities from the MacNew Heart Disease Quality of Life Questionnaire. European Journal of Cardiovascular Nursing, 14(5), 405–415. https://doi.org/10.1177/1474515114536096 [HUI3; Construct Validity; Mapping]

Chen, G., & Ratcliffe, J. (2015). A Review of the Development and Application of Generic Multi-Attribute Utility Instruments for Paediatric Populations. PharmacoEconomics, 33(10), 1013–1028. https://doi.org/10.1007/s40273-015-0286-7 [HUI2; HUI3; HSCS-PS; Review Article]

Chen, J. M., Amoodi, H., & Mittmann, N. (2014). Cost-utility analysis of bilateral cochlear implantation in adults: a health economic assessment from the perspective of a publicly funded program. The Laryngoscope, 124(6), 1452–1458. https://doi.org/10.1002/lary.24537 [HUI3; Construct Validity]

Chen, P., Hudson, M. M., Li, M., & Huang, I. C. (2022). Health utilities in pediatric cancer patients and survivors: a systematic review and meta-analysis for clinical implementation. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 31(2), 343–374. https://doi.org/10.1007/s11136-021-02931-0

Chen, P., Hudson, M. M., Li, M., & Huang, I. C. (2023). Correction: Health utilities in pediatric cancer patients and survivors: a systematic review and meta‑analysis for clinical implementation. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 32(4), 1221. https://doi.org/10.1007/s11136-022-03273-1 [HUI2; HUI3; Construct Validity]

Cheng, A. K., & Niparko, J. K. (1999). Cost-utility of the cochlear implant in adults: a meta-analysis. Archives of Otolaryngology--Head & Neck Surgery, 125(11), 1214–1218. https://doi.org/10.1001/archotol.125.11.1214 [HUI3; Clinical; Evaluative]

Cheng, A. K., Rubin, H. R., Powe, N. R., Mellon, N. K., Francis, H. W., & Niparko, J. K. (2000). Cost-utility analysis of the cochlear implant in children. JAMA, 284(7), 850–856. https://doi.org/10.1001/jama.284.7.850 [HUI3; Clinical; Evaluative]

Ching, S., Thoma, A., McCabe, R. E., & Antony, M. M. (2003). Measuring outcomes in aesthetic surgery: a comprehensive review of the literature. Plastic and Reconstructive Surgery, 111(1), 469–482. https://doi.org/10.1097/01.PRS.0000036041.67101.48 [HUI; Clinical]

Chong, C. A., Gulamhussein, A., Heathcote, E. J., Lilly, L., Sherman, M., Naglie, G., & Krahn, M. (2003). Health-state utilities and quality of life in hepatitis C patients. The American Journal of Gastroenterology, 98(3), 630–638. https://doi.org/10.1111/j.1572-0241.2003.07332.x [HUI3; Construct Validity]

Christensen, R., MacIntosh, A., Switzer, L., & Fehlings, D. (2017). Change in pain status in children with cerebral palsy. Developmental Medicine and Child Neurology, 59(4), 374–379. https://doi.org/10.1111/dmcn.13328 [HUI3 pain; Construct Validity; Responsiveness]

Clayson, D. J., Wild, D. J., Quarterman, P., Duprat-Lomon, I., Kubin, M., & Coons, S. J. (2006). A comparative review of health-related quality-of-life measures for use in HIV/AIDS clinical trials. PharmacoEconomics, 24(8), 751–765. https://doi.org/10.2165/00019053-200624080-00003 [HUI2; HUI3; Review Article]

Collins, L., Athale, U., Cranston, A., & Barr, R. (2018). Impact of short stature on health-related quality of life in long-term survivors of acute lymphoblastic leukemia in childhood and adolescence. Journal of Patient-Reported Outcomes, 2(1), 59. https://doi.org/10.1186/s41687-018-0084-z [HUI2; HUI3; Construct Validity]

Comerota, A. J., Throm, R. C., Mathias, S. D., Haughton, S., & Mewissen, M. (2000). Catheter-directed thrombolysis for iliofemoral deep venous thrombosis improves health-related quality of life. Journal of Vascular Surgery, 32(1), 130–137. https://doi.org/10.1067/mva.2000.105664 [HUI2; Clinical; Evaluative]

Conner-Spady, B., & Suarez-Almazor, M. E. (2003). Variation in the estimation of quality-adjusted life-years by different preference-based instruments. Medical Care, 41(7), 791–801. https://doi.org/10.1097/00005650-200307000-00003 [HUI3; Construct Validity; Responsiveness]

Cowan, R., Lewis, A. T., Hallberg, C., Tong, M. C. F., Birman, C. S., Ng, I. H., & Briggs, R. (2024). Clinical performance, safety, and patient-reported outcomes of an active osseointegrated bone-conduction hearing implant system at 24-month follow-up. European archives of oto-rhino-laryngology : official journal of the European Federation of Oto-Rhino-Laryngological Societies (EUFOS) : affiliated with the German Society for Oto-Rhino-Laryngology - Head and Neck Surgery281(2), 683–691. https://doi.org/10.1007/s00405-023-08133-3 (HUI3; Clinical Studies)

Cranney, A., Coyle, D., Pham, B. A., Tetroe, J., Wells, G., Jolly, E., & Tugwell, P. (2001). The psychometric properties of patient preferences in osteoporosis. The Journal of Rheumatology, 28(1), 132–137. https://www.jrheum.org/content/jrheum/28/1/132.full.pdf [HUI2; Construct Validity]

Cranney, A. B., Coyle, D., Hopman, W. M., Hum, V., Power, B., & Tugwell, P. S. (2005). Prospective evaluation of preferences and quality of life in women with hip fractures. The Journal of Rheumatology, 32(12), 2393–2399. https://www.jrheum.org/content/jrheum/32/12/2393.full.pdf [HUI2; Construct Validity; Responsiveness]

Craven, C., Hitzig, S. L., & Mittmann, N. (2012). Impact of impairment and secondary health conditions on health preference among Canadians with chronic spinal cord injury. The Journal of Spinal Cord Medicine, 35(5), 361–370. https://doi.org/10.1179/2045772312Y.0000000046 [HUI3; Construct Validity]

Cunha, F., Almeida-Santos, L., Teixeira-Pinto, A., Neves, F., Barata, D., & Costa-Pereira, A. (2012). Health-related quality of life of pediatric intensive care survivors. Jornal de pediatria, 88(1), 25–32. https://doi.org/10.2223/JPED.2151 [HUI3; Construct Validity]

Dakin, H., Petrou, S., Haggard, M., Benge, S., & Williamson, I. (2010). Mapping analyses to estimate health utilities based on responses to the OM8-30 Otitis Media Questionnaire. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 19(1), 65–80. https://doi.org/10.1007/s11136-009-9558-z [HUI2; HUI3; mapping]

Damen, G. W., Beynon, A. J., Krabbe, P. F., Mulder, J. J., & Mylanus, E. A. (2007). Cochlear implantation and quality of life in postlingually deaf adults: long-term follow-up. Otolaryngology--Head and Neck Surgery: Official Journal of American Academy of Otolaryngology-Head and Neck Surgery, 136(4), 597–604. https://doi.org/10.1016/j.otohns.2006.11.044 [HUI3; Construct Validity; Responsiveness]

Dan, A. A., Kallman, J. B., Srivastava, R., Younoszai, Z., Kim, A., & Younossi, Z. M. (2008). Impact of chronic liver disease and cirrhosis on health utilities using SF-6D and the health utility index. Liver Transplantation, 14(3), 321–326. https://doi.org/10.1002/lt.21376 [HUI2; Construct Validity]

Davis, A., Smith, P., Ferguson, M., Stephens, D., & Gianopoulos, I. (2007). Acceptability, benefit and costs of early screening for hearing disability: a study of potential screening tests and models. Health Technology Assessment, 11(42), 1–294. https://doi.org/10.3310/hta11420 [HUI3; Construct Validity; Responsiveness]

Davis, E. M., Lynd, L. D., Grubisic, M., Kopec, J. A., Sayre, E. C., Cibere, J., Esdaile, J., & Marra, C. A. (2013). Responsiveness of health state utility values in knee osteoarthritis. The Journal of Rheumatology, 40(12), 2075–2082. https://doi.org/10.3899/jrheum.130176 [HUI3; Construct Validity; Responsiveness]

Davison, S. N., Jhangri, G. S., & Feeny, D. H. (2009). Comparing the Health Utilities Index Mark 3 (HUI3) with the Short Form-36 preference-based SF-6D in chronic kidney disease. Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research, 12(2), 340–345. https://doi.org/10.1111/j.1524-4733.2008.00433.x [HUI3; Construct Validity]

Davison, S. N., Jhangri, G. S., & Feeny, D. H. (2008). Evidence on the construct validity of the Health Utilities Index Mark 2 and Mark 3 in patients with chronic kidney disease. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 17(6), 933–942. https://doi.org/10.1007/s11136-008-9354-1 [HUI2; HUI3; Construct Validity]

De Civita, M., Regier, D., Alamgir, A. H., Anis, A. H., Fitzgerald, M. J., & Marra, C. A. (2005). Evaluating health-related quality-of-life studies in paediatric populations: some conceptual, methodological and developmental considerations and recent applications. PharmacoEconomics, 23(7), 659–685. https://doi.org/10.2165/00019053-200523070-00003 [HUI2; HUI3; Review Article]

de Graaf, M. W., Reininga, I. H., Wendt, K. W., Heineman, E., & El Moumni, M. (2019). The Short Musculoskeletal Function Assessment: a study of the reliability, construct validity and responsiveness in patients sustaining trauma. Clinical Rehabilitation, 33(5), 923–935. https://doi.org/10.1177/0269215519828152 [HUI3; HUI3 Dexterity, Ambulation, Emotion; Construct Validity]

de Lissovoy, G., Matza, L. S., Green, H., Werner, M., & Edgar, T. (2007). Cost-effectiveness of intrathecal baclofen therapy for the treatment of severe spasticity associated with cerebral palsy. Journal of Child Neurology, 22(1), 49–59. https://doi.org/10.1177/0883073807299976 [HUI2; Cost-Utility Analysis]

Degl' Innocenti, A., Guyatt, G. H., Wiklund, I., Heels-Ansdell, D., Armstrong, D., Fallone, C. A., Tanser, L., van Zanten, S. V., El-Dika, S., Chiba, N., Barkun, A. N., Austin, P., & Schünemann, H. J. (2005). The influence of demographic factors and health-related quality of life on treatment satisfaction in patients with gastroesophageal reflux disease treated with esomeprazole. Health and Quality of Life Outcomes, 3, 4. https://doi.org/10.1186/1477-7525-3-4 [HUI3; Construct Validity]

de Keizer, N. F., Bonsel, G. J., & Gemke, R. J. (1997). Health status prediction in critically ill children: a pilot study introducing Standardized Health Ratios. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 6(2), 192–199. https://doi.org/10.1023/a:1026450403009 [HUI2; Clinical; Predictive Validity]

de Sonneville-Koedoot, C., Stolk, E. A., Raat, H., Bouwmans-Frijters, C., & Franken, M. C. (2014). Health-related quality of life of preschool children who stutter. Journal of Fluency Disorders, 42, 1–12. https://doi.org/10.1016/j.jfludis.2014.09.001 [HUI3; Construct Validity]

Detmar, S. B., Hosli, E. J., Chorus, A. M., van Beekum, T., Vogels, T., Mourad-Baars, P. E., Engelberts, A. C., Groothuis-Oudshoorn, C. G., & Verrips, G. H. (2005).  The development and validation of a handicap questionnaire for children with a chronic illness. Clinical Rehabilitation, 19(1), 73–80. https://doi.org/10.1191/0269215505cr825oa [HUI3; Construct Validity]

Dickerson, J. F., Feeny, D. H., Clarke, G. N., MacMillan, A. L., & Lynch, F. L. (2018). Evidence on the longitudinal construct validity of major generic and utility measures of health-related quality of life in teens with depression. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 27(2), 447–454. https://doi.org/10.1007/s11136-017-1728-9 [HUI2; HUI3; Construct Validity; Responsiveness]

Duckworth, J., Nayiager, T., Pullenayegum, E., Whitton, A., Hollenberg, R., Horsman, J., Furlong, W., Spitzer, R., & Barr, R. D. (2015). Health-related Quality of Life in Long-term Survivors of Brain Tumors in Childhood and Adolescence: A Serial Study Spanning a Decade. Journal of Pediatric Hematology/Oncology, 37(5), 362–367. https://doi.org/10.1097/MPH.0000000000000365 [HUI2; HUI3; Construct Validity; Responsiveness] [The tale is in the tail.]

Ebrahim, S., & Parshuram, C. (2015). Comparison of utility scores from the Visual Analog Scale and Health Utilities Index 3 in children following pediatric intensive care unit admission. Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community, 19(1), 53–62. https://doi.org/10.1177/1367493513496909 [HUI3]

Edelman, D., Williams, G. R., Rothman, M., & Samsa, G. P. (1999). A comparison of three health status measures in primary care outpatients. Journal of General Internal Medicine, 14(12), 759–762. https://doi.org/10.1046/j.1525-1497.1999.09278.x [HUI2; Clinical; Construct Validity]

Ekwunife, O. I., Aguwa, C. N., & Igboeli, N. U. (2013). Health Utilities Index Mark 3 (HUI3) demonstrated construct validity in a Nigerian population with hypertension. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 22(2), 455–458. https://doi.org/10.1007/s11136-012-0150-6 [HUI3; Construct Validity]

El-Dika, S., Guyatt, G. H., Armstrong, D., Degl'innocenti, A., Wiklund, I., Fallone, C. A., Tanser, L., Veldhuyzen van Zanten, S., Heels-Ansdell, D., Wahlqvist, P., Chiba, N., Barkun, A. N., Austin, P., & Schünemann, H. J. (2005). The impact of illness in patients with moderate to severe gastro-esophageal reflux disease. BMC Gastroenterology, 5, 23. https://doi.org/10.1186/1471-230X-5-23 [HUI3; Construct Validity]

Espallargues, M., Czoski-Murray, C. J., Bansback, N. J., Carlton, J., Lewis, G. M., Hughes, L. A., Brand, C. S., & Brazier, J. E. (2005). The impact of age-related macular degeneration on health status utility values. Investigative Ophthalmology & Visual Science, 46(11), 4016–4023. https://doi.org/10.1167/iovs.05-0072 [HUI3; Construct Validity]

Ettema, T. P., Dröes, R. M., de Lange, J., Mellenbergh, G. J., & Ribbe, M. W. (2005). A review of quality of life instruments used in dementia. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 14(3), 675–686. https://doi.org/10.1007/s11136-004-1258-0 [HUI2; HUI3; Review Article]

Falicov, A., Fisher, C. G., Sparkes, J., Boyd, M. C., Wing, P. C., & Dvorak, M. F. (2006). Impact of surgical intervention on quality of life in patients with spinal metastases. Spine, 31(24), 2849–2856. https://doi.org/10.1097/01.brs.0000245838.37817.40 [HUI3; Construct Validity; Responsiveness; HUI3 pain]

Faraji, H., Soleymani, F., Yaseri, M., Sahraian, M. A., Abdollahiasl, A., Meftah, A., & Nikfar, S. (2024). Choosing the Best Instrument for Measuring Health Spillover Effect in Caregivers of Patients With Multiple Sclerosis. Value in health regional issues39, 49–56. https://doi.org/10.1016/j.vhri.2023.08.008  [HUI3; Construct Validity]

Fayed, N., Schiariti, V., Bostan, C., Cieza, A., & Klassen, A. (2011). Health status and QOL instruments used in childhood cancer research: deciphering conceptual content using World Health Organization definitions. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 20(8), 1247–1258. https://doi.org/10.1007/s11136-011-9851-5 [HUI3; Review Article]

Fayed, N., de Camargo, O. K., Kerr, E., Rosenbaum, P., Dubey, A., Bostan, C., Faulhaber, M., Raina, P., & Cieza, A. (2012). Generic patient-reported outcomes in child health research: a review of conceptual content using World Health Organization definitions. Developmental Medicine and Child Neurology, 54(12), 1085–1095. https://doi.org/10.1111/j.1469-8749.2012.04393.x [HUI2; HUI3; Review Article]

Feeny, D., Leiper, A., Barr, R. D., Furlong, W., Torrance, G. W., Rosenbaum, P., & Weitzman, S. (1993). The comprehensive assessment of health status in survivors of childhood cancer: application to high-risk acute lymphoblastic leukaemia. British Journal of Cancer, 67(5), 1047–1052. https://doi.org/10.1038/bjc.1993.192 [HUI2; Clinical; Construct Validity]

Feeny, D., Furlong, W., Barr, R. D., Torrance, G. W., Rosenbaum, P., & Weitzman, S. (1992). A comprehensive multiattribute system for classifying the health status of survivors of childhood cancer. Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology, 10(6), 923–928. https://doi.org/10.1200/JCO.1992.10.6.923 [HUI2; Clinical; Construct Validity]

Feeny, D., Blanchard, C., Mahon, J. L., Bourne, R., Rorabeck, C., Stitt, L., & Webster-Bogaert, S. (2003). Comparing community-preference-based and direct standard gamble utility scores: evidence from elective total hip arthroplasty. International Journal of Technology Assessment in Health Care, 19(2), 362–372. https://doi.org/10.1017/s0266462303000321 [HUI2; HUI3; Scoring]

Feeny, D., Furlong, W., Saigal, S., & Sun, J. (2004). Comparing directly measured standard gamble scores to HUI2 and HUI3 utility scores: group- and individual-level comparisons. Social Science & Medicine, 58(4), 799–809. https://doi.org/10.1016/s0277-9536(03)00254-5 [HUI2; HUI3; Scoring]

Feeny, D., Wu, L., & Eng, K. (2004). Comparing short form 6D, standard gamble, and Health Utilities Index Mark 2 and Mark 3 utility scores: results from total hip arthroplasty patients. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 13(10), 1659–1670. https://doi.org/10.1007/s11136-004-6189-2 [HUI2; HUI3; Scoring]

Feeny, D., Farris, K., Côté, I., Johnson, J. A., Tsuyuki, R. T., & Eng, K. (2005). A cohort study found the RAND-12 and Health Utilities Index Mark 3 demonstrated construct validity in high-risk primary care patients. Journal of Clinical Epidemiology, 58(2), 138–141. https://doi.org/10.1016/j.jclinepi.2004.08.005 [HUI3; Construct Validity]

Feeny, D. (2005). The roles for preference-based measures in support of cancer research and policy. In: Joseph Lipscomb, Carolyn Cook Gotay, and Claire Snyder, (Eds), Outcomes Assessment in Cancer: Measures, Methods, and Applications (pp. 69-92). Cambridge University Press Link [HUI2; HUI3; Review Article]

Feeny, D., Spritzer, K., Hays, R. D., Liu, H., Ganiats, T. G., Kaplan, R. M., Palta, M., & Fryback, D. G. (2012). Agreement about identifying patients who change over time: cautionary results in cataract and heart failure patients. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 32(2), 273–286. https://doi.org/10.1177/0272989X11418671 [HUI2; HUI3; Construct Validity; Responsiveness]

Felder-Puig, R., Frey, E., Sonnleithner, G., Feeny, D., Gadner, H., Barr, R. D., Furlong, W., & Topf, R. (2000). German cross-cultural adaptation of the Health Utilities Index and its application to a sample of childhood cancer survivors. European Journal of Pediatrics, 159(4), 283–288. https://doi.org/10.1007/s004310050071 [HUI2; Clinical; Cross-Cultural Validation; Construct Validity; Reliability/Agreement; Translation]

Felder-Puig, R., di Gallo, A., Waldenmair, M., Norden, P., Winter, A., Gadner, H., & Topf, R. (2006). Health-related quality of life of pediatric patients receiving allogeneic stem cell or bone marrow transplantation:  results of a longitudinal, multi-center study. Bone Marrow Transplantation, 38(2), 119–126. https://doi.org/10.1038/sj.bmt.1705417 [HUI2; HUI3; Construct Validity; Responsiveness; Inter-rater Reliability]

Fiest, K. M., Sajobi, T. T., & Wiebe, S. (2014). Epilepsy surgery and meaningful improvements in quality of life: results from a randomized controlled trial. Epilepsia, 55(6), 886–892. https://doi.org/10.1111/epi.12625 [HUI3; Construct Validity; Responsiveness]

Fiest, K. M., Fisk, J. D., Patten, S. B., Tremlett, H., Wolfson, C., Warren, S., McKay, K. A., Berrigan, L., Marrie, R. A., & CIHR Team in the Epidemiology and Impact of Comorbidity on Multiple Sclerosis (ECoMS) (2015). Comorbidity is associated with pain-related activity limitations in multiple sclerosis. Multiple sclerosis and related disorders, 4(5), 470–476. https://doi.org/10.1016/j.msard.2015.07.014 [HUI3; Construct Validity]

Fiest, K. M., Greenfield, J., Metz, L. M., Patten, S. B., Jetté, N., & Marrie, R. A. (2017). Discriminative ability of quality of life measures in multiple sclerosis. Health and Quality of Life Outcomes, 15(1), 246. https://doi.org/10.1186/s12955-017-0828-0 [HUI3; Construct Validity]

Fisk, J. D., Brown, M. G., Sketris, I. S., Metz, L. M., Murray, T. J., & Stadnyk, K. J. (2005). A comparison of health utility measures for the evaluation of multiple sclerosis treatments. Journal of Neurology, Neurosurgery, and Psychiatry, 76(1), 58–63. https://doi.org/10.1136/jnnp.2003.017897 [HUI3; Construct Validity; Test-Retest Reliability]

Fluchel, M., Horsman, J. R., Furlong, W., Castillo, L., Alfonz, Y., & Barr, R. D. (2008). Self and proxy-reported health status and health-related quality of life in survivors of childhood cancer in Uruguay. Pediatric Blood & Cancer, 50(4), 838–843. https://doi.org/10.1002/pbc.21299 [HUI3; Construct Validity; Inter-Rater Reliability]

Foley, R. N., Parfrey, P. S., Morgan, J., Barré, P. E., Campbell, P., Cartier, P., Coyle, D., Fine, A., Handa, P., Kingma, I., Lau, C. Y., Levin, A., Mendelssohn, D., Muirhead, N., Murphy, B., Plante, R. K., Posen, G., & Wells, G. A. (2000). Effect of hemoglobin levels in hemodialysis patients with asymptomatic cardiomyopathy. Kidney International, 58(3), 1325–1335. https://doi.org/10.1046/j.1523-1755.2000.00289.x [HUI2; Construct Validity; Responsiveness]

Fontana, R. J., Moyer, C. A., Sonnad, S., Lok ASF, Sneed-Pee, N., Walsh, J., Klein, S., & Webster, S. (2001). Comorbidities and quality of life in patients with interferon-refractory chronic hepatitis C. The American Journal of Gastroenterology, 96(1), 170–178. https://doi.org/10.1111/j.1572-0241.2001.03473.x [HUI3; Clinical; Construct Validity]

Foreman, N. K., Faestel, P. M., Pearson, J., Disabato, J., Poole, M., Wilkening, G., Arenson, E. B., Greffe, B., & Thorne, R. (1999). Health status in 52 long-term survivors of pediatric brain tumors. Journal of Neuro-Oncology, 41(1), 47–53. https://doi.org/10.1023/a:1006145724500 [HUI2; Clinical; Construct Validity]

Forman-Hoffman, V. L., Carney, C. P., Sampson, T. R., Peloso, P. M., Woolson, R. F., Black, D. W., & Doebbeling, B. N. (2005). Mental health comorbidity patterns and impact on quality of life among veterans serving during the first Gulf War. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 14(10), 2303–2314. https://doi.org/10.1007/s11136-005-6540-2 [HUI3; Construct Validity]

Francis, H. W., Chee, N., Yeagle, J., Cheng, A., & Niparko, J. K. (2002). Impact of cochlear implants on the functional health status of older adults. The Laryngoscope, 112(8 Pt 1), 1482–1488. https://doi.org/10.1097/00005537-200208000-00028 [HUI3; Construct Validity; Responsiveness]

Franic, D. M., Aull, L., Grauer, D., & Oyelowo, O. (2005). Adherence, asthma control, generic and disease-specific quality-of-life instruments in asthma. Expert Review of Pharmacoeconomics & Outcomes Research, 5(4), 411–421. https://doi.org/10.1586/14737167.5.4.411 [HUI3; Construct Validity]

Frey, E., R. Felder-Puig, G. Sonnleithner, Topf, R., & Gadner, H. (1999). The Assessment of Health-Related Quality of Life in Survivors of Childhood Cancer: Our Experience with the Health Utilities Index Mark 2 + 3 (HUI2/3) in the After-Care Clinic, International Journal of Pediatric Hematology/Oncology, 6(3), 214-216 (Abstract). No link available. [Clinical; Cross-Cultural Validation; Reliability/Agreement; Translation]

Fu, L., Talsma, D., Baez, F., Bonilla, M., Moreno, B., Ah-Chu, M., Pena, A., Furlong, W., & Barr, R. D. (2006). Measurement of health-related quality of life in survivors of cancer in childhood in Central America: feasibility, reliability, and validity. Journal of Pediatric Hematology/Oncology, 28(6), 331–341. https://doi.org/10.1097/00043426-200606000-00003 [HUI2; HUI3; Construct Validity; Inter-rater Reliability]

Furlong, W., Barr, R. D., Feeny, D., & Yandow, S. (2005). Patient-focused measures of functional health status and health-related quality of life in pediatric orthopedics: a case study in measurement selection. Health and Quality of Life Outcomes, 3, 3. https://doi.org/10.1186/1477-7525-3-3 [HUI2; HUI3; Review Article]

Furlong, W., Rae, C., Feeny, D., Gelber, R. D., Laverdiere, C., Michon, B., Silverman, L., Sallan, S., & Barr, R. (2012). Health-related quality of life among children with acute lymphoblastic leukemia. Pediatric Blood & Cancer, 59(4), 717–724. https://doi.org/10.1002/pbc.24096 [HUI2; HUI3; Construct Validity]

Gabriel, S. E., Kneeland, T. S., Melton, L. J., 3rd, Moncur, M. M., Ettinger, B., & Tosteson, A. N. (1999). Health-related quality of life in economic evaluations for osteoporosis: whose values should we use? Medical Decision Making: An International Journal of the Society for Medical Decision Making, 19(2), 141–148. https://doi.org/10.1177/0272989X9901900204 [HUI2; Clinical]

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Gemke, R. J., Bonsel, G. J., & van Vught, A. J. (1995). Long-term survival and state of health after paediatric intensive care. Archives of Disease in Childhood, 73(3), 196–201. https://doi.org/10.1136/adc.73.3.196 [HUI2; Clinical; Construct Validity]

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Glaser, A. W., Davies, K., Walker, D., & Brazier, D. (1997). Influence of proxy respondents and mode of administration on health status assessment following central nervous system tumours in childhood. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 6(1), 43–53. https://doi.org/10.1023/a:1026465411669 [HUI2; Clinical; Construct Validity; Cross-Cultural Validation; Reliability]

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Glaser, A., Kennedy, C., Punt, J., & Walker, D. (1999). Standardized quantitative assessment of brain tumor survivors treated within clinical trials in childhood. International Journal of Cancer. Supplement, 12, 77–82. https://doi.org/10.1002/(sici)1097-0215(1999)83:12+<77::aid-ijc14>3.0.co;2-x [HUI2; Clinical; Construct Validity; Reliability]

Glick, H. A., Polsky, D., Willke, R. J., & Schulman, K. A. (1999). A comparison of preference assessment instruments used in a clinical trial: responses to the visual analog scale from the EuroQol EQ-5D and the Health Utilities Index. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 19(3), 265–275. https://doi.org/10.1177/0272989X9901900305 [HUI2; Clinical; Construct Validity]

Globe, D., Young, N. L., Von Mackensen, S., Bullinger, M., Wasserman, J., & Healthrelated Quality Of Life Expert Working Group Of The International Prophylaxis Study Group (2009). Measuring patient-reported outcomes in haemophilia clinical research. Haemophilia: the Official Journal of the World Federation of Hemophilia, 15(4), 843–852. https://doi.org/10.1111/j.1365-2516.2008.01961.x [HUI2; HUI3; Review Article]

Goeree, R., Hopkins, R., Marshall, J. K., Armstrong, D., Ungar, W. J., Goldsmith, C., Allen, C., & Anvari, M. (2011). Cost-utility of laparoscopic Nissen fundoplication versus proton pump inhibitors for chronic and controlled gastroesophageal reflux disease: a 3-year prospective randomized controlled trial and economic evaluation. Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research, 14(2), 263–273. https://doi.org/10.1016/j.jval.2010.09.004 [HUI3; Construct Validity; Responsiveness]

Goldfeld, K. S., Hamel, M. B., & Mitchell, S. L. (2012). Mapping health status measures to a utility measure in a study of nursing home residents with advanced dementia. Medical Care, 50(5), 446–451. https://doi.org/10.1097/MLR.0b013e3182407e0d [HUI2; Mapping]

Goldfeld, K. S., Hamel, M. B., & Mitchell, S. L. (2013). The cost-effectiveness of the decision to hospitalize nursing home residents with advanced dementia. Journal of Pain and Symptom Management, 46(5), 640–651. https://doi.org/10.1016/j.jpainsymman.2012.11.007 [HUI2; Cost-Effectiveness]

Goldstein, L. B., Lyden, P., Mathias, S. D., Colman, S. S., Pasta, D. J., Albers, G., Atkinson, R., Kelley, G., Ng, K., & Rylander, A. (2002). Telephone assessment of functioning and well-being following stroke: is it feasible? Journal of Stroke and Cerebrovascular Diseases: the Official Journal of National Stroke Association, 11(2), 80–87. https://doi.org/10.1053/jscd.2002.126691 [HUI2; HUI3; Inter-rater Reliability; Intra-rater Reliability; Construct Validity]

Gomersall, T., Spencer, S., Basarir, H., Tsuchiya, A., Clegg, J., Sutton, A., & Dickinson, K. (2015). Measuring quality of life in children with speech and language difficulties: a systematic review of existing approaches. International Journal of Language & Communication Disorders, 50(4), 416–435. https://doi.org/10.1111/1460-6984.12147 [HUI3; Review Article]

Gooch, K., Feeny, D., Wong, R. L., Kupper, H., Pangan, A. L., Revicki, D. A., & van der Heijde, D. (2011). Is the Health Utilities Index 3 valid for patients with ankylosing spondylitis? Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research, 14(1), 160–165. https://doi.org/10.1016/j.jval.2010.10.012 [HUI3; Construct Validity]

Gorodetskaya, I., Zenios, S., McCulloch, C. E., Bostrom, A., Hsu, C. Y., Bindman, A. B., Go, A. S., & Chertow, G. M. (2005). Health-related quality of life and estimates of utility in chronic kidney disease. Kidney International, 68(6), 2801–2808. https://doi.org/10.1111/j.1523-1755.2005.00752.x [HUI3; Construct Validity; Responsiveness]

Gortner, S. R., Jaeger, A. A., Harr, J., & Miller, T. (1994). Elders' expected and realized benefits from cardiac surgery. Cardio-Vascular Nursing, 30(2), 9–14. https://pubmed.ncbi.nlm.nih.gov/8137373/ [HUI2; Clinical; Evaluative]

Gow, J., George, G., & Govender, K. (2013). A comparison of quality of life between HIV positive and negative diamond miners in South Africa. SAHARA J: Journal of Social Aspects of HIV/AIDS Research Alliance, 10(2), 89–95. https://doi.org/10.1080/17290376.2013.870066 [HUI3; Construct Validity]

Grant, J., Cranston, A., Horsman, J., Furlong, W., Barr, N., Findlay, S., & Barr, R. (2006). Health status and health-related quality of life in adolescent survivors of cancer in childhood. The Journal of Adolescent Health: Official Publication of the Society for Adolescent Medicine, 38(5), 504–510.
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Grant, R. W., Cagliero, E., Chueh, H. C., & Meigs, J. B. (2005). Internet use among primary care patients with type 2 diabetes: the generation and education gap. Journal of General Internal Medicine, 20(5), 470–473. https://doi.org/10.1111/j.1525-1497.2005.04239.x [HUI2; Construct Validity]

Gray, R., Petrou, S., Hockley, C., & Gardner, F. (2007). Self-reported health status and health-related quality of life of teenagers who were born before 29 weeks' gestational age. Pediatrics, 120(1), e86–e93. https://doi.org/10.1542/peds.2006-2034 [HUI3; Construct Validity]

Griebsch, I., Coast, J., & Brown, J. (2005). Quality-adjusted life-years lack quality in pediatric care: a critical review of published cost-utility studies in child health. Pediatrics, 115(5), e600–e614. https://doi.org/10.1542/peds.2004-2127 [HUI2; HUI3; Construct Validity; Review Paper]

Grima, D. T., Torrance, G. W., Francis, G., Rice, G., Rosner, A. J., & Lafortune, L. (2000). Cost and health related quality of life consequences of multiple sclerosis. Multiple Sclerosis, 6(2), 91–98.
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Groessl, E. J., Liu, L., Sklar, M., Tally, S. R., Kaplan, R. M., & Ganiats, T. G. (2013). Measuring the impact of cataract surgery on generic and vision-specific quality of life. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 22(6), 1405–1414. https://doi.org/10.1007/s11136-012-0270-z [HUI2; HUI3; Responsiveness]

Grootendorst, P., Marshall, D., Pericak, D., Bellamy, N., Feeny, D., & Torrance, G. W. (2007). A model to estimate health utilities index mark 3 utility scores from WOMAC index scores in patients with osteoarthritis of the knee. The Journal of Rheumatology, 34(3), 534–542. https://www.jrheum.org/content/34/3/534.short [HUI3; Construct Validity]

Grosse, S. D., Prosser, L. A., Asakawa, K., & Feeny, D. (2010). QALY weights for neurosensory impairments in pediatric economic evaluations: case studies and a critique. Expert Review of Pharmacoeconomics & Outcomes Research, 10(3), 293–308. https://doi.org/10.1586/erp.10.24 [HUI2; HUI3; Review Article]

Grossman, R., Mukherjee, J., Vaughan, D., Eastwood, C., Cook, R., LaForge, J., & Lampron, N. (1998). A 1-year community-based health economic study of ciprofloxacin vs usual antibiotic treatment in acute exacerbations of chronic bronchitis: the Canadian Ciprofloxacin Health Economic Study Group. Chest, 113(1), 131–141. https://doi.org/10.1378/chest.113.1.131 [HUI2; Clinical; Evaluative]

Grutters, J. P., Joore, M. A., van der Horst, F., Verschuure, H., Dreschler, W. A., & Anteunis, L. J. (2007). Choosing between measures: comparison of EQ-5D, HUI2 and HUI3 in persons with hearing complaints. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 16(8), 1439–1449. https://doi.org/10.1007/s11136-007-9237-x [HUI2; HUI3; Construct Validity; Responsiveness]

Guo, N., Marra, C. A., Marra, F., Moadebi, S., Elwood, R. K., & Fitzgerald, J. M. (2008). Health state utilities in latent and active tuberculosis. Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research, 11(7), 1154–1161. https://doi.org/10.1111/j.1524-4733.2008.00355.x [HUI2; HUI3; Construct Validity]

Guo, N., Marra, F., & Marra, C. A. (2009). Measuring health-related quality of life in tuberculosis: a systematic review. Health and Quality of Life Outcomes, 7, 14. https://doi.org/10.1186/1477-7525-7-14 [HUI2; HUI3; Construct Validity; Review Article]

Haacke, C., Althaus, A., Spottke, A., Siebert, U., Back, T., & Dodel, R. (2006). Long-term outcome after stroke: evaluating health-related quality of life using utility measurements. Stroke, 37(1), 193–198. https://doi.org/10.1161/01.STR.0000196990.69412.fb [HUI2; HUI3; Construct Validity]

Handa, V. L., Zyczynski, H. M., Burgio, K. L., Fitzgerald, M. P., Borello-France, D., Janz, N. K., Fine, P. M., Whitehead, W., Brown, M. B., Weber, A. M., & Pelvic Floor Disorders Network (2007). The impact of fecal and urinary incontinence on quality of life 6 months after childbirth. American Journal of Obstetrics and Gynecology, 197(6), 636.e1–636.e6366. https://doi.org/10.1016/j.ajog.2007.08.020 [HUI; Construct Validity]

Hanmer, J., Dewitt, B., Yu, L., Tsevat, J., Roberts, M., Revicki, D., Pilkonis, P. A., Hess, R., Hays, R. D., Fischhoff, B., Feeny, D., Condon, D., & Cella, D. (2018). Cross-sectional validation of the PROMIS-Preference scoring system. PloS One, 13(7), e0201093. https://doi.org/10.1371/journal.pone.0201093

Harnam, N., W., K., Revicki, D., C., J., & Endicott, J. (2011). The Measurement of Health-Related Quality of Life in a Population with Generalized Anxiety Disorder – Findings from the QUEST Study. In Salih Selek, (Ed.), Different Views of Anxiety Disorders, (pp 199-216). InTech. Link[HUI2; HUI3; Construct Validity]

Harrison, M. J., Davies, L. M., Bansback, N. J., Ingram, M., Anis, A. H., & Symmons, D. P. (2008). The validity and responsiveness of generic utility measures in rheumatoid arthritis: a review. The Journal of Rheumatology, 35(4), 592–602. https://www.jrheum.org/content/jrheum/35/4/592.full.pdf [HUI2; HUI3; Test-Retest Reliability; Construct Validity; Responsiveness; Review Article]

Hatoum, H. T., Brazier, J. E., & Akhras, K. S. (2004). Comparison of the HUI3 with the SF-36 preference based SF-6D in a clinical trial setting. Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research, 7(5), 602–609. https://doi.org/10.1111/j.1524-4733.2004.75011.x [Cardiovascular; Clinical; HUI3; Construct Validity; Responsiveness]

Hawthorne, G. (2006) Measuring Incontinence in Australia. Report prepared for the Australian Government Department of Health and Ageing: Commonwealth of Australia. Link [HUI3; Construct Validity; Review Article]

Hays, R. D., Eastwood, J. A., Kotlerman, J., Spritzer, K. L., Ettner, S. L., & Cowan, M. (2006). Health-related quality of life and patient reports about care outcomes in a multidisciplinary hospital intervention. Annals of Behavioral Medicine: a Publication of the Society of Behavioral Medicine, 31(2), 173–178.
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Hebert, P. L., Sisk, J. E., Wang, J. J., Tuzzio, L., Casabianca, J. M., Chassin, M. R., Horowitz, C., & McLaughlin, M. A. (2008). Cost-effectiveness of nurse-led disease management for heart failure in an ethnically diverse urban community. Annals of Internal Medicine, 149(8), 540–548. https://doi.org/10.7326/0003-4819-149-8-200810210-00006 [HUI3; Cost-Effectiveness Analysis; Cost-Utility Analysis]

Heidenheim, A. P., Muirhead, N., Moist, L., & Lindsay, R. M. (2003). Patient quality of life on quotidian hemodialysis. American Journal of Kidney Diseases: the Official Journal of the National Kidney Foundation, 42(1 Suppl), 36–41. https://doi.org/10.1016/s0272-6386(03)00536-5 [HUI3; Construct Validity, Responsiveness]

Heintz, E., Wiréhn, A. B., Peebo, B. B., Rosenqvist, U., & Levin, L. Å. (2012). QALY weights for diabetic retinopathy--a comparison of health state valuations with HUI-3, EQ-5D, EQ-VAS, and TTO. Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research, 15(3), 475–484. https://doi.org/10.1016/j.jval.2011.11.031 [HUI3; Construct Validity]

Hickey, A., Barker, M., McGee, H., & O'Boyle, C. (2005). Measuring health-related quality of life in older patient populations: a review of current approaches. PharmacoEconomics, 23(10), 971–993. https://doi.org/10.2165/00019053-200523100-00002 [HUI2; HUI3; Review Article]

Hille, E. T., den Ouden, A. L., Stuifbergen, M. C., Verrips, G. H., Vogels, A. G., Brand, R., Gravenhorst, J. B., & Verloove-Vanhorick, S. P. (2005). Is attrition bias a problem in neonatal follow-up? Early Human Development, 81(11), 901–908. https://doi.org/10.1016/j.earlhumdev.2005.07.006 [HUI3; Construct Validity]

Hill, H., Rowen, D., Pennington, B., Wong, R., & Wailoo, A. (2020). A Review of the Methods Used to Generate Utility Values in NICE Technology Assessments for Children and Adolescents. Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research, 23(7), 907–917. https://doi.org/10.1016/j.jval.2020.02.011 [HUI2; HUI3; Review Article]

Hinds, P. S., Gattuso, J. S., Fletcher, A., Baker, E., Coleman, B., Jackson, T., Jacobs-Levine, A., June, D., Rai, S. N., Lensing, S., & Pui, C. H. (2004). Quality of life as conveyed by pediatric patients with cancer. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 13(4), 761–772. https://doi.org/10.1023/B:QURE.0000021697.43165.87 [HUI2; HUI3; Content Validity]

Hinds, P. S., Burghen, E. A., Zhou, Y., Zhang, L., West, N., Bashore, L., & Pui, C. H. (2007). The Health Utilities Index 3 invalidated when completed by nurses for pediatric oncology patients. Cancer Nursing, 30(3), 169–177. https://doi.org/10.1097/01.NCC.0000270700.11425.4d [HUI3; Inter-Rater Reliability]

Hopkins, R. B., Garg, A. X., Levin, A., Molzahn, A., Rigatto, C., Singer, J., Soltys, G., Soroka, S., Parfrey, P. S., Barrett, B. J., & Goeree, R. (2011). Cost-effectiveness analysis of a randomized trial comparing care models for chronic kidney disease. Clinical Journal of the American Society of Nephrology, 6(6), 1248–1257. https://doi.org/10.2215/CJN.07180810 [HUI3; Construct Validity; Responsiveness]

Horsman, J., Furlong, W., Feeny, D., & Torrance, G. (2003). The Health Utilities Index (HUI): concepts, measurement properties and applications. Health and Quality of Life Outcomes, 1, 54. https://doi.org/10.1186/1477-7525-1-54 [HUI2; HUI3; Review Article]

Hovén, E., Lannering, B., Gustafsson, G., & Boman, K. K. (2011). The met and unmet health care needs of adult survivors of childhood central nervous system tumors: a double-informant, population-based study. Cancer, 117(18), 4294–4303. https://doi.org/10.1002/cncr.26020 [HUI3; Construct Validity]

Hovén, E. I., Lannering, B., Gustafsson, G., & Boman, K. K. (2013). Persistent impact of illness on families of adult survivors of childhood central nervous system tumors: a population-based cohort study. Psycho-Oncology, 22(1), 160–167. https://doi.org/10.1002/pon.2067 [HUI3; Construct Validity]

Huang, D. T., Sesselberg, H. W., McNitt, S., Noyes, K., Andrews, M. L., Hall, W. J., Dick, A., Daubert, J. P., Zareba, W., Moss, A. J., & MADIT-II Research Group (2007). Improved survival associated with prophylactic implantable defibrillators in elderly patients with prior myocardial infarction and depressed ventricular function: a MADIT-II substudy. Journal of Cardiovascular Electrophysiology, 18(8), 833–838. https://doi.org/10.1111/j.1540-8167.2007.00857.x [HUI3; Construct Validity]

Hung, S. Y., Pickard, A. S., Witt, W. P., & Lambert, B. L. (2007). Pain and depression in caregivers affected their perception of pain in stroke patients. Journal of Clinical Epidemiology, 60(9), 963–970. https://doi.org/10.1016/j.jclinepi.2006.12.010 [HUI3; Construct Validity; Inter-Rater Reliability]

Ikeda, E., Hinckson, E., & Krägeloh, C. (2014). Assessment of quality of life in children and youth with autism spectrum disorder: a critical review. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 23(4), 1069–1085. https://doi.org/10.1007/s11136-013-0591-6 [HUI3; Review Article]

Isogai, P. K., Rueda, S., Rachlis, A. R., Rourke, S. B., Mittmann, N., & OHTN Cohort Study Team (2013). Prediction of health preference values from CD4 counts in individuals with HIV. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 33(4), 558–566. https://doi.org/10.1177/0272989X12453499 [HUI3; Construct Validity]

Janse, A. J., Gemke, R. J., Uiterwaal, C. S., van der Tweel, I., Kimpen, J. L., & Sinnema, G. (2004). Quality of life: patients and doctors don't always agree: a meta-analysis. Journal of Clinical Epidemiology, 57(7), 653–661. https://doi.org/10.1016/j.jclinepi.2003.11.013 [HUI2; HUI3; Inter-rater Reliability]

Janse, A. J., Uiterwaal, C. S., Gemke, R. J., Kimpen, J. L., & Sinnema, G. (2005). A difference in perception of quality of life in chronically ill children was found between parents and pediatricians. Journal of Clinical Epidemiology, 58(5), 495–502. https://doi.org/10.1016/j.jclinepi.2004.09.010 [HUI3; Construct Validity; Reliability]

Janssens, A., Thompson Coon, J., Rogers, M., Allen, K., Green, C., Jenkinson, C., Tennant, A., Logan, S., & Morris, C. (2015). A systematic review of generic multidimensional patient-reported outcome measures for children, part I: descriptive characteristics. Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research, 18(2), 315–333. https://doi.org/10.1016/j.jval.2014.12.006 [HUI2; HUI3; Review Article]

Janssens, A., Rogers, M., Thompson Coon, J., Allen, K., Green, C., Jenkinson, C., Tennant, A., Logan, S., & Morris, C. (2015). A systematic review of generic multidimensional patient-reported outcome measures for children, part II: evaluation of psychometric performance of English-language versions in a general population. Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research, 18(2), 334–345. https://doi.org/10.1016/j.jval.2015.01.004 [HUI2; HUI3; Review Article]

Janssens, L., Gorter, J. W., Ketelaar, M., Kramer, W. L., & Holtslag, H. R. (2008). Health-related quality-of-life measures for long-term follow-up in children after major trauma. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 17(5), 701–713. https://doi.org/10.1007/s11136-008-9339-0 [HUI2; Review Paper]

Jayshree, M., Singhi, S. C., & Malhi, P. (2003). Follow up of survival and quality of life in children after intensive care. Indian pediatrics, 40(4), 303–309. https://europepmc.org/article/med/12736401 [HUI2; Construct Validity]

Johansen, K. L., Smith, M. W., Unruh, M. L., Siroka, A. M., O'Connor, T. Z., Palevsky, P. M., & VA/NIH Acute Renal Failure Trial Network (2010). Predictors of health utility among 60-day survivors of acute kidney injury in the Veterans Affairs/National Institutes of Health Acute Renal Failure Trial Network Study. Clinical Journal of the American Society of Nephrology, 5(8), 1366–1372. https://doi.org/10.2215/CJN.02570310 [HUI3; Construct Validity]

John-Baptiste, A. A., Tomlinson, G., Hsu, P. C., Krajden, M., Heathcote, E. J., Laporte, A., Yoshida, E. M., Anderson, F. H., & Krahn, M. D. (2009). Sustained responders have better quality of life and productivity compared with treatment failures long after antiviral therapy for hepatitis C. The American Journal of Gastroenterology, 104(10), 2439–2448. https://doi.org/10.1038/ajg.2009.346 [HUI2; HUI3; Construct Validity]

Jones, C. A., & Feeny, D. H. (2005). Agreement between patient and proxy responses of health-related quality of life after hip fracture. Journal of the American Geriatrics Society, 53(7), 1227–1233. https://doi.org/10.1111/j.1532-5415.2005.53374.x [HUI2; HUI3; Inter-Rater Agreement; Reliability; Construct Validity]

Jones, C. A., Feeny, D., & Eng, K. (2005). Test-retest reliability of health utilities index scores: evidence from hip fracture. International Journal of Technology Assessment in Health Care, 21(3), 393–398. https://doi.org/10.1017/s0266462305050518 [HUI2; HUI3; Test-Retest Reliability]

Jones C. A., Wieler M., Carvajal J., Lawrence L., Haennel R. (2012). Physical activity in persons with Parkinson disease: A feasibility study. Health, 4, 1145-1152.
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Jones, C.A., Pohar, S.L., Feeny, D.H., & Eng, K. (2014). Longitudinal construct validity of the Health Utilities Indices Mark 2 and Mark 3 in hip fracture. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 23, 805–813. https://doi.org/10.1007/s11136-013-0531-5 [HUI2; HUI3; Construct Validity; Responsiveness]

Jones, C. A., Jhangri, G. S., Feeny, D. H., & Beaupre, L. A. (2017). Cognitive Status at Hospital Admission: Postoperative Trajectory of Functional Recovery for Hip Fracture. The Journals of Gerontology. Series A, Biological Sciences and Medical Sciences, 72(1), 61–67. https://doi.org/10.1093/gerona/glv138 [HUI3; Construct Validity]

Jones, C. A., Paudel, Y. R., Slaughter, S. E., Ickert, C., Jhangri, G. S., & Feeny, D. (2021). Construct Validity of the Health Utilities Index Mark 2 and Mark 3 to Measure Health-Related Quality of Life of Residents in Long-Term Care Facilities. Journal of nursing measurement, JNM-D-20-00054. Advance online publication. https://doi.org/10.1891/JNM-D-20-00054 [HUI2; HUI3; Construct Validity]

Jones, S., Rantell, K., Stevens, K., Colwell, B., Ratcliffe, J. R., Holland, P., Rowan, K., Parry, G. J., & United Kingdom Pediatric Intensive Care Outcome Study Group (2006). Outcome at 6 months after admission for pediatric intensive care: a report of a national study of pediatric intensive care units in the United kingdom. Pediatrics, 118(5), 2101–2108. https://doi.org/10.1542/peds.2006-1455 [HUI2; UK Scoring; Construct Validity]

Joyce, V. R., Barnett, P. G., Bayoumi, A. M., Griffin, S. C., Kyriakides, T. C., Yu, W., Sundaram, V., Holodniy, M., Brown, S. T., Cameron, W., Youle, M., Sculpher, M., Anis, A. H., & Owens, D. K. (2009). Health-related quality of life in a randomized trial of antiretroviral therapy for advanced HIV disease. Journal of Acquired Immune Deficiency Syndromes, 50(1), 27–36. https://doi.org/10.1097/QAI.0b013e31818ce6f3 [HUI3; Construct Validity]

Joyce, V. R., Barnett, P. G., Chow, A., Bayoumi, A. M., Griffin, S. C., Sun, H., Holodniy, M., Brown, S. T., Kyriakides, T. C., Cameron, D. W., Youle, M., Sculpher, M., Anis, A. H., & Owens, D. K. (2012). Effect of treatment interruption and intensification of antiretroviral therapy on health-related quality of life in patients with advanced HIV: a randomized, controlled trial. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 32(1), 70–82. https://doi.org/10.1177/0272989X10397615 [HUI3; Construct Validity; Responsiveness]

Juniper, E. F., Guyatt, G. H., Feeny, D. H., Griffith, L. E., & Ferrie, P. J. (1997). Minimum skills required by children to complete health-related quality of life instruments for asthma: comparison of measurement properties. The European Respiratory Journal, 10(10), 2285–2294. https://doi.org/10.1183/09031936.97.10102285 [HUI2; Clinical; Reliability; Responsiveness]

Kamlet, M. S., Paul, N., Greenhouse, J., Kupfer, D., Frank, E., & Wade, M. (1995). Cost utility analysis of maintenance treatment for recurrent depression. Controlled Clinical Trials, 16(1), 17–40. https://doi.org/10.1016/0197-2456(94)00020-4 [HUI1]

Kanabar, D. J., Attard-Montalto, S., Saha, V., Kingston, J. E., Malpas, J. E., & Eden, O. B. (1995). Quality of life in survivors of childhood cancer after megatherapy with autologous bone marrow rescue. Pediatric Hematology and Oncology, 12(1), 29–36. https://doi.org/10.3109/08880019509029525 [HUI2; Construct Validity]

Karlawish, J. H., Zbrozek, A., Kinosian, B., Gregory, A., Ferguson, A., & Glick, H. A. (2008). Preference-based quality of life in patients with Alzheimer's disease. Alzheimer's & Dementia: the Journal of the Alzheimer's Association, 4(3), 193–202. https://doi.org/10.1016/j.jalz.2007.11.019 [HUI2; Construct Validity; Test-Retest Reliability]

Karlawish, J. H., Zbrozek, A., Kinosian, B., Gregory, A., Ferguson, A., Low, D. V., & Glick, H. A. (2008). Caregivers' assessments of preference-based quality of life in Alzheimer's disease. Alzheimer's & Dementia: the Journal of the Alzheimer's Association, 4(3), 203–211. https://doi.org/10.1016/j.jalz.2007.11.018 [HUI2; Construct Validity; Proxy Assessments; Test-Retest Reliability]

Kaplan, R. M., Groessl, E. J., Sengupta, N., Sieber, W. J., & Ganiats, T. G. (2005). Comparison of measured utility scores and imputed scores from the SF-36 in patients with rheumatoid arthritis. Medical Care, 43(1), 79–87. https://www.jstor.org/stable/3768346 [HUI2; HUI3; Construct Validity; Responsiveness]

Kaplan, R. M., Tally, S., Hays, R. D., Feeny, D., Ganiats, T. G., Palta, M., & Fryback, D. G. (2011). Five preference-based indexes in cataract and heart failure patients were not equally responsive to change. Journal of Clinical Epidemiology, 64(5), 497–506. https://doi.org/10.1016/j.jclinepi.2010.04.010 [HUI2; HUI3; Construct Validity; Responsiveness]

Kapral, M. K., Fang, J., Hill, M. D., Silver, F., Richards, J., Jaigobin, C., Cheung, A. M., & Investigators of the Registry of the Canadian Stroke Network (2005). Sex differences in stroke care and outcomes: results from the Registry of the Canadian Stroke Network. Stroke, 36(4), 809–814.
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Kavirajan, H., Hays, R. D., Vassar, S., & Vickrey, B. G. (2009). Responsiveness and construct validity of the health utilities index in patients with dementia. Medical Care, 47(6), 651–661. https://doi.org/10.1097/MLR.0b013e31819241b9 [HUI2; HUI3; Construct Validity; Responsiveness]

Kennedy, C. R., & Leyland, K. (1999). Comparison of screening instruments for disability and emotional/behavioral disorders with a generic measure of health-related quality of life in survivors of childhood brain tumors. International Journal of Cancer. Supplement, 12, 106–111. https://doi.org/10.1002/(sici)1097-0215(1999)83:12+<106::aid-ijc19>3.0.co;2-t [HUI2; Clinical; Construct Validity; Discriminative Validity]

Kennedy, C., Bull, K., Chevignard, M., Culliford, D., Dörr, H. G., Doz, F., Kortmann, R. D., Lannering, B., Massimino, M., Navajas Gutiérrez, A., Rutkowski, S., Spoudeas, H. A., Calaminus, G., & PNET4 study group of the Brain Tumour Group of The European branch of the International Society of Paediatric Oncology (SIOP-E) (2014). Quality of survival and growth in children and young adults in the PNET4 European controlled trial of hyperfractionated versus conventional radiation therapy for standard-risk medulloblastoma. International Journal of Radiation Oncology, Biology, Physics, 88(2), 292–300. https://doi.org/10.1016/j.ijrobp.2013.09.046

Kennes, J., Rosenbaum, P., Hanna, S. E., Walter, S., Russell, D., Raina, P., Bartlett, D., & Galuppi, B. (2002). Health status of school-aged children with cerebral palsy: information from a population-based sample. Developmental medicine and child neurology, 44(4), 240–247. https://doi.org/10.1017/s0012162201002018 [HUI3; Construct Validity]

Kiltie, A. E., & Gattamaneni, H. R. (1995). Survival and quality of life of paediatric intracranial germ cell tumour patients treated at the Christie Hospital, 1972-1993. Medical and Pediatric Oncology, 25(6), 450–456. https://doi.org/10.1002/mpo.2950250606 [HUI2; Clinical; Construct Validity]

Kimel, M., Revicki, D., Rao, S., Fryback, D., Feeny, D., Harnam, N., Thompson, C., & Cifaldi, M. (2011). Norms-based assessment of patient-reported outcomes associated with adalimumab monotherapy in patients with ankylosing spondylitis. Clinical and Experimental Rheumatology, 29(4), 624–632. https://www.clinexprheumatol.org/abstract.asp?a=4559 [HUI3; Construct Validity; Responsiveness]

Kuthubutheen, J., Mittmann, N., Amoodi, H., Qian, W., & Chen, J. M. (2015). The effect of different utility measures on the cost-effectiveness of bilateral cochlear implantation. The Laryngoscope125(2), 442–447. https://doi.org/10.1002/lary.24902

Kitterick, P. T., O'Donoghue, G. M., Edmondson-Jones, M., Marshall, A., Jeffs, E., Craddock, L., Riley, A., Green, K., O'Driscoll, M., Jiang, D., Nunn, T., Saeed, S., Aleksy, W., & Seeber, B. U. (2014). Comparison of the benefits of cochlear implantation versus contra-lateral routing of signal hearing aids in adult patients with single-sided deafness: study protocol for a prospective within-subject longitudinal trial. BMC Ear, Nose, and Throat Disorders, 14, 7. https://doi.org/10.1186/1472-6815-14-7 [HUI3; Study Design]

Klaassen, R. J., Doyle, J. J., Krahn, M. D., Blanchette, V. S., & Naglie, G. (2001). Initial bone marrow aspiration in childhood idiopathic thrombocytopenia: decision analysis. Journal of Pediatric Hematology/Oncology, 23(8), 511–518. https://doi.org/10.1097/00043426-200111000-00009 [HUI2; Decision  Analysis]

Klaassen, R. J., Krahn, M., Gaboury, I., Hughes, J., Anderson, R., Grundy, P., Ali, S. K., Jardine, L., Abla, O., Silva, M., Barnard, D., & Cappelli, M. (2010). Evaluating the ability to detect change of health-related quality of life in children with Hodgkin disease. Cancer, 116(6), 1608–1614. https://doi.org/10.1002/cncr.24883 [HUI2; HUI3; Construct Validity; Responsiveness]

Klaassen, R. J., Barr, R. D., Hughes, J., Rogers, P., Anderson, R., Grundy, P., Ali, S. K., Yanofsky, R., Abla, O., Silva, M., Carret, A. S., & Cappelli, M. (2010). Nurses provide valuable proxy assessment of the health-related quality of life of children with Hodgkin disease. Cancer, 116(6), 1602–1607. https://doi.org/10.1002/cncr.24888 [HUI2; HUI3; Inter-rater Reliability; Proxy Assessment]

Klassen, A. F., Lee, S. K., Raina, P., Chan, H. W., Matthew, D., & Brabyn, D. (2004). Health status and health-related quality of life in a population-based sample of neonatal intensive care unit graduates. Pediatrics, 113(3 Pt 1), 594–600. https://doi.org/10.1542/peds.113.3.594 [Comprehensive Health Status Classification System for Pre-School Children, CHSCS-PS; Construct Validity]

Klassen, A. F., Anthony, S. J., Khan, A., Sung, L., & Klaassen, R. (2011). Identifying determinants of quality of life of children with cancer and childhood cancer survivors: a systematic review. Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer, 19(9), 1275–1287. https://doi.org/10.1007/s00520-011-1193-x [HUI2; HUI3; Review Article]

Kleiner-Fisman, G., Stern, M. B., & Fisman, D. N. (2010). Health-related quality of life in Parkinson disease: correlation between Health Utilities Index III and Unified Parkinson's Disease Rating Scale (UPDRS) in U.S. male veterans. Health and Quality of Life Outcomes, 8, 91. https://doi.org/10.1186/1477-7525-8-91 [HUI3; Construct Validity; Responsiveness]

Klop, W. M., Briaire, J. J., Stiggelbout, A. M., & Frijns, J. H. (2007). Cochlear implant outcomes and quality of life in adults with prelingual deafness. The Laryngoscope, 117(11), 1982–1987.
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Klop, W. M., Boermans, P. P., Ferrier, M. B., van den Hout, W. B., Stiggelbout, A. M., & Frijns, J. H. (2008). Clinical relevance of quality of life outcome in cochlear implantation in postlingually deafened adults. Otology & Neurotology, 29(5), 615–621. https://doi.org/10.1097/MAO.0b013e318172cfac [HUI2; Construct Validity; Responsiveness]

Knapp, C., Madden, V., Revicki, D., Feeny, D., Wang, H., Curtis, C., & Sloyer, P. (2012). Health status and health-related quality of life in a pediatric palliative care program. Journal of Palliative Medicine, 15(7), 790–797. https://doi.org/10.1089/jpm.2011.0504 [HU2; HUI3; Construct Validity]

Koedoot, C., Bouwmans, C., Franken, M. C., & Stolk, E. (2011). Quality of life in adults who stutter. Journal of Communication Disorders, 44(4), 429–443. https://doi.org/10.1016/j.jcomdis.2011.02.002 [HUI3; Construct Validity]

Koomen, I., Raat, H., Jennekens-Schinkel, A., Grobbee, D. E., Roord, J. J., & van Furth, M. (2005). Academic and behavioral limitations and health-related quality of life in school-age survivors of bacterial meningitis. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 14(6), 1563–1572. https://doi.org/10.1007/s11136-004-7706-z [HUI2; HUI3; Construct Validity]

Krabbe, P. F., Hinderink, J. B., & van den Broek, P. (2000). The effect of cochlear implant use in postlingually deaf adults. International Journal of Technology Assessment in Health Care, 16(3), 864–873. https://doi.org/10.1017/s0266462300102132 [HUI2; Clinical Study; Construct Validity; Responsiveness]

Krahn, M., Ritvo, P., Irvine, J., Tomlinson, G., Bremner, K. E., Bezjak, A., Trachtenberg, J., & Naglie, G. (2003). Patient and community preferences for outcomes in prostate cancer: implications for clinical policy. Medical Care, 41(1), 153–164. https://doi.org/10.1097/00005650-200301000-00017 [HUI3; Clinical Study; Construct Validity]

Krahn, M., Bremner, K. E., Tomlinson, G., Ritvo, P., Irvine, J., & Naglie, G. (2007). Responsiveness of disease-specific and generic utility instruments in prostate cancer patients. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 16(3), 509–522. https://doi.org/10.1007/s11136-006-9132-x [HUI2; HUI3; Construct Validity; Responsiveness]

Krahn, M. D., Bremner, K. E., Alibhai, S. M., Ni, A., Tomlinson, G., Laporte, A., & Naglie, G. (2013). A reference set of health utilities for long-term survivors of prostate cancer: population-based data from Ontario, Canada. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 22(10), 2951–2962. https://doi.org/10.1007/s11136-013-0401-1 [HUI2; HUI3; Construct Validity]

Kroeker, A., Clark, W. F., Heidenheim, A. P., Kuenzig, L., Leitch, R., Meyette, M., Muirhead, N., Ryan, H., Welch, R., White, S., & Lindsay, R. M. (2003). An operating cost comparison between conventional and home quotidian hemodialysis. American Journal of Kidney Diseases: the Official Journal of the National Kidney Foundation, 42(1 Suppl), 49–55. https://doi.org/10.1016/s0272-6386(03)00538-9 [HUI; Construct Validity]

Kulkarni A. V. (2006). Distribution-based and anchor-based approaches provided different interpretability estimates for the Hydrocephalus Outcome Questionnaire. Journal of Clinical Epidemiology, 59(2), 176–184. https://doi.org/10.1016/j.jclinepi.2005.07.011 [HUI2; construct validity]

Kulkarni, A. V., Cochrane, D. D., McNeely, P. D., & Shams, I. (2008). Medical, social, and economic factors associated with health-related quality of life in Canadian children with hydrocephalus. The Journal of Pediatrics, 153(5), 689–695. https://doi.org/10.1016/j.jpeds.2008.04.068 [HUI3; Construct Validity]

Kulkarni, A. V., Hui, S., Shams, I., & Donnelly, R. (2010). Quality of life in obstructive hydrocephalus: endoscopic third ventriculostomy compared to cerebrospinal fluid shunt. Child's Nervous System: Official Journal of the International Society for Pediatric Neurosurgery, 26(1), 75–79. https://doi.org/10.1007/s00381-009-0983-7 [HUI3; Construct Validity]

Kulkarni A. V. (2010). Quality of life in childhood hydrocephalus: a review. Child's Nervous System: Official Journal of the International Society for Pediatric Neurosurgery, 26(6), 737–743. https://doi.org/10.1007/s00381-010-1131-0 [HUI3; Construct Validity; Review Article]

Kulkarni, A. V., Shams, I., Cochrane, D. D., & McNeely, P. D. (2010). Quality of life after endoscopic third ventriculostomy and cerebrospinal fluid shunting: an adjusted multivariable analysis in a large cohort. Journal of Neurosurgery. Pediatrics, 6(1), 11–16. https://doi.org/10.3171/2010.3.PEDS09358 [HUI3; Construct Validity]

Kulpeng, W., Sornsrivichai, V., Chongsuvivatwong, V., Rattanavipapong, W., Leelahavarong, P., Cairns, J., Lubell, Y., & Teerawattananon, Y. (2013). Variation of health-related quality of life assessed by caregivers and patients affected by severe childhood infections. BMC Pediatrics, 13, 122. https://doi.org/10.1186/1471-2431-13-122 [HUI2; HUI3; Construct Validity; Inter-rater Agreement; Thailand]

Kuspinar, A., & Mayo, N. E. (2013). Do generic utility measures capture what is important to the quality of life of people with multiple sclerosis? Health and Quality of Life Outcomes, 11, 71. https://doi.org/10.1186/1477-7525-11-71 [HUI2; HUI3; Content Validity]

Kuspinar, A., & Mayo, N. E. (2014). A review of the psychometric properties of generic utility measures in multiple sclerosis. PharmacoEconomics, 32(8), 759–773. https://doi.org/10.1007/s40273-014-0167-5 [HUI2; HUI3; Construct Validity; Review Article]

Kuthubutheen, J., Mittmann, N., Amoodi, H., Qian, W., & Chen, J. M. (2015). The effect of different utility measures on the cost-effectiveness of bilateral cochlear implantation. The Laryngoscope, 125(2), 442–447. https://doi.org/10.1002/lary.24902 [HUI3]

Kwon, J., Kim, S. W., Ungar, W. J., Tsiplova, K., Madan, J., & Petrou, S. (2018). A Systematic Review and Meta-analysis of Childhood Health Utilities. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 38(3), 277–305. https://doi.org/10.1177/0272989X17732990 [HUI2; HUI3; Review Article]

Kwon, J., Kim, S. W., Ungar, W. J., Tsiplova, K., Madan, J., & Petrou, S. (2019). Patterns, trends and methodological associations in the measurement and valuation of childhood health utilities. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation,28(7), 1705–1724. https://doi.org/10.1007/s11136-019-02121-z [HUI2; HUI3; Review Article]

Lacey, L., Bobula, J., Rüdell, K., Alvir, J., & Leibman, C. (2015). Quality of Life and Utility Measurement in a Large Clinical Trial Sample of Patients with Mild to Moderate Alzheimer's Disease: Determinants and Level of Changes Observed. Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research, 18(5), 638–645. https://doi.org/10.1016/j.jval.2015.03.1787 [HUI3; Construct Validity; Responsiveness]

Lammers, M. J., Grolman, W., Smulders, Y. E., & Rovers, M. M. (2011). The cost-utility of bilateral cochlear implantation: a systematic review. The Laryngoscope, 121(12), 2604–2609. https://doi.org/10.1002/lary.22387 [HUI3; Review Article]

Landfeldt, E., Lindgren, P., Bell, C. F., Guglieri, M., Straub, V., Lochmüller, H., & Bushby, K. (2016). Health-related quality of life in patients with Duchenne muscular dystrophy: a multinational, cross-sectional study. Developmental Medicine and Child Neurology, 58(5), 508–515. https://doi.org/10.1111/dmcn.12938 [HUI3; Construct Validity]

Langfitt, J. T., Vickrey, B. G., McDermott, M. P., Messing, S., Berg, A. T., Spencer, S. S., Sperling, M. R., Bazil, C. W., & Shinnar, S. (2006). Validity and responsiveness of generic preference-based HRQOL instruments in chronic epilepsy. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 15(5), 899–914. https://doi.org/10.1007/s11136-005-5231-3 [HUI2; HUI3; Construct Validity; Responsiveness]

Lau, V. I., Xie, F., Basmaji, J., Cook, D. J., Fowler, R., Kiflen, M., Sirotich, E., Iansavichene, A., Bagshaw, S. M., Wilcox, M. E., Lamontagne, F., Ferguson, N., & Rochwerg, B. (2021). Health-Related Quality-of-Life and Cost Utility Analyses in Critical Care: A Systematic Review. Critical Care Medicine, 49(4), 575–588. https://doi.org/10.1097/CCM.0000000000004851 [HUI3; Review Article]

Le, H. N. D., Petersen, S., Mensah, F., Gold, L., Wake, M., & Reilly, S. (2020). Health-Related Quality of Life in Children With Low Language or Congenital Hearing Loss, as Measured by the PedsQL and Health Utility Index Mark 3. Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research, 23(2), 164–170. https://doi.org/10.1016/j.jval.2019.07.019 [HUI3; Construct Validity]

Lee, H. Y., Park, E. C., Kim, H. J., Choi, J. Y., & Kim, H. N. (2006). Cost-utility analysis of cochlear implants in Korea using different measures of utility. Acta Oto-Laryngologica, 126(8), 817–823. https://doi.org/10.1080/00016480500525213 [HUI3; Construct Validity]

Lee, J. M., Rhee, K., O'grady, M. J., Basu, A., Winn, A., John, P., Meltzer, D. O., Kollman, C., Laffel, L. M., Lawrence, J. M., Tamborlane, W. V., Wysocki, T., Xing, D., Huang, E. S., & JDRF Continuous Glucose Monitoring Study Group (2011). Health utilities for children and adults with type 1 diabetes. Medical Care, 49(10), 924–931. https://doi.org/10.1097/MLR.0b013e318216592c [HUI3; Construct Validity; Iner-rater Reliability; Test-Retest Reliability]

Lee, T. A., Hollingworth, W., & Sullivan, S. D. (2003). Comparison of directly elicited preferences to preferences derived from the SF-36 in adults with asthma. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 23(4), 323–334. https://doi.org/10.1177/0272989X03256009 [HUI2; Scoring]

Le Galès, C., Costet, N., Gentet, J. C., Kalifa, C., Frappaz, D., Edan, C., Sariban, E., Plantaz, D., & Doz, F. (1999). Cross-cultural adaptation of a health status classification system in children with cancer. First results of the French adaptation of the Health Utilities Index Marks 2 and 3. International Journal of Cancer. Supplement, 12, 112–118. Link [Clinical; Construct Validity; Cultural Adaptation; Reliability]

Legood, R., Coen, P. G., Knox, K., Viner, R. M., El Bashir, H., Christie, D., Patel, B. C., & Booy, R. (2009). Health related quality of life in survivors of pneumococcal meningitis. Acta Paediatrica, 98(3), 543–547. https://doi.org/10.1111/j.1651-2227.2008.01136.x [HUI3; Construct Validity]

Leidy, N. K., & Coughlin, C. (1998). Psychometric performance of the Asthma Quality of Life Questionnaire in a US sample. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 7(2), 127–134. https://doi.org/10.1023/a:1008853325724 [HUI2; Construct Validity]

Leidy, K. N., Chan, K. S., & Coughlin, C. (1998). Is the asthma quality of life questionnaire a useful measure for low-income asthmatics? American Journal of Respiratory and Critical Care Medicine, 158(4), 1082–1090. https://doi.org/10.1164/ajrccm.158.4.9708130 [HUI2; Construct Validity]

Lenarz, T., James, C., Cuda, D., Fitzgerald O'Connor, A., Frachet, B., Frijns, J. H., Klenzner, T., Laszig, R., Manrique, M., Marx, M., Merkus, P., Mylanus, E. A., Offeciers, E., Pesch, J., Ramos-Macias, A., Robier, A., Sterkers, O., & Uziel, A. (2013). European multi-centre study of the Nucleus Hybrid L24 cochlear implant. International Journal of Audiology, 52(12), 838–848. https://doi.org/10.3109/14992027.2013.802032 [HUI3; Construct Validity; Responsiveness]

Liem, Y. S., Bosch, J. L., & Hunink, M. G. (2008). Preference-based quality of life of patients on renal replacement therapy: a systematic review and meta-analysis. Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research, 11(4), 733–741. https://doi.org/10.1111/j.1524-4733.2007.00308.x [HUI3; Review Article]

Lima, V. D., & Kopec, J. A. (2005). Quantifying the effect of health status on health care utilization using a preference-based health measure. Social Science & Medicine, 60(3), 515–524. https://doi.org/10.1016/j.socscimed.2004.05.024 [HUI3; Construct Validity]

Liu, H., Liu, H. X., Kang, H. Y., Gu, Z., & Hong, S. L. (2016). Evaluation on health-related quality of life in deaf children with cochlear implant in China. International Journal of Pediatric Otorhinolaryngology, 88, 136–141. https://doi.org/10.1016/j.ijporl.2016.06.027 [HUI3; Construct Validity; Responsiveness]

Livingston, M. H., Rosenbaum, P. L., Russell, D. J., & Palisano, R. J. (2007). Quality of life among adolescents with cerebral palsy: what does the literature tell us? Developmental Medicine and Child Neurology, 49(3), 225–231. https://doi.org/10.1111/j.1469-8749.2007.00225.x [HUI3; Review Article]

Livingston, M. H., & Rosenbaum, P. L. (2008). Adolescents with cerebral palsy: stability in measurement of quality of life and health-related quality of life over 1 year. Developmental Medicine and Child Neurology, 50(9), 696–701. https://doi.org/10.1111/j.1469-8749.2008.03053.x [HUI3; Construct Validity; Test-Retest Reliabilty]

Lloyd, A., Nafees, B., Gavriel, S., Rousculp, M. D., Boye, K. S., & Ahmad, A. (2008). Health utility values associated with diabetic retinopathy. Diabetic Medicine: a Journal of the British Diabetic Association, 25(5), 618–624. https://doi.org/10.1111/j.1464-5491.2008.02430.x [HUI3; Construct Validity]

Lobo, F. S., Gross, C. R., & Matthees, B. J. (2004). Estimation and comparison of derived preference scores from the SF-36 in lung transplant patients. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 13(2), 377–388. https://doi.org/10.1023/B:QURE.0000018488.95206.d6 [HUI2; Construct Validity; Scoring]

Longstreth, W. T., Jr, Nichol, G., Van Ottingham, L., & Hallstrom, A. P. (2010). Two simple questions to assess neurologic outcomes at 3 months after out-of-hospital cardiac arrest: experience from the public access defibrillation trial. Resuscitation, 81(5), 530–533. https://doi.org/10.1016/j.resuscitation.2010.01.011 [HUI3; Construct Validity]

Lovrics, P. J., Cornacchi, S. D., Barnabi, F., Whelan, T., & Goldsmith, C. H. (2008). The feasibility and responsiveness of the health utilities index in patients with early-stage breast cancer: a prospective longitudinal study. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 17(2), 333–345. https://doi.org/10.1007/s11136-007-9305-2 [HUI3; Construct Validity; Responsiveness]

Lubeck D. P. (2004). Patient-reported outcomes and their role in the assessment of rheumatoid arthritis. PharmacoEconomics, 22(2 Suppl 1), 27–38. https://doi.org/10.2165/00019053-200422001-00004 [HUI3]

Lubetkin, E. I., & Gold, M. R. (2002). Comprehensibility of measures of health-related quality of life in minority and low-income patients. Journal of the National Medical Association, 94(5), 327–335. Link [HUI3; Construct Validity; Routine Use]

Lung, T. W., Hayes, A. J., Hayen, A., Farmer, A., & Clarke, P. M. (2011). A meta-analysis of health state valuations for people with diabetes: explaining the variation across methods and implications for economic evaluation. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 20(10), 1669–1678. https://doi.org/10.1007/s11136-011-9902-y [HUI3; Review Article]

Luo, N., Chew, L. H., Fong, K. Y., Koh, D. R., Ng, S. C., Yoon, K. H., Vasoo, S., Li, S. C., & Thumboo, J. (2003). A comparison of the EuroQol-5D and the Health Utilities Index mark 3 in patients with rheumatic disease. The Journal of Rheumatology, 30(10), 2268–2274. https://www.jrheum.org/content/jrheum/30/10/2268.full.pdf [HUI3; Construct Validity]

Luo, N., Seng, B. K., Thumboo, J., Feeny, D., & Li, S. C. (2006). A study of the construct validity of the Health Utilities Index Mark 3 (HUI3) in patients with schizophrenia. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 15(5), 889–898. https://doi.org/10.1007/s11136-005-5745-8 [HUI3; Construct Validity]

Lynch, F. L., Dickerson, J. F., Feeny, D. H., Clarke, G. N., & MacMillan, A. L. (2016). Measuring Health-related Quality of Life in Teens With and Without Depression. Medical Care, 54(12), 1089–1097. https://doi.org/10.1097/MLR.0000000000000581 [HUI2; HUI3; Construct Validity]

Macran, S., Weatherly, H., & Kind, P. (2003). Measuring population health: a comparison of three generic health status measures. Medical Care, 41(2), 218–231. https://doi.org/10.1097/01.MLR.0000044901.57067.19 [modified non-standard version of HUI3; Construct Validity; Primary Care; Routine Use]

Maddigan, S. L., Feeny, D. H., Johnson, J. A., & DOVE Investigators (2003). A comparison of the health utilities indices Mark 2 and Mark 3 in type 2 diabetes. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 23(6), 489–501. https://doi.org/10.1177/0272989X03258438 [HUI2; HUI3; Construct Validity]

Maddigan, S. L., Majumdar, S. R., Toth, E. L., Feeny, D. H., Johnson, J. A., & DOVE Investigators (2003). Health-related quality of life deficits associated with varying degrees of disease severity in type 2 diabetes. Health and Quality of Life Outcomes, 1, 78. https://doi.org/10.1186/1477-7525-1-78 [HUI3; Construct Validity]

Maddigan, S. L., Feeny, D. H., Johnson, J. A., & DOVE Investigators (2004). Construct validity of the RAND-12 and Health Utilities Index Mark 2 and 3 in type 2 diabetes. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 13(2), 435–448. https://doi.org/10.1023/B:QURE.0000018497.06539.8f [HUI2; HUI3; Construct Validity]

Maddigan, S. L., Majumdar, S. R., Guirguis, L. M., Lewanczuk, R. Z., Lee, T. K., Toth, E. L., & Johnson, J. A. (2004). Improvements in patient-reported outcomes associated with an intervention to enhance quality of care for rural patients with type 2 diabetes: results of a controlled trial. Diabetes Care, 27(6), 1306–1312. https://doi.org/10.2337/diacare.27.6.1306 [HUI3; Construct Validity; Responsiveness]

Maddigan, S. L., Feeny, D. H., & Johnson, J. A. (2005). Health-related quality of life deficits associated with diabetes and comorbidities in a Canadian National Population Health Survey. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 14(5), 1311–1320. https://doi.org/10.1007/s11136-004-6640-4 [HUI3; Construct Validity]

Maddigan, S. L., Majumdar, S. R., & Johnson, J. A. (2005). Understanding the complex associations between patient-provider relationships, self-care behaviours, and health-related quality of life in type 2 diabetes: a structural equation modeling approach. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 14(6), 1489–1500. https://doi.org/10.1007/s11136-005-0586-z [HUI3; Construct Validity]

Maes, I. H., Joore, M. A., Cima, R. F., Vlaeyen, J. W., & Anteunis, L. J. (2011). Assessment of health state in patients with tinnitus: a comparison of the EQ-5D and HUI mark III. Ear and Hearing, 32(4), 428–435. https://doi.org/10.1097/AUD.0b013e3181fdf09f [HUI3; Construct Validity; Responsiveness]

Mahle, W. T., Forbess, J. M., Kirshbom, P. M., Cuadrado, A. R., Simsic, J. M., & Kanter, K. R. (2005). Cost-utility analysis of salvage cardiac extracorporeal membrane oxygenation in children. The Journal of Thoracic and Cardiovascular Surgery, 129(5), 1084–1090. https://doi.org/10.1016/j.jtcvs.2004.08.012 [HUI2; Construct Validity]

Mahon, J. L., Bourne, R. B., Rorabeck, C. H., Feeny, D. H., Stitt, L., & Webster-Bogaert, S. (2002). Health-related quality of life and mobility of patients awaiting elective total hip arthroplasty: a prospective study. CMAJ: Canadian Medical Association Journal, 167(10), 1115–1121. https://www.cmaj.ca/content/167/10/1115 [HUI3; Construct Validity; Responsiveness]

Maia, C. R., Stella, S. F., Wagner, F., Pianca, T. G., Krieger, F. V., Cruz, L. N., Polanczyk, G. V., Rohde, L. A., & Polanczyk, C. A. (2016). Cost-utility analysis of methylphenidate treatment for children and adolescents with ADHD in Brazil. Revista Brasileira de Psiquiatria, 38(1), 30–38. https://doi.org/10.1590/1516-4446-2014-1516 [HUI3; Cost-Utility Analysis]

Majumdar, S.R., Johnson, J.A., Bowker, S.L., Booth, G.L., Dolovich, L., Ghali, W.A., Harris, S.B., Hux, J., Holbrook, A., Lee, H.N., Toth, E.L., & Yale, J.F. (2005). A Canadian Consensus for the Standardized Evaluation of Quality Improvement Interventions in Type 2 Diabetes. Canadian Journal of Diabetes, 29(3), 220-229. Link [HUI3; Quality Improvement]

Malthaner, R. A., & Miller, J. D. (2000). Lung volume reduction surgery: results of a Canadian pilot study. Canadian Lung Volume Reduction Surgery Study Group. Canadian Journal of Surgery. Journal canadien de chirurgie, 43(5), 377–383. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3695145/ [HUI3; Responsiveness]

Marrie, R. A., Dufault, B., Tyry, T., Cutter, G. R., Fox, R. J., & Salter, A. (2020). Developing a crosswalk between the RAND-12 and the health utilities index for multiple sclerosis. Multiple Sclerosis, 26(9), 1102–1110. https://doi.org/10.1177/1352458519852722 [HUI3; Construct Validity]

Marrie, R. A., Leung, S., Cutter, G. R., Fox, R. J., & Salter, A. (2021). Comparative responsiveness of the health utilities index and the RAND-12 for multiple sclerosis. Multiple Sclerosis, 27(11), 1781–1789. https://doi.org/10.1177/1352458520981370 [HUI3; Construct Validity; Responsiveness]

Marra, C. A., Esdaile, J. M., Guh, D., Kopec, J. A., Brazier, J. E., Koehler, B. E., Chalmers, A., & Anis, A. H. (2004). A comparison of four indirect methods of assessing utility values in rheumatoid arthritis. Medical Care, 42(11), 1125–1131. https://doi.org/10.1097/00005650-200411000-00012 [HUI2; HUI3; Construct Validity]

Marra, C. A., Woolcott, J. C., Kopec, J. A., Shojania, K., Offer, R., Brazier, J. E., Esdaile, J. M., & Anis, A. H. (2005). A comparison of generic, indirect utility measures (the HUI2, HUI3, SF-6D, and the EQ-5D) and disease-specific instruments (the RAQoL and the HAQ) in rheumatoid arthritis. Social Science & Medicine, 60(7), 1571–1582. https://doi.org/10.1016/j.socscimed.2004.08.034 [HUI2; HUI3; Construct Validity; Interpretability; Responsiveness]

Marra, C. A., Rashidi, A. A., Guh, D., Kopec, J. A., Abrahamowicz, M., Esdaile, J. M., Brazier, J. E., Fortin, P. R., & Anis, A. H. (2005). Are indirect utility measures reliable and responsive in rheumatoid arthritis patients? Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 14(5), 1333–1344. https://doi.org/10.1007/s11136-004-6012-0 [HUI3; Construct Validity; Test-Retest Reliability; Responsiveness]

Marra, C. A., Marion, S. A., Guh, D. P., Najafzadeh, M., Wolfe, F., Esdaile, J. M., Clarke, A. E., Gignac, M. A., & Anis, A. H. (2007). Not all "quality-adjusted life years" are equal. Journal of Clinical Epidemiology, 60(6), 616–624. https://doi.org/10.1016/j.jclinepi.2006.09.006 [HUI2; HUI3; Construct Validity; Responsiveness]

Marra, C. A., Cibere, J., Grubisic, M., Grindrod, K. A., Gastonguay, L., Thomas, J. M., Embley, P., Colley, L., Tsuyuki, R. T., Khan, K. M., & Esdaile, J. M. (2012). Pharmacist-initiated intervention trial in osteoarthritis: a multidisciplinary intervention for knee osteoarthritis. Arthritis Care & Research, 64(12), 1837–1845. https://doi.org/10.1002/acr.21763 [HUI3; Construct Validity; Responsiveness]

Marra, C. A., Grubisic, M., Cibere, J., Grindrod, K. A., Woolcott, J. C., Gastonguay, L., & Esdaile, J. M. (2014). Cost-utility analysis of a multidisciplinary strategy to manage osteoarthritis of the knee: economic evaluation of a cluster randomized controlled trial study. Arthritis Care & Research, 66(6), 810–816. https://doi.org/10.1002/acr.22232 [HUI3; Construct Validity; Responsiveness]

Marriott, C. J. C., Beaumont, L. F., Farncombe, T. H., Cranston, A. N., Athale, U. H., Yakemchuk, V. N., Webber, C. E., & Barr, R. D. (2018). Body composition in long-term survivors of acute lymphoblastic leukemia diagnosed in childhood and adolescence: A focus on sarcopenic obesity. Cancer, 124(6), 1225–1231. https://doi.org/10.1002/cncr.31191 [HUI2; HUI3; Construct Validity]

Marshall, D., Pericak, D., Grootendorst, P., Gooch, K., Faris, P., Frank, C., Bellamy, N., Torrance, G., & Feeny, D. (2008). Validation of a prediction model to estimate health utilities index Mark 3 utility scores from WOMAC index scores in patients with osteoarthritis of the hip. Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research, 11(3), 470–477. https://doi.org/10.1111/j.1524-4733.2007.00258.x [HUI3; Construct Validity]

Mathias, S. D., Bates, M. M., Pasta, D. J., Cisternas, M. G., Feeny, D., & Patrick, D. L. (1997). Use of the Health Utilities Index with stroke patients and their caregivers. Stroke, 28(10), 1888–1894. https://doi.org/10.1161/01.str.28.10.1888 [HUI2; Clinical; Construct Validity; Reliability]

Mauch, H., Kaur, J., Irwin, C., & Wyss, J. (2021). Design, implementation, and management of an international medical device registry. Trials, 22(1), 845. https://doi.org/10.1186/s13063-021-05821-5 [hearing implants; HUI3}

Maxwell, C. J., Kang, J., Walker, J. D., Zhang, J. X., Hogan, D. B., Feeny, D. H., & Wodchis, W. P. (2009). Sex differences in the relative contribution of social and clinical factors to the Health Utilities Index Mark 2 measure of health-related quality of life in older home care clients. Health and Quality of Life Outcomes, 7, 80. https://doi.org/10.1186/1477-7525-7-80 [HUI2; C MDS-HSI; Construct Validity]

Mayo, N. E., Scott, S. C., Bayley, M., Cheung, A., Garland, J., Jutai, J., & Wood-Dauphinee, S. (2015). Modeling health-related quality of life in people recovering from stroke. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 24(1), 41–53. https://doi.org/10.1007/s11136-013-0605-4 [HUI2; HUI3; Construct Validity]

McCarter, H., Furlong, W., Whitton, A. C., Feeny, D., DePauw, S., Willan, A. R., & Barr, R. D. (2006). Health status measurements at diagnosis as predictors of survival among adults with brain tumors. Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology, 24(22), 3636–3643. https://doi.org/10.1200/JCO.2006.06.0137 [HUI2; HUI3; Predictive Validity]

McDonough, C. M., Grove, M. R., Tosteson, T. D., Lurie, J. D., Hilibrand, A. S., & Tosteson, A. N. (2005). Comparison of EQ-5D, HUI, and SF-36-derived societal health state values among spine patient outcomes research trial (SPORT) participants. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 14(5), 1321–1332. https://doi.org/10.1007/s11136-004-5743-2 [HUI2; HUI3; Construct Validity]

McDonough, C. M., Tosteson, T. D., Tosteson, A. N., Jette, A. M., Grove, M. R., & Weinstein, J. N. (2011). A longitudinal comparison of 5 preference-weighted health state classification systems in persons with intervertebral disk herniation. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 31(2), 270–280. https://doi.org/10.1177/0272989X10380924 [HUI2; HUI3; Construct Validity; Responsiveness]

McMahon, P. M., Araki, S. S., Neumann, P. J., Harris, G. J., & Gazelle, G. S. (2000). Cost-effectiveness of functional imaging tests in the diagnosis of Alzheimer disease. Radiology, 217(1), 58–68. https://doi.org/10.1148/radiology.217.1.r00se1358 [HUI2; Clinical]

McMahon, P. M., Araki, S. S., Sandberg, E. A., Neumann, P. J., & Gazelle, G. S. (2003). Cost-effectiveness of PET in the diagnosis of Alzheimer disease. Radiology, 228(2), 515–522. https://doi.org/10.1148/radiol.2282020915 [HUI2; HUI3; Construct Validity]

McNamara, H. C., Wood, R., Chalmers, J., Marlow, N., Norrie, J., MacLennan, G., McPherson, G., Boachie, C., & Norman, J. E. (2015). STOPPIT Baby Follow-up Study: the effect of prophylactic progesterone in twin pregnancy on childhood outcome. PloS One, 10(4), e0122341. https://doi.org/10.1371/journal.pone.0122341 [HUI2; HUI3; Construct Validity]

McTaggart-Cowan, H. M., Marra, C. A., Yang, Y., Brazier, J. E., Kopec, J. A., FitzGerald, J. M., Anis, A. H., & Lynd, L. D. (2008). The validity of generic and condition-specific preference-based instruments: the ability to discriminate asthma control status. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 17(3), 453–462. https://doi.org/10.1007/s11136-008-9309-6 [HUI3; Construct Validity]

Meenan, R. T., Feeny, D., Labby, D., Spofford, M., Mosen, D., & Ramsay, R. (2008). Using health-related quality of life assessments to evaluate care support within Medicaid. Care Management Journals: Journal of Case Management; The Journal of Long Term Home Health Care, 9(2), 42–50. https://doi.org/10.1891/1521-0987.9.2.42 [HUI3; Construct Validity; Responsiveness]

Mehdipour, A., Beauchamp, M. K., Wald, J., Peters, N., & Kuspinar, A. (2020). Measurement properties of preference-based measures for economic evaluation in COPD: a systematic review. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 29(11), 2875–2885. https://doi.org/10.1007/s11136-020-02569-4 [HUI3; Review Article]

Midgley, D. E., Bradlee, T. A., Donohoe, C., Kent, K. P., & Alonso, E. M. (2000). Health-related quality of life in long-term survivors of pediatric liver transplantation. Liver Transplantation: Official Publication of the American Association for the Study of Liver Diseases and the International Liver Transplantation Society, 6(3), 333–339. https://doi.org/10.1053/lv.2000.6139 [HUI2; Clinical; Construct Validity]

Mihalopoulos, C., Chen, G., Iezzi, A., Khan, M. A., & Richardson, J. (2014). Assessing outcomes for cost-utility analysis in depression: comparison of five multi-attribute utility instruments with two depression-specific outcome measures. The British Journal of Psychiatry: the Journal of Mental Science, 205(5), 390–397. https://doi.org/10.1192/bjp.bp.113.136036 [HUI3; Construct Validity]

Miller, E. A., Schneider, L. S., & Rosenheck, R. A. (2009). Assessing the relationship between health utilities, quality of life, and health services use in Alzheimer's disease. International Journal of Geriatric Psychiatry, 24(1), 96–105. https://doi.org/10.1002/gps.2160 [HUI3; Construct Validity]

Miller, E. A., Rosenheck, R. A., & Schneider, L. S. (2010). Caregiver burden, health utilities, and institutional service costs among community-dwelling patients with Alzheimer disease. Alzheimer Disease and Associated Disorders, 24(4), 380–389. https://doi.org/10.1097/WAD.0b013e3181eb2f2e [HUI3; Construct Validity; Prediction of Cost]

Miller, E. A., Schneider, L. S., Zbrozek, A., & Rosenheck, R. A. (2008). Sociodemographic and clinical correlates of utility scores in Alzheimer's disease. Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research, 11(7), 1120–1130. https://doi.org/10.1111/j.1524-4733.2008.00351.x [HUI3; Construct Validity; Responsiveness]

Miller, E. A., Rosenheck, R. A., & Schneider, L. S. (2012). Caregiver burden, health utilities, and institutional service use in Alzheimer's disease. International Journal of Geriatric Psychiatry, 27(4), 382–393. https://doi.org/10.1002/gps.2730 [HUI3; Construct Validity]

Miller, E. A., Rosenheck, R. A., & Schneider, L. S. (2010). Assessing the relationship between health utilities, quality of life, and health care costs in Alzheimer's disease: the CATIE-AD study. Current Alzheimer Research, 7(4), 348–357. https://doi.org/10.2174/156720510791162386 [HUI3; Construct Validity]

Miller, J. D., Malthaner, R. A., Goldsmith, C. H., Goeree, R., Higgins, D., Cox, P. G., Tan, L., Road, J. D., & Canadian Lung Volume Reduction Surgery Study (2006). A randomized clinical trial of lung volume reduction surgery versus best medical care for patients with advanced emphysema: a two-year study from Canada. The Annals of Thoracic Surgery, 81(1), 314–321. https://doi.org/10.1016/j.athoracsur.2005.07.055 [HUI3; Construct Validity; Responsiveness]

Mills, M.J., Alonso, E.M., Piper, J.B., Bruce, D.S., Newell, K.A, Woodie, E.S., Baker, A.L., Whitington, P.F., & Thistlewaite, J.R. (1995). Liver Transplantation at the University of Chicago. In J.M. Cecka & Paul I. Terasaki, (Eds.), Clinical Transplants, (pp 187-197). UCLA Tissue Typing Laboratory. No link available. [HUI2; Clinical]

Mills, T., Law, S. K., Walt, J., Buchholz, P., & Hansen, J. (2009). Quality of life in glaucoma and three other chronic diseases: a systematic literature review. Drugs & Aging, 26(11), 933–950. https://doi.org/10.2165/11316830-000000000-00000 [HUI3; Construct Validity; Review Article]

Mittmann, N., Hitzig, S. L., & Catharine Craven, B. (2014). Predicting health preference in chronic spinal cord injury. The Journal of Spinal Cord Medicine, 37(5), 548–555. https://doi.org/10.1179/2045772314Y.0000000249

Mok, W. K., Wong, W. H., Mok, G. T., Chu, Y. W., Ho, F. K., Chow, C. B., Ip, P., & Chung, B. H. (2014). Validation and application of health utilities index in Chinese subjects with down syndrome. Health and Quality of Life Outcomes, 12, 144. https://doi.org/10.1186/s12955-014-0144-x [HUI2; HUI3; Construct Validity]

Moock, J., & Kohlmann, T. (2008). Comparing preference-based quality-of-life measures: results from rehabilitation patients with musculoskeletal, cardiovascular, or psychosomatic disorders. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 17(3), 485–495. https://doi.org/10.1007/s11136-008-9317-6 [HUI2; HUI3; Construct Validity; Responsiveness]

Moore, A. D., Clarke, A. E., Danoff, D. S., Joseph, L., Bélisle, P., Neville, C., & Fortin, P. R. (1999). Can health utility measures be used in lupus research? A comparative validation and reliability study of 4 utility indices. The Journal of Rheumatology, 26(6), 1285–1290. https://europepmc.org/article/med/10381044 [HUI2; Clinical; Construct Validity; Reliability]

Morrow, A. M., Hayen, A., Quine, S., Scheinberg, A., & Craig, J. C. (2012). A comparison of doctors', parents' and children's reports of health states and health-related quality of life in children with chronic conditions. Child: Care, Health and Development, 38(2), 186–195. https://doi.org/10.1111/j.1365-2214.2011.01240.x [HUI2; HUI3; Inter-rater Agreement; Construct Validity]

Mok, W. K., Wong, W. H., Mok, G. T., Chu, Y. W., Ho, F. K., Chow, C. B., Ip, P., & Chung, B. H. (2014). Validation and application of health utilities index in Chinese subjects with down syndrome. Health and quality of life outcomes12, 144. https://doi.org/10.1186/s12955-014-0144-x

Moy, M. L., Fuhlbrigge, A. L., Blumenschein, K., Chapman, R. H., Zillich, A. J., Kuntz, K. M., Paltiel, A. D., Kitch, B. T., Weiss, S. T., & Neumann, P. J. (2004). Association between preference-based health-related quality of life and asthma severity. Annals of Allergy, Asthma & Immunology: Official Publication of the American College of Allergy, Asthma, & Immunology, 92(3), 329–334. https://doi.org/10.1016/S1081-1206(10)61570-0 [HUI3; asthma; construct validity]

Mpundu-Kaambwa, C., Chen, G., Huynh, E., Russo, R., & Ratcliffe, J. (2018). A review of preference-based measures for the assessment of quality of life in children and adolescents with cerebral palsy. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 27(7), 1781–1799. https://doi.org/10.1007/s11136-018-1837-0 [HUI2; HUI3; Construct Validity; Responsiveness, Reliability; Review Article]

Msall M. E. (2005). Measuring functional skills in preschool children at risk for neurodevelopmental disabilities. Mental Retardation and Developmental Disabilities Research Reviews, 11(3), 263–273. https://doi.org/10.1002/mrdd.20073 [Comprehensive Health Status Classification System for Pre-School Children, CHSCS-PS; Review Article]

Msall M. E. (2006). Neurodevelopmental surveillance in the first 2 years after extremely preterm birth: evidence, challenges, and guidelines. Early human development, 82(3), 157–166. https://doi.org/10.1016/j.earlhumdev.2005.12.016 [Comprehensive Health Status Classification System for Pre-School Children, CHSCS-PS; Review Article]

 

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Mulhern R. K. (1999). Correlation of the Health Utilities Index Mark 2 cognition scale and neuropsychological functioning among survivors of childhood medulloblastoma. International Journal of Cancer. Supplement, 12, 91–94. https://doi.org/10.1002/(sici)1097-0215(1999)83:12+<91::aid-ijc17>3.0.co;2-o [Clinical; Construct Validity; Discriminative Validity]

Naglie, G., Tomlinson, G., Tansey, C., Irvine, J., Ritvo, P., Black, S. E., Freedman, M., Silberfeld, M., & Krahn, M. (2006). Utility-based Quality of Life measures in Alzheimer's disease. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 15(4), 631–643. https://doi.org/10.1007/s11136-005-4364-8 [HUI3; Construct Validity; Inter-Rater Reliability; Test-Retest Reliability]

Naglie, G., Hogan, D. B., Krahn, M., Black, S. E., Beattie, B. L., Patterson, C., Macknight, C., Freedman, M., Borrie, M., Byszewski, A., Bergman, H., Streiner, D., Irvine, J., Ritvo, P., Comrie, J., Kowgier, M., & Tomlinson, G. (2011). Predictors of family caregiver ratings of patient quality of life in Alzheimer disease: cross-sectional results from the Canadian Alzheimer's Disease Quality of Life Study. The American Journal of Geriatric Psychiatry: Official Journal of the American Association for Geriatric Psychiatry, 19(10), 891–901. https://doi.org/10.1097/JGP.0b013e3182006a7f [HUI3; Construct Validity; Proxy Assessment]

Nathan, P. C., Furlong, W., & Barr, R. D. (2004). Challenges to the measurement of health-related quality of life in children receiving cancer therapy. Pediatric Blood & Cancer, 43(3), 215–223. https://doi.org/10.1002/pbc.20096 [Clinical]

Nathan, P. C., Furlong, W., De Pauw, S., Horsman, J., Van Schaik, C., Rolland, M., Weitzman, S., Feeny, D., & Barr, R. D. (2004). Health status of young children during therapy for advanced neuroblastoma. Pediatric Blood & Cancer, 43(6), 659–667. https://doi.org/10.1002/pbc.20133 [Comprehensive Health Status Classification System for Pre-School Children, CHSCS-PS; Reliability; Construct Validity; Pediatric Oncology]

Nathan, P. C., Furlong, W., Horsman, J., Van Schaik, C., Rolland, M., Weitzman, S., Feeny, D., & Barr, R. D. (2004). Inter-observer agreement of a comprehensive health status classification system for pre-school children among patients with Wilms' tumor or advanced neuroblastoma. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 13(10), 1707–1714. https://doi.org/10.1007/s11136-004-7624-0 [Comprehensive Health Status Classification System for Pre-School Children, CHSCS-PS; Reliability; Construct Validity; Pediatric Oncology]

Nayiager, T., Duckworth, J., Pullenayegum, E., Whitton, A., Hollenberg, R., Horsman, J., Furlong, W., Spitzer, R., & Barr, R. (2015). Exploration of Morbidity in a Serial Study of Long-Term Brain Tumor Survivors: A Focus on Pain. Journal of Adolescent and Young Adult Oncology, 4(3), 129–136. https://doi.org/10.1089/jayao.2015.0026 [HUI2; HUI3; Construct Validity]

Nayiager, T., Anderson, L., Cranston, A., Athale, U., & Barr, R. D. (2017). Health-related quality of life in long-term survivors of acute lymphoblastic leukemia in childhood and adolescence. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 26(5), 1371–1377. https://doi.org/10.1007/s11136-016-1462-8 [HUI2; HUI3; Construct Validity]

Neumann, P. J., Kuntz, K. M., Leon, J., Araki, S. S., Hermann, R. C., Hsu, M. A., & Weinstein, M. C. (1999). Health utilities in Alzheimer's disease: a cross-sectional study of patients and caregivers. Medical care, 27-32. https://www.jstor.org/stable/3767204 [HUI2; Clinical; Construct Validity]

Neumann, P. J., Hermann, R. C., Kuntz, K. M., Araki, S. S., Duff, S. B., Leon, J., Berenbaum, P. A., Goldman, P. A., Williams, L. W., & Weinstein, M. C. (1999). Cost-effectiveness of donepezil in the treatment of mild or moderate Alzheimer's disease. Neurology, 52(6), 1138–1145. https://doi.org/10.1212/wnl.52.6.1138 [HUI2; Clinical; Evaluative]

Neumann, P. J., Sandberg, E. A., Araki, S. S., Kuntz, K. M., Feeny, D., & Weinstein, M. C. (2000). A comparison of HUI2 and HUI3 utility scores in Alzheimer's disease. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 20(4), 413–422. https://doi.org/10.1177/0272989X0002000405 [Clinical; Construct Validity]

Neumann P. J. (2005). Health utilities in Alzheimer's disease and implications for cost-effectiveness analysis. PharmacoEconomics, 23(6), 537–541. https://doi.org/10.2165/00019053-200523060-00002 [HUI2; HUI3; Construct Validity]

Ngwira, L. G., Khan, K., Maheswaran, H., Sande, L., Nyondo-Mipando, L., Smith, S. C., Petrou, S., & Niessen, L. (2021). A Systematic Literature Review of Preference-Based Health-Related Quality-of-Life Measures Applied and Validated for Use in Childhood and Adolescent Populations in Sub-Saharan Africa. Value in Health Regional Issues, 25, 37–47. https://doi.org/10.1016/j.vhri.2020.11.009 [HUI2; HUI3; Review Article]

Nichol, G., Stiell, I. G., Hebert, P., Wells, G. A., Vandemheen, K., & Laupacis, A. (1999). What is the quality of life for survivors of cardiac arrest? A prospective study. Academic Emergency Medicine: Official Journal of the Society for Academic Emergency Medicine6(2), 95–102. https://doi.org/10.1111/j.1553-2712.1999.tb01044.x [HUI2; Clinical; Construct Validity; Evaluative]

Nichol, M. B., Sengupta, N., & Globe, D. R. (2001). Evaluating quality-adjusted life years: estimation of the health utility index (HUI2) from the SF-36. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 21(2), 105-112. https://journals.sagepub.com/doi/abs/10.1177/0272989X0102100203 [HUI2; Construct Validity; Scoring]

Noel, C. W., Lee, D. J., Kong, Q., Xu, W., Simpson, C., Brown, D., Gilbert, R. W., Gullane, P. J., Irish, J. C., Huang, S. H., O'Sullivan, B., Goldstein, D. P., & de Almeida, J. R. (2015). Comparison of Health State Utility Measures in Patients With Head and Neck Cancer. JAMA Otolaryngology-- Head & Neck Surgery, 141(8), 696–703. https://doi.org/10.1001/jamaoto.2015.1314 [HUI3; Construct Validity]

Nosyk, B., Sun, H., Bansback, N., Guh, D. P., Li, X., Barnett, P., Bayoumi, A., Griffin, S., Joyce, V., Holodniy, M., Owens, D. K., & Anis, A. H. (2009). The concurrent validity and responsiveness of the health utilities index (HUI 3) among patients with advanced HIV/AIDS. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 18(7), 815–824.
https://doi.org/10.1007/s11136-009-9504-0 [HUI3; Construct Validity; Responsiveness]

Odame, I., Duckworth, J., Talsma, D., Beaumont, L., Furlong, W., Webber, C., & Barr, R. (2006). Osteopenia, physical activity and health-related quality of life in survivors of brain tumors treated in childhood. Pediatric Blood & Cancer, 46(3), 357–362. https://doi.org/10.1002/pbc.20512 [HUI2; HUI3; Construct Validity]

Oluboyede, Y., Tubeuf, S., & McCabe, C. (2013). Measuring health outcomes of adolescents: report from a pilot study. The European Journal of Health Economics: HEPAC: Health Economics in Prevention and Care, 14(1), 11–19. https://doi.org/10.1007/s10198-011-0340-0 [HUI2; HUI3; Reliability]

Oostenbrink, R., A Moll, H. A., & Essink-Bot, M. L. (2002). The EQ-5D and the Health Utilities Index for permanent sequelae after meningitis: a head-to-head comparison. Journal of Clinical Epidemiology, 55(8), 791–799. https://doi.org/10.1016/s0895-4356(02)00448-1 [HUI2; HUI3; Construct Validity]

Oostenbrink, R., Oostenbrink, J. B., Moons, K. G., Derksen-Lubsen, G., Essink-Bot, M. L., Grobbee, D. E., Redekop, W. K., & Moll, H. A. (2002). Cost-utility analysis of patient care in children with meningeal signs. International Journal of Technology Assessment in Health Care, 18(3), 485–496. https://www.researchgate.net/scientific-contributions/Jan-B-Oostenbrink-38155509 [HUI3; Construct Validity]

O'Reilly, R., Yokoyama, S., Boyle, J., Kwong, J. C., McGeer, A., To, T., & Sander, B. (2022). The impact of acute pneumococcal disease on health state utility values: a systematic review. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 31(2), 375–388. https://doi.org/10.1007/s11136-021-02941-y [HUI2; HUI3; Review Article]

Palmer, C. S., Niparko, J. K., Wyatt, J. R., Rothman, M., & de Lissovoy, G. (1999). A prospective study of the cost-utility of the multichannel cochlear implant. Archives of Otolaryngology--Head & Neck Surgery, 125(11), 1221–1228. https://doi.org/10.1001/archotol.125.11.1221 [HUI2; Clinical; Evaluative]

Papaioannou, A., Kennedy, C. C., Ioannidis, G., Sawka, A., Hopman, W. M., Pickard, L., Brown, J. P., Josse, R. G., Kaiser, S., Anastassiades, T., Goltzman, D., Papadimitropoulos, M., Tenenhouse, A., Prior, J. C., Olszynski, W. P., Adachi, J. D., & CaMos Study Group (2009). The impact of incident fractures on health-related quality of life: 5 years of data from the Canadian Multicentre Osteoporosis Study. Osteoporosis International, 20(5), 703–714. https://doi.org/10.1007/s00198-008-0743-7 [HUI2; HUI3; Construct Validity; Responsiveness]

Parsons, S. K., & Mayer, D. K. (2004). Health-related quality of life assessment in hematologic disease. Hematology/Oncology Clinics of North America, 18(6), 1235–viii. https://doi.org/10.1016/j.hoc.2004.06.017 [HUI2; HUI3; Review Article]

Payakachat, N., Tilford, J. M., Brouwer, W. B., van Exel, N. J., & Grosse, S. D. (2011). Measuring health and well-being effects in family caregivers of children with craniofacial malformations. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 20(9), 1487–1495. https://doi.org/10.1007/s11136-011-9870-2 [HUI3; Construct Validity]

Payakachat, N., Tilford, J. M., Kovacs, E., & Kuhlthau, K. (2012). Autism spectrum disorders: a review of measures for clinical, health services and cost-effectiveness applications. Expert Review of Pharmacoeconomics & Outcomes Research, 12(4), 485–503. https://doi.org/10.1586/erp.12.29 [HUI2; HUI3; Review Article]

Payakachat, N., Tilford, J. M., Kuhlthau, K. A., van Exel, N. J., Kovacs, E., Bellando, J., Pyne, J. M., & Brouwer, W. B. (2014). Predicting health utilities for children with autism spectrum disorders. Autism Research: Official Journal of the International Society for Autism Research, 7(6), 649–663. https://doi.org/10.1002/aur.1409 [HUI3; Construct Validity]

Peasgood, T., Herrmann, K., Kanis, J. A., & Brazier, J. E. (2009). An updated systematic review of Health State Utility Values for osteoporosis related conditions. Osteoporosis International, 20(6), 853–868. https://doi.org/10.1007/s00198-009-0844-y [HUI2; HUI3; Review Article]

Penn, A., Shortman, R. I., Lowis, S. P., Stevens, M. C., Hunt, L. P., McCarter, R. J., Curran, A. L., & Sharples, P. M. (2010). Child-related determinants of health-related quality of life in children with brain tumours 1 year after diagnosis. Pediatric Blood & Cancer, 55(7), 1377–1385. https://doi.org/10.1002/pbc.22743 [HUI3; Construct Validity]

Penn, A., Lowis, S. P., Stevens, M. C., Shortman, R. I., Hunt, L. P., McCarter, R. J., Curran, A. L., & Sharples, P. M. (2011). A detailed prospective longitudinal assessment of health status in children with brain tumors in the first year after diagnosis. Journal of Pediatric Hematology/Oncology, 33(8), 592–599. https://doi.org/10.1097/MPH.0b013e31821388c0 [HUI3; Construct Validity; Responsiveness; Inter-rater agreement; Proxy Assessment]

Peetsold, M. G., Huisman, J., Hofman, V. E., Heij, H. A., Raat, H., & Gemke, R. J. (2009). Psychological outcome and quality of life in children born with congenital diaphragmatic hernia. Archives of Disease in Childhood, 94(11), 834–840. https://doi.org/10.1136/adc.2008.156158 [HUI3; Construct Validity]

Penner, M., Xie, W. Y., Binepal, N., Switzer, L., & Fehlings, D. (2013). Characteristics of pain in children and youth with cerebral palsy. Pediatrics, 132(2), e407–e413. https://doi.org/10.1542/peds.2013-0224 [HUI3 pain; Construct Validity]

Petrou, S., McCann, D., Law, C. M., Watkin, P. M., Worsfold, S., & Kennedy, C. R. (2007). Health status and health-related quality of life preference-based outcomes of children who are aged 7 to 9 years and have bilateral permanent childhood hearing impairment. Pediatrics, 120(5), 1044–1052. https://doi.org/10.1542/peds.2007-0159 [HUI3; Construct Validity; Hearing]

Petrou, S., & Kupek, E. (2009). Estimating preference-based health utilities index mark 3 utility scores for childhood conditions in England and Scotland. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 29(3), 291–303. https://doi.org/10.1177/0272989X08327398 [HUI3; Construct Validity]

Petrou, S., Abangma, G., Johnson, S., Wolke, D., & Marlow, N. (2009). Costs and health utilities associated with extremely preterm birth: evidence from the EPICure study. Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research, 12(8), 1124–1134. https://doi.org/10.1111/j.1524-4733.2009.00580.x [HUI3; Construct Validity]

Petrou, S., Dakin, H., Abangma, G., Benge, S., & Williamson, I. (2010). Cost-utility analysis of topical intranasal steroids for otitis media with effusion based on evidence from the GNOME trial. Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research, 13(5), 543–551. https://doi.org/10.1111/j.1524-4733.2010.00711.x [HUI2; HUI3; Construct Validity; Responsiveness]

Petrou, S., Johnson, S., Wolke, D., Hollis, C., Kochhar, P., & Marlow, N. (2010). Economic costs and preference-based health-related quality of life outcomes associated with childhood psychiatric disorders. The British Journal of Psychiatry: the Journal of Mental Science, 197(5), 395–404. https://doi.org/10.1192/bjp.bp.110.081307 [HUI2- UK Scoring; HUI3; Construct Validity]

Pickard, A. S., Johnson, J. A., Feeny, D. H., Shuaib, A., Carriere, K. C., & Nasser, A. M. (2004). Agreement between patient and proxy assessments of health-related quality of life after stroke using the EQ-5D and Health Utilities Index. Stroke, 35(2), 607–612. https://doi.org/10.1161/01.STR.0000110984.91157.BD [HUI2; HUI3; Inter-rater Reliability]

Pickard, A. S., Johnson, J. A., & Feeny, D. H. (2005). Responsiveness of generic health-related quality of life measures in stroke. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 14(1), 207–219. https://doi.org/10.1007/s11136-004-3928-3 [HUI2; HUI3; Construct Validity; Responsiveness]

Pinto, A. M., Kuppermann, M., Nakagawa, S., Vittinghoff, E., Wing, R. R., Kusek, J. W., Herman, W. H., & Subak, L. L. (2011). Comparison and correlates of three preference-based health-related quality-of-life measures among overweight and obese women with urinary incontinence. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 20(10), 1655–1662. https://doi.org/10.1007/s11136-011-9896-5 [HUI3; Construct Validity]

Pinto, A. M., Subak, L. L., Nakagawa, S., Vittinghoff, E., Wing, R. R., Kusek, J. W., Herman, W. H., West, D. S., & Kuppermann, M. (2012). The effect of weight loss on changes in health-related quality of life among overweight and obese women with urinary incontinence. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 21(10), 1685–1694. https://doi.org/10.1007/s11136-011-0086-2 [HUI3; Construct Validity; Responsiveness]

Ploeg, J., Brazil, K., Hutchison, B., Kaczorowski, J., Dalby, D. M., Goldsmith, C. H., & Furlong, W. (2010). Effect of preventive primary care outreach on health related quality of life among older adults at risk of functional decline: randomised controlled trial. BMJ (Clinical Research Edition), 340, c1480. https://doi.org/10.1136/bmj.c1480 [HUI3; Construct Validity; Responsiveness]

Pogany, L., Barr, R. D., Shaw, A., Speechley, K. N., Barrera, M., & Maunsell, E. (2006). Health status in survivors of cancer in childhood and adolescence. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 15(1), 143–157. https://doi.org/10.1007/s11136-005-0198-7 [HUI3; Construct Validity]

Pohar, S. L., Jones, C. A., Warren, S., Turpin, K. V., & Warren, K. (2007). Health status and health care utilization of multiple sclerosis in Canada. The Canadian Journal of Neurological Sciences, 34(2), 167–174. https://doi.org/10.1017/s0317167100005990 [HUI3; Construct Validity]

Polinder, S., Haagsma, J. A., Bonsel, G., Essink-Bot, M. L., Toet, H., & van Beeck, E. F. (2010). The measurement of long-term health-related quality of life after injury: comparison of EQ-5D and the health utilities index. Injury Prevention: Journal of the International Society for Child and Adolescent Injury Prevention, 16(3), 147–153. https://doi.org/10.1136/ip.2009.022418 [HUI2; HUI3; Construct Validity]

Polsky, D., Keating, N. L., Weeks, J. C., & Schulman, K. A. (2002). Patient choice of breast cancer treatment: impact on health state preferences. Medical Care, 40(11), 1068–1079. https://doi.org/10.1097/00005650-200211000-00008 [HUI3; Construct Validity; Responsiveness]

Portwine, C., Rae, C., Davis, J., Teira, P., Schechter, T., Lewis, V., Mitchell, D., Wall, D. A., Pullenayegum, E., & Barr, R. D. (2016). Health-Related Quality of Life in Survivors of High-Risk Neuroblastoma After Stem Cell Transplant: A National Population-Based Perspective. Pediatric Blood & Cancer, 63(9), 1615–1621. https://doi.org/10.1002/pbc.26063 [HUI2; HUI3; Construct Validity; Inter-rate Reliability/Agreement]

Post, P. N., Stiggelbout, A. M., & Wakker, P. P. (2001). The utility of health states after stroke: a systematic review of the literature. Stroke, 32(6), 1425–1429. https://doi.org/10.1161/01.str.32.6.1425  [HUI2; HUI3; Construct Validity; Review Article]

Pressler, S. J., Eckert, G. J., Morrison, G. C., Murray, M. D., & Oldridge, N. B. (2011). Evaluation of the Health Utilities Index Mark-3 in heart failure. Journal of Cardiac Failure, 17(2), 143–150. https://doi.org/10.1016/j.cardfail.2010.08.014 [HUI3; Construct Validity; Responsiveness; Internal Consistency Reliability; Test-Retest Reliability]

Prince, F. H., Geerdink, L. M., Borsboom, G. J., Twilt, M., van Rossum, M. A., Hoppenreijs, E. P., Cate, R. T., Koopman-Keemink, Y., van Santen-Hoeufft, M., Raat, H., & van Suijlekom-Smit, L. W. (2010). Major improvements in health-related quality of life during the use of etanercept in patients with previously refractory juvenile idiopathic arthritis. Annals of the rheumatic diseases, 69(1), 138–142. https://doi.org/10.1136/ard.2009.111260 [HUI3; Construct Validity; Responsiveness]

Quinn, G. E., Dobson, V., Saigal, S., Phelps, D. L., Hardy, R. J., Tung, B., Summers, C. G., Palmer, E. A., & CRYO-ROP Cooperative Group (2004). Health-related quality of life at age 10 years in very low-birth-weight children with and without threshold retinopathy of prematurity. Archives of Ophthalmology, 122(11), 1659–1666. https://doi.org/10.1001/archopht.122.11.1659 [HUI3; Construct Validity]

Raat, H., Bonsel, G. J., Essink-Bot, M. L., Landgraf, J. M., & Gemke, R. J. (2002). Reliability and validity of comprehensive health status measures in children: The Child Health Questionnaire in relation to the Health Utilities Index. Journal of Clinical Epidemiology, 55(1), 67–76. https://doi.org/10.1016/s0895-4356(01)00411-5 [HUI2, Reliability, Construct Validity]

Raat, H., Bonsel, G. J., Hoogeveen, W. C., Essink-Bot, M. L., & Dutch HUI Group (2004). Feasibility and reliability of a mailed questionnaire to obtain visual analogue scale valuations for health states defined by the Health Utilities Index Mark 3. Medical Care, 42(1), 13–18. https://doi.org/10.1097/01.mlr.0000102297.06535.e7 [HUI3, Generalizability, Scoring]

Raat, H., Mohangoo, A. D., & Grootenhuis, M. A. (2006). Pediatric health-related quality of life questionnaires in clinical trials. Current Opinion in Allergy and Clinical Immunology, 6(3), 180–185. https://doi.org/10.1097/01.all.0000225157.67897.c2 [HU2; HUI3; Comprehensive Health Status Classification System for Pre-School Children, CHSCS-PS; Review Article]

Raat, H., van Rossem, L., Jaddoe, V. W., Landgraf, J. M., Feeny, D., Moll, H. A., Hofman, A., & Mackenbach, J. P. (2010). The Generation R study: a candidate gene study and genome-wide association study (GWAS) on health-related quality of life (HRQOL) of mothers and young children. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 19(10), 1439–1446. https://doi.org/10.1007/s11136-010-9773-7 [Comprehensive Health Status Classification System for Pre-School Children, CHSCS-PS]

Rae, C., Furlong, W., Horsman, J., Pullenayegum, E., Demers, C., St-Louis, J., Lillicrap, D., & Barr, R. (2013). Bleeding disorders, menorrhagia and iron deficiency: impacts on health-related quality of life. Haemophilia: the Official Journal of the World Federation of Hemophilia, 19(3), 385–391. https://doi.org/10.1111/hae.12014 [HUI3; Construct Validity]

Rae, C., Furlong, W., Jankovic, M., Moghrabi, A., Naqvi, A., Sala, A., Samson, Y., DePauw, S., Feeny, D., & Barr, R. (2014). Economic evaluation of treatment for acute lymphoblastic leukaemia in childhood. European Journal of Cancer Care, 23(6), 779–785. https://doi.org/10.1111/ecc.12173 [HUI3; Construct Validity]

Rae, C., Benger, A., Fowler, J. A., MacEachern, J., Pullenayegum, E., Stryker, M., & Barr, R. D. (2016). Need and Use of Healthcare Services in Survivors of Hodgkin Lymphoma. Journal of Adolescent and Young Adult Oncology, 5(2), 174–180. https://doi.org/10.1089/jayao.2015.0039 [HUI2; HUI3; Construct Validity]

Rae, C., Furlong, W., Feeny, D., Couchman, R., Silverman, L., Sallan, S., Laverdiere, C., Clavell, L., Michon, B., Kelly, K., Larsen, E., Pullenayegum, E., Athale, U., & Barr, R. (2018). Health Status and Health-related Quality of Life Measurement in Pediatric Cancer Clinical Trials: An Examination of the DFCI 00-01 Acute Lymphoblastic Leukemia Protocol. Journal of Pediatric Hematology/Oncology, 40(8), 580–587. https://doi.org/10.1097/MPH.0000000000001235 [HUI2; HUI3; Construct Validity]

Raina, P., O'Donnell, M., Rosenbaum, P., Brehaut, J., Walter, S. D., Russell, D., Swinton, M., Zhu, B., & Wood, E. (2005). The health and well-being of caregivers of children with cerebral palsy. Pediatrics, 115(6), e626–e636. https://doi.org/10.1542/peds.2004-1689 [HUI3; Construct Validity]

Raisch, D. W., Feeney, P., Goff, D. C., Jr, Narayan, K. M., O'Connor, P. J., Zhang, P., Hire, D. G., & Sullivan, M. D. (2012). Baseline comparison of three health utility measures and the feeling thermometer among participants in the Action to Control Cardiovascular Risk in Diabetes trial. Cardiovascular Diabetology, 11, 35. https://doi.org/10.1186/1475-2840-11-35 [HU2; HUI3; Construct Validity]

Ramakers, G. G., Smulders, Y. E., van Zon, A., Kraaijenga, V. J., Stegeman, I., Van Zanten, G. A., & Grolman, W. (2016). Agreement between health utility instruments in cochlear implantation. Clinical Otolaryngology, 41(6), 737–743. https://doi.org/10.1111/coa.12626 [HUI3; Construct Validity; Responsiveness]

Ramsey, S. D., Andersen, M. R., Etzioni, R., Moinpour, C., Peacock, S., Potosky, A., & Urban, N. (2000). Quality of life in survivors of colorectal carcinoma. Cancer, 88(6), 1294–1303. https://doi.org/10.1002/(SICI)1097-0142(20000315)88:6<1294::AID-CNCR4>3.0.CO;2-M [HUI3; Clinical; Construct Validity; Predictive Validity]

Rashidi, A. A., Anis, A. H., & Marra, C. A. (2006). Do visual analogue scale (VAS) derived standard gamble (SG) utilities agree with Health Utilities Index utilities? A comparison of patient and community preferences for health status in rheumatoid arthritis patients. Health and Quality of Life Outcomes, 4, 25. https://doi.org/10.1186/1477-7525-4-25 [HUI2; HUI3; Construct Validity]

Raynauld, J. P., Torrance, G. W., Band, P. A., Goldsmith, C. H., Tugwell, P., Walker, V., Schultz, M., Bellamy, N., & Canadian Knee OA Study Group (2002). A prospective, randomized, pragmatic, health outcomes trial evaluating the incorporation of hylan G-F 20 into the treatment paradigm for patients with knee osteoarthritis (Part 1 of 2): clinical results. Osteoarthritis and Cartilage, 10(7), 506–517. https://doi.org/10.1053/joca.2002.0798 [HUI3; Construct Validity; Responsiveness]

Redouane, B., Cohen, E., Stephens, D., Keilty, K., Mouzaki, M., Narayanan, U., Moraes, T., & Amin, R. (2016). Parental Perceptions of Quality of Life in Children on Long-Term Ventilation at Home as Compared to Enterostomy Tubes. PloS One, 11(2), e0149999. https://doi.org/10.1371/journal.pone.0149999 [HUI2; HUI3; Construct Validity]

Revicki, D. A., Simpson, K. N., Wu, A. W., & LaVallee, R. L. (1995). Evaluating the quality of life associated with rifabutin prophylaxis for Mycobacterium avium complex in persons with AIDS: combining Q-TWiST and multiattribute utility techniques. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 4(4), 309–318. https://doi.org/10.1007/BF01593883 [HUI2; Clinical; Construct Validity; Evaluative]

Revicki, D. A., Leidy, N. K., Brennan-Diemer, F., Thompson, C., & Togias, A. (1998). Development and preliminary validation of the multiattribute Rhinitis Symptom Utility Index. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 7(8), 693–702. https://doi.org/10.1023/a:1008860113818 [HUI2; Construct Validity]

Revicki, D. A., Leidy, N. K., Brennan-Diemer, F., Sorensen, S., & Togias, A. (1998). Integrating patient preferences into health outcomes assessment: the multiattribute Asthma Symptom Utility Index. Chest, 114(4), 998–1007. https://doi.org/10.1378/chest.114.4.998 [HUI2; Construct Validity]

Revicki, D. A., Feeny, D., Hunt, T. L., & Cole, B. F. (2006). Analyzing oncology clinical trial data using the Q-TWiST method: clinical importance and sources for health state preference data. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 15(3), 411–423. https://doi.org/10.1007/s11136-005-1579-7

Stephens R. (2006). Clinically important differences in Q-TWIST - one twist too many? Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 15(3), 425–426. https://doi.org/10.1007/s11136-005-4672-z

Revicki, D.A., Feeny, D., Hunt, T.L., & Cole, B. (2006). Clinically Important Differences in Q-TWiST - One TWiST Too Many, or TWiST and Shout? Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 15(3), 427-428. https://doi.org/10.1007/s11136-005-4673-y [HUI2; HUI3; Interpretation]

Revicki, D. A., Brandenburg, N., Matza, L., Hornbrook, M. C., & Feeny, D. (2008). Health-related quality of life and utilities in primary-care patients with generalized anxiety disorder. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 17(10), 1285–1294. https://doi.org/10.1007/s11136-008-9406-6 [HUI2; HUI3; Construct Validity]

Revicki, D. A., Travers, K., Wyrwich, K. W., Svedsäter, H., Locklear, J., Mattera, M. S., Sheehan, D. V., & Montgomery, S. (2012). Humanistic and economic burden of generalized anxiety disorder in North America and Europe. Journal of Affective Disorders, 140(2), 103–112. https://doi.org/10.1016/j.jad.2011.11.014 [HUI2; HUI3; Review Article]

Ritvo, P., Irvine, J., Naglie, G., Tomlinson, G., Bezjak, A., Matthew, A., Trachtenberg, J., & Krahn, M. (2005). Reliability and validity of the PORPUS, a combined psychometric and utility-based quality-of-life instrument for prostate cancer. Journal of Clinical Epidemiology, 58(5), 466–474. https://doi.org/10.1016/j.jclinepi.2004.08.019 [HUI3; Construct Validity]

Roberts, G., Anderson, P. J., Cheong, J., Doyle, L. W., & Victorian Infant Collaborative Study Group (2011). Parent-reported health in extremely preterm and extremely low-birthweight children at age 8 years compared with comparison children born at term. Developmental Medicine and Child Neurology, 53(10), 927–932. https://doi.org/10.1111/j.1469-8749.2011.04025.x [HUI2; Construct Validity; Screening]

Roberts, G., Burnett, A. C., Lee, K. J., Cheong, J., Wood, S. J., Anderson, P. J., Doyle, L. W., & Victorian Infant Collaborative Study Group (2013). Quality of life at age 18 years after extremely preterm birth in the post-surfactant era. The Journal of Pediatrics, 163(4), 1008–13.e1. https://doi.org/10.1016/j.jpeds.2013.05.048 [HUI3; Construct Validity]

Roberts, V. L., Stewart, J., Issa, M., Lake, B., & Melis, R. (2005). Triple therapy with glimepiride in patients with type 2 diabetes mellitus inadequately controlled by metformin and a thiazolidinedione: results of a 30-week, randomized, double-blind, placebo-controlled, parallel-group study. Clinical Therapeutics, 27(10), 1535–1547. https://doi.org/10.1016/j.clinthera.2005.10.017 [HUI3: Construct Validity]

Robertson, C. M., Watt, J. M., Joffe, A. R., Murphy, D. B., Nagy, J. M., McLean, D. E., Pain, K. S., & Saunders, L. D. (2001). Childhood morbidity after severe traumatic brain injury: Increased detection with the Multiattribute Health Status Classification. Pediatric Critical Care Medicine: a Journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies, 2(2), 145–150. https://doi.org/10.1097/00130478-200104000-00009 [HUI2; Construct Validity; Inter-rater Agreement]

Rosenbaum P. (2009). The quality of life for the young adult with neurodisability: overview and reprise. Developmental Medicine and Child Neurology, 51(8), 679–682. https://doi.org/10.1111/j.1469-8749.2009.03323.x [HUI2; HUI3; Review Article]

Rosenbaum, P. L., Livingston, M. H., Palisano, R. J., Galuppi, B. E., & Russell, D. J. (2007). Quality of life and health-related quality of life of adolescents with cerebral palsy. Developmental Medicine and Child Neurology, 49(7), 516–521. https://doi.org/10.1111/j.1469-8749.2007.00516.x [HUI3; Construct Validity]

Rosenheck, R. A., Leslie, D. L., Sindelar, J. L., Miller, E. A., Tariot, P. N., Dagerman, K. S., Davis, S. M., Lebowitz, B. D., Rabins, P., Hsiao, J. K., Lieberman, J. A., Schneider, L. S., & Clinical Antipsychotic Trial of Intervention Effectiveness-Alzheimer's Disease (CATIE-AD) investigators (2007). Cost-benefit analysis of second-generation antipsychotics and placebo in a randomized trial of the treatment of psychosis and aggression in Alzheimer disease. Archives of General Psychiatry, 64(11), 1259–1268. https://doi.org/10.1001/archpsyc.64.11.1259 [HUI3; Construct Validity]

Rosner, A. J., Grima, D. T., Torrance, G. W., Bradley, C., Adachi, J. D., Sebaldt, R. J., & Willison, D. J. (1998). Cost effectiveness of multi-therapy treatment strategies in the prevention of vertebral fractures in postmenopausal women with osteoporosis. PharmacoEconomics, 14(5), 559–573. https://doi.org/10.2165/00019053-199814050-00007 [HUI2; Clinical; Evaluative]

Ruchlin, H. S., & Insinga, R. P. (2008). A review of health-utility data for osteoarthritis: implications for clinical trial-based evaluation. PharmacoEconomics, 26(11), 925–935. https://doi.org/10.2165/00019053-200826110-00005 [HUI2; HUI3; Construct Validity; Review Article]

Saigal, S., Feeny, D., Rosenbaum, P., Furlong, W., Burrows, E., & Stoskopf, B. (1996). Self-perceived health status and health-related quality of life of extremely low-birth-weight infants at adolescence. JAMA, 276(6), 453–459. https://jamanetwork.com/journals/jama/article-abstract/406310 [HUI2; Clinical; Construct Validity]

Saigal, S., Rosenbaum, P. L., Feeny, D., Burrows, E., Furlong, W., Stoskopf, B. L., & Hoult, L. (2000). Parental perspectives of the health status and health-related quality of life of teen-aged children who were extremely low birth weight and term controls. Pediatrics, 105(3 Pt 1), 569–574. https://doi.org/10.1542/peds.105.3.569 [HUI2; Clinical; Construct Validity]

Saigal, S., Rosenbaum, P., Stoskopf, B., Hoult, L., Furlong, W., Feeny, D., Burrows, E., & Torrance, G. (1994). Comprehensive assessment of the health status of extremely low birth weight children at eight years of age: comparison with a reference group. The Journal of Pediatrics, 125(3), 411–417. https://doi.org/10.1016/s0022-3476(05)83288-3 [HUI2; Clinical; Construct Validity]

Saigal, S., Feeny, D., Furlong, W., Rosenbaum, P., Burrows, E., & Torrance, G. (1994). Comparison of the health-related quality of life of extremely low birth weight children and a reference group of children at age eight years. The Journal of Pediatrics, 125(3), 418–425. https://doi.org/10.1016/s0022-3476(05)83289-5 [HUI2; Clinical; Construct Validity]

Saigal S. (2000). Perception of health status and quality of life of extremely low-birth weight survivors. The consumer, the provider, and the child. Clinics in Perinatology, 27(2), 403–x. https://doi.org/10.1016/s0095-5108(05)70028-2 [HUI2; Construct Validity; Review Article]

Saigal, S., Rosenbaum, P., Stoskopf, B., Hoult, L., Furlong, W., Feeny, D., & Hagan, R. (2005). Development, reliability and validity of a new measure of overall health for pre-school children. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 14(1), 243–257. https://doi.org/10.1007/s11136-004-4228-7 [Comprehensive Health Status Classification System for Pre-School Children, CHSCS-PS; Construct Validity; Reliability]

Saigal, S., Stoskopf, B., Pinelli, J., Streiner, D., Hoult, L., Paneth, N., & Goddeeris, J. (2006). Self-perceived health-related quality of life of former extremely low birth weight infants at young adulthood. Pediatrics, 118(3), 1140–1148. https://doi.org/10.1542/peds.2006-0119 [HUI2; Construct Validity]

Saigal, S., & Tyson, J. (2008). Measurement of quality of life of survivors of neonatal intensive care: critique and implications. Seminars in Perinatology, 32(1), 59–66. https://doi.org/10.1053/j.semperi.2007.12.007 [HUI2; HUI3; Review Article]

Saigal S. (2013). Quality of life of former premature infants during adolescence and beyond. Early Human Development, 89(4), 209–213. https://doi.org/10.1016/j.earlhumdev.2013.01.012 [HUI2; HUI3; Review Article]

Saigal, S., Ferro, M. A., Van Lieshout, R. J., Schmidt, L. A., Morrison, K. M., & Boyle, M. H. (2016). Health-Related Quality of Life Trajectories of Extremely Low Birth Weight Survivors into Adulthood. The Journal of Pediatrics, 179, 68–73.e1. https://doi.org/10.1016/j.jpeds.2016.08.018 [HUI3; Construct Validity]  

Saiguay, W., & Sakthong, P. (2013). The psychometric testing of the Thai version of the Health Utilities Index in patients with ischemic heart disease. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 22(7), 1753–1759. https://doi.org/10.1007/s11136-012-0297-1 [HUI2; HUI3; Construct Validity; Test-Retest Reliability; Responsiveness; Translation]

Santana, M. J., & Feeny, D. H. (2009). Using the health utilities index in routine clinical care: process, feasibility, and acceptability: a randomized controlled trial. The Patient, 2(3), 159–167. https://doi.org/10.2165/11313620-000000000-00000 [HUI2; HUI3; Construct Validity; Routine Use]

Santana, M. J., Feeny, D., Jackson, K., Weinkauf, J., & Lien, D. (2009). Improvement in health-related quality of life after lung transplantation. Canadian Respiratory Journal, 16(5), 153–158. https://doi.org/10.1155/2009/843215 [HUI2; HUI3; Construct Validity; Responsiveness]

Santana, M. J., Feeny, D., Johnson, J. A., McAlister, F. A., Kim, D., Weinkauf, J., & Lien, D. C. (2010). Assessing the use of health-related quality of life measures in the routine clinical care of lung-transplant patients. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 19(3), 371–379. https://doi.org/10.1007/s11136-010-9599-3 [HUI2; HUI3; Construct Validity; Interpretation; Routine Use]

Santana, M. J., Feeny, D., Weinkauf, J., Nador, R., Kapasi, A., Jackson, K., Schafenacker, M., Zuk, D., & Lien, D. (2010). The use of patient-reported outcomes becomes standard practice in the routine clinical care of lung-heart transplant patients. Patient Related Outcome Measures, 1, 93–105. https://doi.org/10.2147/PROM.S11943 [HUI2; HUI3; Construct Validity; Routine Use]

Santana, M. J., Feeny, D., Ghosh, S., Nador, R. G., Weinkauf, J., Jackson, K., Schafenacker, M., Zuk, D., Hubert, G., & Lien, D. (2010). The construct validity of the health utilities index mark 3 in assessing health status in lung transplantation. Health and Quality of Life Outcomes, 8, 110. https://doi.org/10.1186/1477-7525-8-110 [HUI3; Construct Validity]

Santana, M. J., Feeny, D., Ghosh, S., & Lien, D. C. (2012). Patient-reported outcome 2 years after lung transplantation: does the underlying diagnosis matter? Patient Related Outcome Measures, 3, 79–84. https://doi.org/10.2147/PROM.S32399 [HUI3; Construct Validity]

Santana, M. J., S-Parrilla, J., Mirus, J., Loadman, M., Lien, D. C., & Feeny, D. (2013). An assessment of the effects of Iyengar yoga practice on the health-related quality of life of patients with chronic respiratory diseases: a pilot study. Canadian Respiratory Journal, 20(2), e17–e23. https://doi.org/10.1155/2013/265406 [HUI3; Construct Validity; Responsiveness]

Sawka, A. M., Thabane, L., Papaioannou, A., Gafni, A., Ioannidis, G., Papadimitropoulos, E. A., Hopman, W. M., Cranney, A., Hanley, D. A., Pickard, L., Adachi, J. D., & CaMos Investigators (2005). Health-related quality of life measurements in elderly Canadians with osteoporosis compared to other chronic medical conditions: a population-based study from the Canadian Multicentre Osteoporosis Study (CaMos). Osteoporosis International, 16(12), 1836–1840. https://doi.org/10.1007/s00198-005-1949-6 [HUI3; Construct Validity]

Schiariti, V., Houbè, J. S., Lisonkova, S., Klassen, A. F., & Lee, S. K. (2007). Caregiver-reported health outcomes of preschool children born at 28 to 32 weeks' gestation. Journal of Developmental and Behavioral Pediatrics, 28(1), 9–15. https://doi.org/10.1097/01.DBP.0000257516.52459.33 [Comprehensive Health Status Classification System for Pre-School Children, CHSCS-PS; Construct Validity]

Schiariti, V., Klassen, A. F., Houbé, J. S., Synnes, A., Lisonkova, S., & Lee, S. K. (2008). Perinatal characteristics and parents' perspective of health status of NICU graduates born at term. Journal of Perinatology: Official Journal of the California Perinatal Association, 28(5), 368–376. https://doi.org/10.1038/jp.2008.9 [Comprehensive Health Status Classification System for Pre-School Children, CHSCS-PS; Construct Validity]

Schneider, H. P., Maclennan, A. H., & Feeny, D. (2008). Assessment of health-related quality of life in menopause and aging. Climacteric: the Journal of the International Menopause Society, 11(2), 93–107. https://doi.org/10.1080/13697130801936739 [HUI; Review Article]

Schünemann, H. J., Guyatt, G. H., Griffith, L., Stubbing, D., & Goldstein, R. (2002). A randomized controlled trial to evaluate the effect of informing patients about their pretreatment responses to two respiratory questionnaires. Chest, 122(5), 1701–1708. https://doi.org/10.1378/chest.122.5.1701 [HUI3; Construct Validity; Responsiveness]

Schünemann, H. J., Griffith, L., Stubbing, D., Goldstein, R., & Guyatt, G. H. (2003). A clinical trial to evaluate the measurement properties of 2 direct preference instruments administered with and without hypothetical marker states. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 23(2), 140–149. https://doi.org/10.1177/0272989X03251243 [HUI3, Clinical, Construct Validity, Responsiveness]

Schünemann, H. J., Armstrong, D., Degl'innocenti, A., Wiklund, I., Fallone, C. A., Tanser, L., Van Zanten, S. V., Heels-Ansdell, D., El-Dika, S., Chiba, N., Barkun, A. N., Austin, P., & Guyatt, G. H. (2004). A randomized multicenter trial to evaluate simple utility elicitation techniques in patients with gastroesophageal reflux disease. Medical Care, 42(11), 1132–1142. https://doi.org/10.1097/00005650-200411000-00013 [HUI3; Construct Validity]

Schünemann, H. J., Goldstein, R., Mador, M. J., McKim, D., Stahl, E., Puhan, M., Griffith, L. E., Grant, B., Austin, P., Collins, R., & Guyatt, G. H. (2005). A randomised trial to evaluate the self-administered standardised chronic respiratory questionnaire. The European Respiratory Journal, 25(1), 31–40. https://doi.org/10.1183/09031936.04.00029704 [HUI3; Construct Validity; Responsiveness]

Schünemann, H. J., Goldstein, R., Mador, M. J., McKim, D., Stahl, E., Griffith, L. E., Bayoumi, A. M., Austin, P., & Guyatt, G. H. (2006). Do clinical marker states improve responsiveness and construct validity of the standard gamble and feeling thermometer: a randomized multi-center trial in patients with chronic respiratory disease. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 15(1), 1–14. https://doi.org/10.1007/s11136-005-0126-x [HUI3; Construct Validity]

Shaw, A. K., Morrison, H. I., Speechley, K. N., Maunsell, E., Barrera, M., Schanzer, D., Pogany, L., & Desmeules, M. (2004). The late effects study: design and subject representativeness of a Canadian, multi-centre study of late effects of childhood cancer. Chronic diseases in Canada, 25(3-4), 119–126. https://europepmc.org/article/med/15841852 [HUI3]

Shearer, D., & Morshed, S. (2011). Common generic measures of health related quality of life in injured patients. Injury, 42(3), 241–247. https://doi.org/10.1016/j.injury.2010.11.044 [HUI2; HUI3; Review Article]

Shimoda, S., de Camargo, B., Horsman, J., Furlong, W., Lopes, L. F., Seber, A., & Barr, R. D. (2005). Translation and cultural adaptation of Health Utilities Index (HUI) Mark 2 (HUI2) and Mark 3 (HUI3) with application to survivors of childhood cancer in Brazil. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 14(5), 1407–1412. https://doi.org/10.1007/s11136-004-6127-3 [HUI2; HUI3; Inter-rater Agreement; Reliability; Construct Validity; Translation]

Shimoda, S., Horsman, J., Furlong, W., Barr, R., & de Camargo, B. (2008). Disability and health-related quality of life in long-term survivors of cancer in childhood in Brazil. Journal of Pediatric Hematology/Oncology, 30(8), 563–570. https://doi.org/10.1097/MPH.0b013e31816e231c [HUI3; Construct Validity]

Siderowf, A., Ravina, B., & Glick, H. A. (2002). Preference-based quality-of-life in patients with Parkinson's disease. Neurology, 59(1), 103–108. https://doi.org/10.1212/wnl.59.1.103 [HUI2; Construct Validity]

Sims-Williams, H. J., Sims-Williams, H. P., Mbabazi Kabachelor, E., & Warf, B. C. (2017). Quality of life among children with spina bifida in Uganda. Archives of Disease in Childhood, 102(11), 1057–1061. https://doi.org/10.1136/archdischild-2016-312307 [HUI3; Construct Validity]

Slobogean, G. P., Noonan, V. K., & O'Brien, P. J. (2010). The reliability and validity of the Disabilities of Arm, Shoulder, and Hand, EuroQol-5D, Health Utilities Index, and Short Form-6D outcome instruments in patients with proximal humeral fractures. Journal of Shoulder and Elbow Surgery, 19(3), 342–348. https://doi.org/10.1016/j.jse.2009.10.021 [HUI3; Construct Validity; Test-Retest Reliability]

Smith-Olinde, L., Grosse, S. D., Olinde, F., Martin, P. F., & Tilford, J. M. (2008). Health state preference scores for children with permanent childhood hearing loss: a comparative analysis of the QWB and HUI3. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 17(6), 943–953. https://doi.org/10.1007/s11136-008-9358-x [HUI3; Construct Validity]

Smulders, Y. E., van Zon, A., Stegeman, I., van Zanten, G. A., Rinia, A. B., Stokroos, R. J., Free, R. H., Maat, B., Frijns, J. H., Mylanus, E. A., Huinck, W. J., Topsakal, V., & Grolman, W. (2016). Cost-Utility of Bilateral Versus Unilateral Cochlear Implantation in Adults: A Randomized Controlled Trial. Otology & Neurotology, 37(1), 38–45. https://doi.org/10.1097/MAO.0000000000000901 [HUI3; Construct Validity; Responsiveness]

Solans, M., Pane, S., Estrada, M. D., Serra-Sutton, V., Berra, S., Herdman, M., Alonso, J., & Rajmil, L. (2008). Health-related quality of life measurement in children and adolescents: a systematic review of generic and disease-specific instruments. Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research, 11(4), 742–764. https://doi.org/10.1111/j.1524-4733.2007.00293.x [HUI2; HUI3; Construct Validity; Review Article]

Speechley, K.N., Maunsell, E., Desmeules, M., Schanzer, D., Landgraf, J. M., Feeny, D. H., & Barrera, M. E. (1999). Mutual concurrent validity of the child health questionnaire and the health utilities index: an exploratory analysis using survivors of childhood cancer. International Journal of Cancer. Supplement, 12, 95–105. https://doi.org/10.1002/(sici)1097-0215(1999)83:12+<95::aid-ijc18>3.0.co;2-h [HUI2; Construct Validity]

Stade, B. C., Stevens, B., Ungar, W. J., Beyene, J., & Koren, G. (2006). Health-related quality of life of Canadian children and youth prenatally exposed to alcohol. Health and Quality of Life Outcomes, 4, 81. https://doi.org/10.1186/1477-7525-4-81 [HUI3; Construct Validity]

Stevens, K. J., & Freeman, J. V. (2012). An assessment of the psychometric performance of the Health Utilities Index 2 and 3 in children following discharge from a U.K. pediatric intensive care unit. Pediatric Critical Care Medicine: a Jjournal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies, 13(4), 387–392. https://doi.org/10.1097/PCC.0b013e318238969a [HUI2; HUI3; Construct Validity; Inter-rater Reliability; Proxy Agreement; Responsiveness]

Stiell, I., Nichol, G., Wells, G., De Maio, V., Nesbitt, L., Blackburn, J., Spaite, D., & OPALS Study Group (2003). Health-related quality of life is better for cardiac arrest survivors who received citizen cardiopulmonary resuscitation. Circulation, 108(16), 1939–1944. https://doi.org/10.1161/01.CIR.0000095028.95929.B0 [HUI3; Construct Validity]

Stiell, I. G., Wells, G. A., Field, B., Spaite, D. W., Nesbitt, L. P., De Maio, V. J., Nichol, G., Cousineau, D., Blackburn, J., Munkley, D., Luinstra-Toohey, L., Campeau, T., Dagnone, E., Lyver, M., & Ontario Prehospital Advanced Life Support Study Group (2004). Advanced cardiac life support in out-of-hospital cardiac arrest. The New England Journal of Medicine, 351(7), 647–656. https://doi.org/10.1056/NEJMoa040325 [HUI3; Clinical]

Stiell, I. G., Nesbitt, L. P., Nichol, G., Maloney, J., Dreyer, J., Beaudoin, T., Blackburn, J., Wells, G. A., & OPALS Study Group (2009). Comparison of the Cerebral Performance Category score and the Health Utilities Index for survivors of cardiac arrest. Annals of Emergency Medicine, 53(2), 241–248. https://doi.org/10.1016/j.annemergmed.2008.03.018 [HUI3; Construct Validity]

Stokke, J., Sung, L., Gupta, A., Lindberg, A., & Rosenberg, A. R. (2015). Systematic review and meta-analysis of objective and subjective quality of life among pediatric, adolescent, and young adult bone tumor survivors. Pediatric Blood & Cancer, 62(9), 1616–1629. https://doi.org/10.1002/pbc.25514 [HUI3; Construct Validity; Review Article]

Stolk, E., Busschbach, J. (2001). A comparison of the EuroQol and the Health Utilities Index in patients treated for congenital anomalies. HEPAC, 2(2), 54–59 https://doi.org/10.1007/s101980100058 [HUI3; Clinical; Construct Validity]

Straatman, L. V., Huinck, W. J., Langereis, M. C., Snik, A. F., & Mulder, J. J. (2014). Cochlear implantation in late-implanted prelingually deafened adults: changes in quality of life. Otology & Neurotology, 35(2), 253–259. https://doi.org/10.1097/MAO.0b013e3182a4758e [HUI3; Construct Validity; Responsiveness]

Strand, V., Rentz, A. M., Cifaldi, M. A., Chen, N., Roy, S., & Revicki, D. (2012). Health-related quality of life outcomes of adalimumab for patients with early rheumatoid arthritis: results from a randomized multicenter study. The Journal of Rheumatology, 39(1), 63–72. https://doi.org/10.3899/jrheum.101161 [HUI3; Construct Validity; Responsiveness]

Suarez-Almazor, M. E., Kendall, C., Johnson, J. A., Skeith, K., & Vincent, D. (2000). Use of health status measures in patients with low back pain in clinical settings. Comparison of specific, generic and preference-based instruments. Rheumatology, 39(7), 783–790. https://doi.org/10.1093/rheumatology/39.7.783 [HUI2; Clinical; Construct Validity; Reliability; Responsiveness]

Subak, L. L., Brown, J. S., Kraus, S. R., Brubaker, L., Lin, F., Richter, H. E., Bradley, C. S., Grady, D., & Diagnostic Aspects of Incontinence Study Group (2006). The "costs" of urinary incontinence for women. Obstetrics and Gynecology, 107(4), 908–916. https://doi.org/10.1097/01.AOG.0000206213.48334.09 [HUI3; Construct Validity]

Sullivan, M. D., Anderson, R. T., Aron, D., Atkinson, H. H., Bastien, A., Chen, G. J., Feeney, P., Gafni, A., Hwang, W., Katz, L. A., Narayan, K. M., Nwachuku, C., O'Connor, P. J., Zhang, P., & ACCORD Study Group (2007). Health-related quality of life and cost-effectiveness components of the Action to Control Cardiovascular Risk in Diabetes (ACCORD) trial: rationale and design. The American Journal of Cardiology, 99(12A), 90i–102i. https://doi.org/10.1016/j.amjcard.2007.03.027 [HUI3; Study Design]

Sullivan, S. D., Craxi, A., Alberti, A., Giuliani, G., De Carli, C., Wintfeld, N., Patel, K. K., & Green, J. (2004). Cost effectiveness of peginterferon alpha-2a plus ribavirin versus interferon alpha-2b plus ribavirin as initial therapy for treatment-naive chronic hepatitis C. PharmacoEconomics, 22(4), 257–265. https://doi.org/10.2165/00019053-200422040-00004 [HUI2; Construct Validity]

Summerfield, A. Q., Marshall, D. H., Barton, G. R., & Bloor, K. E. (2002). A cost-utility scenario analysis of bilateral cochlear implantation. Archives of Otolaryngology--Head & Neck Surgery, 128(11), 1255–1262. https://doi.org/10.1001/archotol.128.11.1255 [HUI2; Clinical; Construct Validity]

Summerfield, A.Q., Barton, G. R., Toner, J., McAnallen, C., Proops, D., Harries, C., Cooper, H., Court, I., Gray, R., Osborne, J., Doran, M., Ramsden, R., Mawman, D., O'Driscoll, M., Graham, J., Aleksy, W., Meerton, L., Verschure, C., Ashcroft, P., & Pringle, M. (2006). Self-reported benefits from successive bilateral cochlear implantation in post-lingually deafened adults: randomised controlled trial. International Journal of Audiology, 45 Suppl 1, S99–S107. https://doi.org/10.1080/14992020600783079 [HUI3; Construct Validity; Responsiveness]

Summerfield, A. Q., Barton, G. R., & UK Cochlear Implant Study Group (2019). Sensitivity of EQ-5D-3L, HUI2, HUI3, and SF-6D to changes in speech reception and tinnitus associated with cochlear implantation. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 28(5), 1145–1154. https://doi.org/10.1007/s11136-018-2070-6 [HUI2; HUI3; Construct Validity; Responsiveness]

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Sung, L., Greenberg, M. L., Doyle, J. J., Young, N. L., Ingber, S., Rubenstein, J., Wong, J., Samanta, T., McLimont, M., & Feldman, B. M. (2003). Construct validation of the Health Utilities Index and the Child Health Questionnaire in children undergoing cancer chemotherapy. British Journal of Cancer, 88(8), 1185–1190. https://doi.org/10.1038/sj.bjc.6600895 [HUI2; HUI3; Construct Validity]

Sung, L., Greenberg, M. L., Young, N. L., McLimont, M., Ingber, S., Rubenstein, J., Wong, J., Samanta, T., Doyle, J. J., Stain, A. M., & Feldman, B. M. (2003). Validity of a modified standard gamble elicited from parents of a hospital-based cohort of children. Journal of Clinical Epidemiology, 56(9), 848–855. https://doi.org/10.1016/s0895-4356(03)00160-4 [HUI2; HUI3; Construct Validity]

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Taylor, A., Butt, W., & Ciardulli, M. (2003). The functional outcome and quality of life of children after admission to an intensive care unit. Intensive Care Medicine, 29(5), 795–800. https://doi.org/10.1007/s00134-003-1690-6 [HUI1; Construct Validity]

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Tempier, R., & Pawliuk, N. (2007). Measuring patient quality of life: is the health utility index useful? The Psychiatric Quarterly, 78(1), 53–62. https://doi.org/10.1007/s11126-006-9026-7 [HUI3; Construct Validity]

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Thoma, A., Sprague, S., Veltri, K., Duku, E., & Furlong, W. (2005). Methodology and measurement properties of health-related quality of life instruments: a prospective study of patients undergoing breast reduction surgery. Health and Quality of Life Outcomes, 3, 44. https://doi.org/10.1186/1477-7525-3-44 [HUI2; HUI3; Test-retest Reliability; Construct Validity; Responsiveness]

Thoma, A., Sprague, S., Veltri, K., Duku, E., & Furlong, W. (2007). A prospective study of patients undergoing breast reduction surgery: health-related quality of life and clinical outcomes. Plastic and Reconstructive Surgery, 120(1), 13–26. https://doi.org/10.1097/01.prs.0000263370.94191.90 [HUI2; HUI3; Construct Validity; Responsiveness]

Thoma, A., Kaur, M. N., Ignacy, T. A., Levis, C., Martin, S., Duku, E., & Haines, T. (2014). Psychometric properties of health-related quality of life instruments in patients undergoing palmar fasciectomy for dupuytren's disease: a prospective study. Hand, 9(2), 166–174. https://doi.org/10.1007/s11552-013-9597-3 [HUI3; Construct Validity; Responsiveness; Test-Re-Test Reliability]

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Thornton, C. S., Tsai, W. H., Santana, M. J., Penz, E. D., Flemons, W. W., Fraser, K. L., Hanly, P. J., & Pendharkar, S. R. (2020). Effects of Wait Times on Treatment Adherence and Clinical Outcomes in Patients With Severe Sleep-Disordered Breathing: A Secondary Analysis of a Noninferiority Randomized Clinical Trial. JAMA Network Open, 3(4), e203088. https://doi.org/10.1001/jamanetworkopen.2020.3088 [HUI2; HUI3; Construct Validity]

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Tonmukayakul, U., Le, L. K., Mudiyanselage, S. B., Engel, L., Bucholc, J., Mulhern, B., Carter, R., & Mihalopoulos, C. (2019). A systematic review of utility values in children with cerebral palsy. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 28(1), 1–12. https://doi.org/10.1007/s11136-018-1955-8 [HUI2; HUI3; Review Article]

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Wodchis, W. P., Maxwell, C. J., Venturini, A., Walker, J. D., Zhang, J., Hogan, D. B., & Feeny, D. F. (2007). Study of observed and self-reported HRQL in older frail adults found group-level congruence and individual-level differences. Journal of Clinical Epidemiology, 60(5), 502–511. https://doi.org/10.1016/j.jclinepi.2006.08.009 [HUI2; MDS-HSI; Construct Validity; Inter-rater Reliability]

Wolfram, C., Lorenz, K., Breitscheidel, L., Verboven, Y., & Pfeiffer, N. (2013). Health- and vision-related quality of life in patients with ocular hypertension or primary open-angle glaucoma. Ophthalmologica. Journal International d'Ophtalmologie. International Journal of Ophthalmology. Zeitschrift fur Augenheilkunde, 229(4), 227–234. https://doi.org/10.1159/000350553 [HUI3; Construct Validity]

Wolke, D., Chernova, J., Eryigit-Madzwamuse, S., Samara, M., Zwierzynska, K., & Petrou, S. (2013). Self and parent perspectives on health-related quality of life of adolescents born very preterm. The Journal of Pediatrics, 163(4), 1020–6.e2. https://doi.org/10.1016/j.jpeds.2013.04.030 [HUI3; Construct Validity]

Wolstenholme, J. L., Bargo, D., Wang, K., Harnden, A., Räisänen, U., & Abel, L. (2018). Preference-based measures to obtain health state utility values for use in economic evaluations with child-based populations: a review and UK-based focus group assessment of patient and parent choices. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 27(7), 1769–1780. https://doi.org/10.1007/s11136-018-1831-6 [HUI2; HUI3; Review Article]

Woo, G., Tomlinson, G., Yim, C., Lilly, L., Therapondos, G., Wong, D. K., Ungar, W. J., Einarson, T. R., Sherman, M., Heathcote, J. E., & Krahn, M. (2012). Health state utilities and quality of life in patients with hepatitis B. Canadian Journal of Gastroenterology, 26(7), 445–451. https://doi.org/10.1155/2012/736452 [HUI3; Construct Validity]

Wright, M. J., Galea, V., & Barr, R. D. (2003). Self-perceptions of physical activity in survivors of acute lymphoblastic leukemia in childhood. Pediatric Exercise Science, 15(2), 191-201. https://doi.org/10.1123/pes.15.2.191 [HUI2; HUI3; Construct Validity]

Wright, M. J., Galea, V., & Barr, R. D. (2005). Proficiency of balance in children and youth who have had acute lymphoblastic leukemia. Physical Therapy, 85(8), 782–790. https://doi.org/10.1093/ptj/85.8.782 [HUI3; Construct Validity]

Wyatt, J. R., Niparko, J. K., Rothman, M., & deLissovoy, G. (1996). Cost utility of the multichannel cochlear implants in 258 profoundly deaf individuals. The Laryngoscope, 106(7), 816–821. https://doi.org/10.1097/00005537-199607000-00006 [HUI2; Clinical; Evaluative]

Wyatt, J. R., Niparko, J. K., Rothman, M. L., & deLissovoy, G. (1995). Cost effectiveness of the multichannel cochlear implant. The American Journal of Otology, 16(1), 52-62. https://journals.lww.com/otology-neurotology/abstract/1995/01000/cost_effectiveness_of_the_multichannel_cochlear.10.aspx [HUI2; Construct Validity; Economic Evaluation]

Yang, Y., Longworth, L., & Brazier, J. (2013). An assessment of validity and responsiveness of generic measures of health-related quality of life in hearing impairment. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 22(10), 2813–2828. https://doi.org/10.1007/s11136-013-0417-6 [HUI3; Construct Validity; Responsiveness]

Yariş, N., Yavuz, M. N., Yavuz, A. A., & Ökten, A. (2001). Assessment of quality of life in pediatric cancer patients at diagnosis and during therapy. Turkish Journal of Cancer, 31(4), 139-49. Link [HUI2; Construct Validity; Responsiveness]

Yi, M. S., Britto, M. T., Wilmott, R. W., Kotagal, U. R., Eckman, M. H., Nielson, D. W., Kociela, V. L., & Tsevat, J. (2003). Health values of adolescents with cystic fibrosis. The Journal of Pediatrics, 142(2), 133–140. https://doi.org/10.1067/mpd.2003.51 [HUI2; Construct Validity]

Young, N. L., Williams, J. I., Yoshida, K. K., & Wright, J. G. (2000). Measurement properties of the activities scale for kids. Journal of Clinical Epidemiology, 53(2), 125–137. https://doi.org/10.1016/s0895-4356(99)00113-4 [HUI3; Construct Validity]

Young, N. L., Rochon, T. G., McCormick, A., Law, M., Wedge, J. H., & Fehlings, D. (2010). The health and quality of life outcomes among youth and young adults with cerebral palsy. Archives of Physical Medicine and Rehabilitation, 91(1), 143–148. https://doi.org/10.1016/j.apmr.2009.08.152 [HUI3; Construct Validity]

Younossi, Z. M., Boparai, N., McCormick, M., Price, L. L., & Guyatt, G. (2001). Assessment of utilities and health-related quality of life in patients with chronic liver disease. The American Journal of Gastroenterology, 96(2), 579–583. https://doi.org/10.1111/j.1572-0241.2001.03537.x [HUI2; Clinical; Construct Validity]

Zhang, J. X., Walker, J. D., Wodchis, W. P., Hogan, D. B., Feeny, D. H., & Maxwell, C. J. (2006). Measuring health status and decline in at-risk seniors residing in the community using the Health Utilities Index Mark 2. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 15(8), 1415–1426. https://doi.org/10.1007/s11136-006-0007-y [HUI2; MDS-HSI; Construct Validity; Responsiveness]

Zwicker, J. G., & Harris, S. R. (2008). Quality of life of formerly preterm and very low birth weight infants from preschool age to adulthood: a systematic review. Pediatrics, 121(2), e366–e376. https://doi.org/10.1542/peds.2007-0169 [HUI2; Construct Validity; Review Article]

Population Health Applications of HUI [Cross-Cultural Validation; Description; Reliability; Scoring; Theory; Validity]

Adachi, J. D., Ioannidis, G., Pickard, L., Berger, C., Prior, J. C., Joseph, L., Hanley, D. A., Olszynski, W. P., Murray, T. M., Anastassiades, T., Hopman, W., Brown, J. P., Kirkland, S., Joyce, C., Papaioannou, A., Poliquin, S., Tenenhouse, A., & Papadimitropoulos, E. A. (2003). The association between osteoporotic fractures and health-related quality of life as measured by the Health Utilities Index in the Canadian Multicentre Osteoporosis Study (CaMos). Osteoporosis International, 14(11), 895–904. https://doi.org/10.1007/s00198-003-1483-3 [HUI2; HUI3; Construct Validity; Population Norms]

Alberta Health and Wellness. (2003) Chronic Pain in Alberta: A Portrait from the 1996 National Population Health Survey and the 2001 Canadian Community Health Survey. Health Surveillance. Link [HUI3 pain; Construct Validity]

Allin, S., Graves, E., Grignon, M., Ridgeway, D., & Wang, L. (2014). Health-adjusted potential years of life lost due to treatable causes of death and illness. Health Reports, 25(8), 3–9 Link [HUI3; Construct Validity]

Altman, B.M., Ng, E., Berthelot, J. M. (2004). A comparative analysis of four disability/functional limitation modules in the 2003 Joint Canada/United States Survey of Health. In: Proceedings of the 2004 Joint Statistical Meetings of the American Statistical Association (pp. 3256-63). American Statistical Association. http://www.asasrms.org/Proceedings/y2004/files/Jsm2004-000574.pdf [HUI3; Construct Validity]

Altman, B. M., & Gulley, S. P. (2009). Convergence and divergence: differences in disability prevalence estimates in the United States and Canada based on four health survey instruments. Social Science & Medicine, 69(4), 543–552. https://doi.org/10.1016/j.socscimed.2009.06.017 [HUI3; Construct Validity]

Amankwah, N., Marrie, R. A., Bancej, C., Garner, R., Manuel, D. G., Wall, R., Finès, P., Bernier, J., Tu, K., & Reimer, K. (2017). Multiple sclerosis in Canada 2011 to 2031: results of a microsimulation modelling study of epidemiological and economic impacts. Health Promotion and Chronic Disease Prevention in Canada: Research, Policy and Practice, 37(2), 37–48. https://doi.org/10.24095/hpcdp.37.2.02 [HUI3; Construct Validity]

Asada, Y., & Kephart, G. (2007). Equity in health services use and intensity of use in Canada. BMC Health Services Research, 7, 41. https://doi.org/10.1186/1472-6963-7-41 [HUI3; Construct Validity; Predictive Validity]

Asada, Y., Hurley, J., Norheim, O. F., & Johri, M. (2014). A three-stage approach to measuring health inequalities and inequities. International Journal for Equity in Health, 13, 98. https://doi.org/10.1186/s12939-014-0098-y [HUI3; Construct Validity]

Asada, Y., Hurley, J., Norheim, O. F., & Johri, M. (2015). Unexplained health inequality--is it unfair? International Journal for Equity in Health, 14, 11. https://doi.org/10.1186/s12939-015-0138-2 [HUI3; Construct Validity]

Asada, Y., Kephart, G., Hurley, J., Yoshida, Y., Smith, A., & Bornstein, S. (2012). The role of proximity to death in need-based approaches to health care. Health Policy, 106(3), 291–302. https://doi.org/10.1016/j.healthpol.2012.04.004 [HUI3; Construct Validity; Predictive Validity]

Asada, Y., Hurley, J., Grignon, M., & Kirkland, S. (2018). Health inequalities and inequities by age: Stability for the Health Utilities Index and divergence for the Frailty Index. SSM - Population Health, 5, 17–32. https://doi.org/10.1016/j.ssmph.2018.04.002 [HUI3; Construct Validity]

Asakawa, K., Rolfson, D., Senthilselvan, A., Feeny, D., & Johnson, J. A. (2008). Health Utilities Index Mark 3 showed valid in Alzheimer disease, arthritis, and cataracts. Journal of Clinical Epidemiology, 61(7), 733–739. https://doi.org/10.1016/j.jclinepi.2007.09.007 [HUI3; Construct Validity]

Asakawa, K., Feeny, D., Senthilselvan, A., Johnson, J. A., & Rolfson, D. (2009). Do the determinants of health differ between people living in the community and in institutions? Social Science & Medicine, 69(3), 345–353. https://doi.org/10.1016/j.socscimed.2009.05.007 [HUI3; Construct Validity]

Asakawa, K., Senthilselvan, A., Feeny, D., Johnson, J., & Rolfson, D. (2012). Trajectories of health-related quality of life differ by age among adults: results from an eight-year longitudinal study. Journal of Health Economics, 31(1), 207–218. https://doi.org/10.1016/j.jhealeco.2011.10.002 [HUI3; Construct Validity]

Au, D. W., Crossley, T. F., & Schellhorn, M. (2005). The effect of health changes and long-term health on the work activity of older Canadians. Health Economics, 14(10), 999–1018. https://doi.org/10.1002/hec.1051 [HUI3; Cross-sectional and Longitudinal Construct Validity]

Austin, P. C., Escobar, M., & Kopec, J. A. (2000). The use of the Tobit model for analyzing measures of health status. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 9(8), 901–910. https://doi.org/10.1023/a:1008938326604 [HUI3; Ceiling Effects; based on provisional scoring]

Grootendorst P. (2000). Censoring in statistical models of health status: what happens when one can do better than '1'. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 9(8), 911–914. https://doi.org/10.1023/a:1008938429316 [HUI3; Ceiling Effects]

A Austin P. C. (2002). Bayesian extensions of the Tobit model for analyzing measures of health status. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 22(2), 152–162. https://doi.org/10.1177/0272989X0202200212 [HUI3; Construct Validity]

Austin P. C. (2002). A comparison of methods for analyzing health-related quality-of-life measures. Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research, 5(4), 329–337. https://doi.org/10.1046/j.1524-4733.2002.54128.x [HUI3]

Austin, P.C., & Escobar, M.D. (2003). The use of finite mixture models to estimate the distribution of the health utilities index in the presence of ceiling effects. Journal of Applied Statistics, 30(8), 909-923. https://doi.org/10.1080/0266476032000075985 [HUI3]

Bas Janssen, M. F., Birnie, E., & Bonsel, G. J. (2007). Evaluating the discriminatory power of EQ-5D, HUI2 and HUI3 in a US general population survey using Shannon's indices. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 16(5), 895–904. https://doi.org/10.1007/s11136-006-9160-6 [HUI2; HUI3; Construct Validity]

Béland Y. (2002). Canadian community health survey--methodological overview. Health Reports, 13(3), 9–14. No link available. [HUI3]

Bentley, T. G., Palta, M., Paulsen, A. J., Cherepanov, D., Dunham, N. C., Feeny, D., Kaplan, R. M., & Fryback, D. G. (2011). Race and gender associations between obesity and nine health-related quality-of-life measures. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 20(5), 665–674. https://doi.org/10.1007/s11136-011-9878-7 [HUI2; HUI3; Construct Validity]

Bernier, J., Feng, Y., & Asakawa, K. (2011). Strategies for handling normality assumptions in multi-level modeling: a case study estimating trajectories of Health Utilities Index Mark 3 scores. Health Reports, 22(4), 45–51. Link [HUI3; Construct Validity]

Berthelot, J. M., Roberge, R. & Wolfson, M. (1993). The Calculation of Health-Adjusted Life Expectancy for a Canadian province using a Multi-Attribute Utility Function:  A First Attempt." In Jean-Marie Robine, Colin D. Mathers, M. R. Bone, & I. Romieu, (Eds.), Calculation of Health Expectancies: Harmonization, Consensus Achieved and Future Perspectives, (Vol. 226, pp 161-172). Colloque INSERM/John Libbey Eurotext Ltd. Link [HUI3; Construct Validity; Health-Adjusted Life Expectancy]

Berthelot, J.M., Roberge, R., & Cranswick, K. (1996). Linking disability-adjusted life expectancy with health-adjusted life expectancy: Calculations for Canada. In: Egidi V, (Ed.), Towards an Integrated System of Indicators to Assess the Health Status of the Population: 9th Reves International Meeting Proceedings December 1996 (pp 27-53). No link available. [HUI3; Construct Validity]

Bowker, S. L., Pohar, S. L., & Johnson, J. A. (2006). A cross-sectional study of health-related quality of life deficits in individuals with comorbid diabetes and cancer. Health and Quality of Life Outcomes, 4, 17. https://doi.org/10.1186/1477-7525-4-17 [HUI3; Construct Validity]

Boyle, M. H., Furlong, W., Feeny, D., Torrance, G. W., & Hatcher, J. (1995). Reliability of the Health Utilities Index--Mark III used in the 1991 cycle 6 Canadian General Social Survey Health Questionnaire. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 4(3), 249–257. https://doi.org/10.1007/BF02260864 [HUI3; Test-retest Reliability]

Boyle, M. H., & Willms, J. D. (1999). Place effects for areas defined by administrative boundaries. American Journal of Epidemiology, 149(6), 577–585. https://doi.org/10.1093/oxfordjournals.aje.a009855 [HUI3; Construct Validity]

Brehaut, J. C., Kohen, D. E., Raina, P., Walter, S. D., Russell, D. J., Swinton, M., O'Donnell, M., & Rosenbaum, P. (2004). The health of primary caregivers of children with cerebral palsy: how does it compare with that of other Canadian caregivers? Pediatrics, 114(2), e182–e191. https://doi.org/10.1542/peds.114.2.e182 [HUI3; Construct Validity]

Brehaut, J. C., Kohen, D. E., Garner, R. E., Miller, A. R., Lach, L. M., Klassen, A. F., & Rosenbaum, P. L. (2009). Health among caregivers of children with health problems: findings from a Canadian population-based study. American Journal of Public Health, 99(7), 1254–1262. https://doi.org/10.2105/AJPH.2007.129817 [HUI3; construct validity]

Bushnik, T., Tjepkema, M., & Martel, L. (2018). Health-adjusted life expectancy in Canada. Health Reports, 29(4), 14–22. https://www.researchgate.net/publication/324604303_Health-adjusted_life_expectancy_in_Canada [HUI3; Construct Validity; Health-Adjusted Life Expectancy; Population Norms]

Chen, L. Y., & Hardy, C. L. (2009). Alcohol consumption and health status in older adults: a longitudinal analysis. Journal of Aging and Health, 21(6), 824–847. https://doi.org/10.1177/0898264309340688 [HUI3; Construct Validity]

Cherepanov, D., Palta, M., Fryback, D. G., & Robert, S. A. (2010). Gender differences in health-related quality-of-life are partly explained by sociodemographic and socioeconomic variation between adult men and women in the US: evidence from four US nationally representative data sets. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 19(8), 1115–1124. https://doi.org/10.1007/s11136-010-9673-x [HUI2; HUI3; Construct Validity]

Cherepanov, D., Palta, M., & Fryback, D. G. (2010). Underlying dimensions of the five health-related quality-of-life measures used in utility assessment: evidence from the National Health Measurement Study. Medical Care, 48(8), 718–725. https://doi.org/10.1097/MLR.0b013e3181e35871 [HUI2; HUI3; Construct Validity]

Corna, L. M., Wade, T. J., Streiner, D. L., & Cairney, J. (2009). Corrected and uncorrected hearing impairment in older Canadians. Gerontology, 55(4), 468–476. https://doi.org/10.1159/000219589 [HUI3 Hearing; HUI3 Vision; Construct Validity]

Curtis, L. J., Dooley, M. D., Lipman, E. L., & Feeny, D. H. (2001). The role of permanent income and family structure in the determination of child health in Canada. Health Economics, 10(4), 287–302. https://doi.org/10.1002/hec.591 [HUI2; Construct Validity]

Denton, M., & Walters, V. (1999). Gender differences in structural and behavioral determinants of health: an analysis of the social production of health. Social Science & Medicine, 48(9), 1221–1235. https://doi.org/10.1016/s0277-9536(98)00421-3 [HUI3; Construct Validity]

Denton, M., Prus, S., & Walters, V. (2004). Gender differences in health: a Canadian study of the psychosocial, structural and behavioural determinants of health. Social Science & Medicine, 58(12), 2585–2600. https://doi.org/10.1016/j.socscimed.2003.09.008 [HUI3; Construct Validity]

DesMeules, M., Manuel, D., & Cho, R. (2004). Mortality: life and health expectancy of Canadian women. BMC Women's Health, 4 Suppl 1(Suppl 1), S9. https://doi.org/10.1186/1472-6874-4-S1-S9 [HUI3]

Edwards, J. D., Koehoorn, M., Boyd, L. A., & Levy, A. R. (2010). Is health-related quality of life improving after stroke? A comparison of health utilities indices among Canadians with stroke between 1996 and 2005. Stroke, 41(5), 996–1000. https://doi.org/10.1161/STROKEAHA.109.576678 [HUI3; Construct Validity]

Eng, K., & Feeny, D. (2007). Comparing the health of low income and less well educated groups in the United States and Canada. Population Health Metrics, 5, 10. https://doi.org/10.1186/1478-7954-5-10 [HUI3; Construct Validity]

Erickson P. (1996). Modeling health-related quality of life: the bridge between psychometric and utility-based measures. Journal of the National Cancer Institute. Monographs, (20), 17–22. https://europepmc.org/article/med/8750462 [HUI1; Construct Validity]

Feder, K., Michaud, D., Ramage-Morin, P., McNamee, J., & Beauregard, Y. (2015). Prevalence of hearing loss among Canadians aged 20 to 79: Audiometric results from the 2012/2013 Canadian Health Measures Survey. Health Reports, 26(7), 18–25. https://www150.statcan.gc.ca/n1/pub/82-003-x/2015007/article/14206-eng.htm [HUI3 hearing; Construct Validity]

Feeny, D.H., Torrance, G/W., Goldsmith, CH. Furlong, W. & Boyle, M. (1993) A Multi-attribute Approach to Population Health Status. Proceedings of the 153rd Annual Meeting of the American Statistical Association (pp 161-166). No link available. Modestly revised version available as McMaster University Centre for Health Economics and Policy Analysis Working Paper No. 94-05. Information on ordering Centre for Health Economics and Policy Analysis (CHEPA) Working Papers may be obtained from CHEPA, McMaster University, 1280 Main Street West, Communications Research Laboratory Building, Second Floor, Hamilton, ON L8S 4K1 Canada.chepa@mcmaster.ca; https://chepa.mcmaster.ca [HUI3; Scoring; Theory]

Feeny, D. (2005). The Health Utilities Index: A tool for assessing health benefits. Patient Reported Outcomes Newsletter, 34, 2-6. No link available. [HUI2; HUI3; Review Article]

Feeny, D. (2002). Health-Status Classification Systems for Summary Measures of Population Health. In Christopher J. L. Murray, Joshua A. Salomon, Colin D. Mathers, & Alan D. Lopez, (Eds.), Summary Measures of Population Health: Concepts, Ethics, Measurement and Applications (pp 329-341). World Health Organization. No link available. [HUI2; HUI3; Review Article]

Feeny, D. (2002). The Utility Approach to Assessing Population Health. In Christopher J. L. Murray, Joshua A. Salomon, Colin D. Mathers, & Alan D. Lopez, (Eds.), Summary Measures of Population Health: Concepts, Ethics, Measurement and Applications (pp 515-528). World Health Organization. Link [HUI2; HUI3; Review Article]

Feeny, D., Huguet, N., McFarland, B. H., & Kaplan, M. S. (2009). The construct validity of the Health Utilities Index Mark 3 in assessing mental health in population health surveys. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 18(4), 519–526. https://doi.org/10.1007/s11136-009-9457-3. Erratum. Quality of Life Aspects of Treatment, Care and Rehabilitation, 18(5), 667. https://doi.org/10.1007/s11136-009-9476-0 [HUI3; construct validity, mental health]

Feeny, D., Kaplan, M. S., Huguet, N., & McFarland, B. H. (2010). Comparing population health in the United States and Canada. Population Health Metrics, 8, 8. https://doi.org/10.1186/1478-7954-8-8 [HUI3; Construct Validity; Health-Adjusted Life Expectancy]

Feeny, D., Huguet, N., McFarland, B. H., Kaplan, M. S., Orpana, H., & Eckstrom, E. (2012). Hearing, mobility, and pain predict mortality: a longitudinal population-based study. Journal of Clinical Epidemiology, 65(7), 764–777. https://doi.org/10.1016/j.jclinepi.2012.01.003 [HUI3; Construct Validity; Predictive Validity]

Feeny, D., Garner, R., Bernier, J., Thompson, A., McFarland, B. H., Huguet, N., Kaplan, M. S., Ross, N. A., & Blanchard, C. M. (2014). Physical activity matters: associations among body mass index, physical activity, and health-related quality of life trajectories over 10 years. Journal of Physical Activity & Health, 11(7), 1265–1275. https://doi.org/10.1123/jpah.2012-0268 [HUI3; Construct Validity]

Feng, Y., Bernier, J., McIntosh, C., & Orpana, H. (2009). Validation of disability categories derived from Health Utilities Index Mark 3 scores. Health Reports, 20(2), 43–50. Link  [HUI3; Construct Validity]

Findlay, L., Bernier, J., Tuokko, H., Kirkland, S., & Gilmour, H. (2010). Validation of cognitive functioning categories in the Canadian Community Health Survey--Healthy Aging. Health Reports, 21(4), 85–100. Link [HUI3; Construct Validity of HUI3 Cognition]

Flanagan, W., McIntosh, C. N., Le Petit, C., & Berthelot, J. M. (2006). Deriving utility scores for co-morbid conditions: a test of the multiplicative model for combining individual condition scores. Population Health Metrics, 4, 13. https://doi.org/10.1186/1478-7954-4-13 [HUI3; Construct Validity]

Franks, P., Hanmer, J., & Fryback, D. G. (2006). Relative disutilities of 47 risk factors and conditions assessed with seven preference-based health status measures in a national U.S. sample: toward consistency in cost-effectiveness analyses. Medical Care, 44(5), 478–485. https://doi.org/10.1097/01.mlr.0000207464.61661.05 [HUI3; Construct Validity]

Fryback, D. G., Dunham, N. C., Palta, M., Hanmer, J., Buechner, J., Cherepanov, D., Herrington, S. A., Hays, R. D., Kaplan, R. M., Ganiats, T. G., Feeny, D., & Kind, P. (2007). US norms for six generic health-related quality-of-life indexes from the National Health Measurement study. Medical Care, 45(12), 1162–1170. https://doi.org/10.1097/MLR.0b013e31814848f1 [HUI2; HUI3; Construct Validity; Population Norms]

Fryback, D. G., Palta, M., Cherepanov, D., Bolt, D., & Kim, J. S. (2010). Comparison of 5 health-related quality-of-life indexes using item response theory analysis. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 30(1), 5–15. https://doi.org/10.1177/0272989X09347016 [HUI2; HUI3; Construct Validity]

Gan, H.P., Wee, H.L., Cheung, Y.B., Luo, N., Fong, K.Y., Feeny, D., & Thumboo, J. (2013) Impact of self-reported smoking status on health-related quality of life in Singapore Journal of Public Health, 21 (5), 389-401. https://doi.org/10.1007/s10389-013-0567-6  [HUI3; Construct Validity]

Garner, R. E., Feeny, D. H., Thompson, A., Bernier, J., McFarland, B. H., Huguet, N., Kaplan, M. S., Orpana, H., Ross, N. A., & Blanchard, C. (2012). Bodyweight, gender, and quality of life: a population-based longitudinal study. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 21(5), 813–825. https://doi.org/10.1007/s11136-011-9989-1. Erratum. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 21(5), 827. https://doi.org/10.1007/s11136-011-0074-6 [HUI3; Construct Validity; Responsiveness]

Garster, N. C., Palta, M., Sweitzer, N. K., Kaplan, R. M., & Fryback, D. G. (2009). Measuring health-related quality of life in population-based studies of coronary heart disease: comparing six generic indexes and a disease-specific proxy score. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 18(9), 1239–1247. https://doi.org/10.1007/s11136-009-9533-8 [HUI2; HUI3; Construct Validity]

Gee, E. M., Kobayashi, K. M., & Prus, S. G. (2004). Examining the healthy immigrant effect in mid- to later life: findings from the Canadian Community Health Survey. Canadian Journal on Aging, 23(5), S55-S63. https://doi.org/10.1353/cja.2005.0032 [HUI3; Construct Validity]

Gibson, G., Grignon, M., Hurley, J., & Wang, L. (2019). Here comes the SUN: Self-assessed unmet need, worsening health outcomes, and health care inequity. Health economics, 28(6), 727–735. https://doi.org/10.1002/hec.3877 [HUI3; Construct Validity; Responsiveness]

Gilmour, H., & Park, J. (2006). Dependency, chronic conditions and pain in seniors. Health Reports, 16 Suppl, 21–31. https://www.academia.edu/70615681/Dependency_chronic_conditions_and_pain_in_seniors [HUI3; Construct Validity of Pain items]

Gilmour, H., Stranges, S., Kaplan, M., Feeny, D., McFarland, B., Huguet, N., & Bernier, J. (2013). Longitudinal trajectories of sleep duration in the general population. Health Reports, 24(11), 14–20. https://link.gale.com/apps/doc/A365745121/AONE?u=anon~b001f0af&sid=bookmark-AONE&xid=7d58935a [HUI3; Construct Validity]

Gilmour H. (2014). Positive mental health and mental illness. Health Reports, 25(9), 3–9. Link [HUI3 pain; Construct Validity]

Gilmour H. (2015). Chronic pain, activity restriction and flourishing mental health. Health Reports, 26(1), 15–22. https://www.researchgate.net/publication/271193648_Chronic_pain_activity_restriction_and_flourishing_mental_health [HUI3 pain; Construct Validity]

Gilmour, H., & Ramage-Morin, P. L. (2020). Social isolation and mortality among Canadian seniors. Health Reports, 31(3), 27–38. https://doi.org/10.25318/82-003-x202000300003-eng [HUI3; Construct Validity; Predictive Validity]

Gilmour, H., & Ramage-Morin, P. L. (2021). Association of frailty and pre-frailty with increased risk of mortality among older Canadians. Health Reports, 32(4), 15–26. https://doi.org/10.25318/82-003-x202100400002-eng [HUI3; Construct Validity of 8 Attributes; Predictive Validity]

Goel, V., Iron, K., Williams, J.I. (1996) Indicators of health determinants and health status. In: Vivek Goel, J. Ivan Williams, Geoffrey M. Anderson, Paula Blackstien-Hirsch, Cathy Fooks, & C. David Naylor, (Eds.), Patterns of Health Care in Ontario. The ICES Practice Atlas, (2nd ed., pp 5-26. Canadian Medical Association, Institute for Clinical Evaluative Sciences. No link available. [HUI3; Description]

Gold, M., Franks, P., & Erickson, P. (1996). Assessing the health of the nation. The predictive validity of a preference-based measure and self-rated health. Medical Care, 34(2), 163–177. https://doi.org/10.1097/00005650-199602000-00008 [HUI1; Predictive Validity]

Gold, M. R., Stevenson, D., & Fryback, D. G. (2002). HALYS and QALYS and DALYS, Oh My: similarities and differences in summary measures of population Health. Annual Review of Public Health, 23, 115–134. https://doi.org/10.1146/annurev.publhealth.23.100901.140513 [HUI1; HUI2; HUI3; Summary Measures]

Griffith, L., van den Heuvel, E., Fortier, I., Hofer, S., Raina, P., Sohel, N., Payette, H., Wolfson, C., & Belleville, S. (2013). Harmonization of Cognitive Measures in Individual Participant Data and Aggregate Data Meta-Analysis. Agency for Healthcare Research and Quality (US). Methods Research Report. (Prepared by the McMaster University Evidence-based Practice Center under Contract No. 290-2007-10060-I.) AHRQ Publication No.13-EHC040-EF. Agency for Healthcare Research and Quality. Link [HUI3 Cognition; Construct Validity]

Grootendorst, P. (1993). Results of an Investigation into the Integrity of the Ontario Health Survey. McMaster University Centre for Health Economics and Policy Analysis Working Paper No. 93-11. https://ideas.repec.org/p/hpa/wpaper/199311.html Information on ordering Centre for Health Economics and Policy Analysis (CHEPA) Working Papers may be obtained from CHEPA, McMaster University, 1280 Main Street West, Communications Research Laboratory Building, Second Floor, Hamilton, ON L8S 4K1 Canada.chepa@mcmaster.ca; https://chepa.mcmaster.ca [HUI3; Reliability]

Grootendorst, P. V., Feeny, D. H., & Furlong, W. (1997). Does it matter whom and how you ask? inter- and intra-rater agreement in the Ontario Health Survey. Journal of Clinical Epidemiology, 50(2), 127–135. https://doi.org/10.1016/s0895-4356(96)00314-9 [HUI3; Reliability]

Grootendorst, P. V., Feeny, D. H., & Furlong, W. (1999). Health Utilities Index Mark 3: Evidence of Construct Validity for Stroke and Arthritis in a Population Health Survey. McMaster University Centre for Health Economics and Policy Analysis Working Paper No. 99-06. Information on ordering Centre for Health Economics and Policy Analysis (CHEPA) Working Papers may be obtained from CHEPA, McMaster University, 1280 Main Street West, Communications Research Laboratory Building, Second Floor, Hamilton, ON L8S 4K1 Canada.chepa@mcmaster.ca; https://chepa.mcmaster.ca [HUI3; Construct Validity]

Grootendorst, P., Feeny, D., & Furlong, W. (2000). Health Utilities Index Mark 3: evidence of construct validity for stroke and arthritis in a population health survey. Medical Care, 38(3), 290–299. https://doi.org/10.1097/00005650-200003000-00006 [HUI3; Construct Validity]

Guertin, J. R., Feeny, D., & Tarride, J. E. (2018). Age- and sex-specific Canadian utility norms, based on the 2013-2014 Canadian Community Health Survey. CMAJ: Canadian Medical Association Journal, 190(6), E155–E161. https://doi.org/10.1503/cmaj.170317 [HUI3]

Guertin, J. R., Humphries, B., Feeny, D., & Tarride, J. É. (2018). Health Utilities Index Mark 3 scores for major chronic conditions: Population norms for Canada based on the 2013 and 2014 Canadian Community Health Survey. Health Reports, 29(11), 12–19. https://www150.statcan.gc.ca/n1/en/pub/82-003-x/2018011/article/00001-eng.pdf?st=5T_AiGAE

Hajizadeh, M., Mitnitski, A., & Rockwood, K. (2016). Socioeconomic gradient in health in Canada: Is the gap widening or narrowing? Health Policy, 120(9), 1040–1050. https://doi.org/10.1016/j.healthpol.2016.07.019 [HUI3; Construct Validity]

Hanmer, J., Hays, R. D., & Fryback, D. G. (2007). Mode of administration is important in US national estimates of health-related quality of life. Medical Care, 45(12), 1171–1179. https://doi.org/10.1097/MLR.0b013e3181354828 [HUI3; Construct Validity; Mode of Administration]

Hanmer, J., Cherepanov, D., Palta, M., Kaplan, R. M., Feeny, D., & Fryback, D. G. (2016). Health Condition Impacts in a Nationally Representative Cross-Sectional Survey Vary Substantially by Preference-Based Health Index. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 36(2), 264–274. https://doi.org/10.1177/0272989X15599546 [HUI2; HUI3; Construct Validity]

Hanmer, J., & Cherepanov, D. (2016). A single question about a respondent's perceived financial ability to pay monthly bills explains more variance in health utility scores than absolute income and assets questions. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 25(9), 2233–2237. https://doi.org/10.1007/s11136-016-1269-7 [HUI3. Construct Validity]

Hanmer J. (2021). Cross-sectional validation of the PROMIS-Preference scoring system by its association with social determinants of health. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 30(3), 881–889. https://doi.org/10.1007/s11136-020-02691-3 [HUI2; HUI3; Construct Validity]

Hawthorne, G. (2006) Measuring Incontinence in Australia. Report prepared for the Australian Government Department of Health and Ageing: Commonwealth of Australia. Link [HUI3; Construct Validity; Review Article]

Hays, R. D., Kim, S., Spritzer, K. L., Kaplan, R. M., Tally, S., Feeny, D., Liu, H., & Fryback, D. G. (2009). Effects of mode and order of administration on generic health-related quality of life scores. Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research, 12(6), 1035–1039. https://doi.org/10.1111/j.1524-4733.2009.00566.x [HUI2; HUI3; Mode of Administration]

Heger, D. (2016). Decomposing differences in health and inequality using quasi-objective health indices.  RUHR Economic Papers, 607. Rheinisch-Westfälisches Institut für Wirtschaftsforschung (RWI) [HUI3; Construct Validity]

Holmes A. M. (1995). A QALY-based societal health statistic for Canada, 1985. Social Science & Medicine, 41(10), 1417–1427. https://doi.org/10.1016/0277-9536(95)00118-q [HUI1; Scoring]

Hood, S. C., Beaudet, M. P., & Catlin, G. (1996). A healthy outlook. Health Reports, 7(4), 25–35. https://www150.statcan.gc.ca/n1/en/pub/82-003-x/1995004/article/2817-eng.pdf?st=bKSeZsKD [HUI3; Construct Validity]

Hoover, M., & Rotermann, M. (2012). Seniors' use of and unmet needs for home care, 2009. Health Reports, 23(4), 55–60. https://www150.statcan.gc.ca/n1/pub/82-003-x/2012004/article/11760-eng.htm [HUI3; Construct Validity]

Hoover, M., Rotermann, M., Sanmartin, C., & Bernier, J. (2013). Validation of an index to estimate the prevalence of frailty among community-dwelling seniors. Health Reports, 24(9), 10–17. https://www150.statcan.gc.ca/n1/pub/82-003-x/2013009/article/11864-eng.htm [HUI3; Construct Validity of 8 Attributes; Predictive Validity]

Houle, C., and Berthelot, J. M. (2000). A head-to-head comparison of the Health Utilities Index Mark 3 and the EQ-5D for the population living in private households in Canada. Quality of Life Newsletter, Number 24(January - June, 2000), 5-6. No link available. [HUI3; Construct Validity]

Huguet, N., Kaplan, M. S., & Feeny, D. (2008). Socioeconomic status and health-related quality of life among elderly people: results from the Joint Canada/United States Survey of Health. Social Science & Medicine, 66(4), 803–810. https://doi.org/10.1016/j.socscimed.2007.11.011 [HUI3; Construct Validity]

Humphries, K. H., & van Doorslaer, E. (2000). Income-related health inequality in Canada. Social Science & Medicine, 50(5), 663–671. https://doi.org/10.1016/s0277-9536(99)00319-6 [HUI3; Construct Validity]

Jiménez-Rubio, D., Smith, P. C., & Van Doorslaer, E. (2008). Equity in health and health care in a decentralised context: evidence from Canada. Health Economics, 17(3), 377–392. https://doi.org/10.1002/hec.1272 [HUI3; Construct Validity]

Jones, C. A., Pohar, S. L., Warren, S., Turpin, K. V., & Warren, K. G. (2008). The burden of multiple sclerosis: a community health survey. Health and Quality of Life Outcomes, 6, 1. https://doi.org/10.1186/1477-7525-6-1 [HUI3; Construct validity]

Jones, C. A., Pohar, S. L., & Patten, S. B. (2009). Major depression and health-related quality of life in Parkinson's disease. General Hospital Psychiatry, 31(4), 334–340. https://doi.org/10.1016/j.genhosppsych.2009.03.009 [HUI3; Construct Validity]

Josephson, C. B., Patten, S. B., Bulloch, A., Williams, J. V. A., Lavorato, D., Fiest, K. M., Secco, M., & Jette, N. (2017). The impact of seizures on epilepsy outcomes: A national, community-based survey. Epilepsia, 58(5), 764–771. https://doi.org/10.1111/epi.13723 [HUI3; Construct Validity]

Kaplan, M. S., Berthelot, J. M., Feeny, D., McFarland, B. H., Khan, S., & Orpana, H. (2007). The predictive validity of health-related quality of life measures: mortality in a longitudinal population-based study. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 16(9), 1539–1546. https://doi.org/10.1007/s11136-007-9256-7 [HUI3; Predictive Validity]

Kaplan, M. S., Huguet, N., Orpana, H., Feeny, D., McFarland, B. H., & Ross, N. (2008). Prevalence and factors associated with thriving in older adulthood: a 10-year population-based study. The Journals of Gerontology. Series A, Biological Sciences and Medical Sciences, 63(10), 1097–1104. https://doi.org/10.1093/gerona/63.10.1097 [HUI3; Construct Validity]

Kaplan, M. S., Huguet, N., Feeny, D., McFarland, B. H., & Williams, S. S. (2010). Visits to family physicians or specialists by elderly persons in Canada and the United States: an exploratory comparative study. International Journal of Health Services: Planning, Administration, Evaluation, 40(1), 139–149. https://doi.org/10.2190/HS.40.1.h Reprinted in Vicente Navarro and Carles Muntaner, (Eds.), The Financial and Economic Crises and Their Impact on Health and Social Well-Being (pp 62-7). Baywood Publishing Company Inc. https://doi.org/10.4324/9781315226927 [HUI3; Construct Validity]

Kaplan, M. S., Huguet, N., Feeny, D., McFarland, B. H., Caetano, R., Bernier, J., Giesbrecht, N., Oliver, L., & Ross, N. (2012). Alcohol use patterns and trajectories of health-related quality of life in middle-aged and older adults: a 14-year population-based study. Journal of Studies on Alcohol and Drugs, 73(4), 581–590. https://doi.org/10.15288/jsad.2012.73.581 [HUI3; Construct Validity]

Kaplan, M. S., Huguet, N., Feeny, D., McFarland, B. H., Caetano, R., Bernier, J., Giesbrecht, N., Oliver, L., Ramage-Morin, P., & Ross, N. A. (2014). The association between alcohol use and long-term care placement among older Canadians: a 14-year population-based study. Addictive Behaviors, 39(1), 219–224. https://doi.org/10.1016/j.addbeh.2013.09.031 [HUI3; Construct Validity]

Kaplan, R. M., & Erickson, P. (2000). Gender differences in quality-adjusted survival using a Health-Utilities Index. American Journal of Preventive Medicine, 18(1), 77–82. https://doi.org/10.1016/s0749-3797(99)00101-4 [HUI1; Construct Validity]

Kephart, G., & Asada, Y. (2009). Need-based resource allocation: different need indicators, different results? BMC Health Services Research, 9, 122. https://doi.org/10.1186/1472-6963-9-122 [HUI3; Construct Validity; Predictive Validity]

Khanna, D., Maranian, P., Palta, M., Kaplan, R. M., Hays, R. D., Cherepanov, D., & Fryback, D. G. (2011). Health-related quality of life in adults reporting arthritis: analysis from the National Health Measurement Study. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 20(7), 1131–1140. https://doi.org/10.1007/s11136-011-9849-z [HUI2; HUI3; Construct Validity]

Kohen, D. E., Brehaut, J. C., Garner, R. E., Miller, A. R., Lach, L. M., Klassen, A. F., & Rosenbaum, P. L. (2007). Conceptualizing childhood health problems using survey data: a comparison of key indicators. BMC Pediatrics, 7, 40. https://doi.org/10.1186/1471-2431-7-40 [HUI3, Construct Validity]

Kopec, J. A., Williams, J. I., To, T., & Austin, P. C. (2000). Measuring population health: correlates of the Health Utilities Index among English and French Canadians. Canadian Journal of Public Health, 91(6), 465–470. https://doi.org/10.1007/BF03404831 [HUI3; Construct Validity]

Kopec, J. A., Williams, J. I., To, T., & Austin, P. C. (2001). Cross-cultural comparisons of health status in Canada using the Health Utilities Index. Ethnicity & Health, 6(1), 41–50. https://doi.org/10.1080/13557850125061 [HUI3; Construct Validity]

Kopec, J. A., Schultz, S. E., Goel, V., & Ivan Williams, J. (2001). Can the health utilities index measure change? Medical Care, 39(6), 562–574. https://doi.org/10.1097/00005650-200106000-00005 [HUI3; Construct Validity; Responsiveness]

Kopec, J. A., Sayre, E. C., Flanagan, W. M., Fines, P., Cibere, J., Rahman, M. M., Bansback, N. J., Anis, A. H., Jordan, J. M., Sobolev, B., Aghajanian, J., Kang, W., Greidanus, N. V., Garbuz, D. S., Hawker, G. A., & Badley, E. M. (2010). Development of a population-based microsimulation model of osteoarthritis in Canada. Osteoarthritis and Cartilage, 18(3), 303–311. https://doi.org/10.1016/j.joca.2009.10.010 [HUI3; Construct Validity]

Lagacé, C., Perruccio, A., DesMeules, M., Badley, E. (2003). The impact of arthritis on canadians. In Badley, E., & DesMeules, M., (Eds.), Arthritis in Canada: An Ongoing Challenge. Ottawa: Health Canada, 2, 7-32. Catologue #H39-4/14-2003E. https://publications.gc.ca/Collection/H39-4-14-2003E.pdf [HUI3; Construct Validity]

Lasser, K. E., Himmelstein, D. U., & Woolhandler, S. (2006). Access to care, health status, and health disparities in the United States and Canada: results of a cross-national population-based survey. American Journal of Public Health, 96(7), 1300–1307. https://doi.org/10.2105/AJPH.2004.059402 [HUI3; Construct Validity]

Lauridsen, J., Christiansen, T., & Häkkinen, U. (2004). Measuring inequality in self-reported health-discussion of a recently suggested approach using Finnish data. Health Economics, 13(7), 725–732. https://doi.org/10.1002/hec.846 [HUI3; Methods]

Lecluyse, A., & Cleemput, I. (2006). Making health continuous: implications of different methods on the measurement of inequality. Health Economics, 15(1), 99–104. https://doi.org/10.1002/hec.1015 [HUI3; Construct Validity]

Lima, V. D., & Kopec, J. A. (2005). Quantifying the effect of health status on health care utilization using a preference-based health measure. Social Science & Medicine, 60(3), 515–524.
https://doi.org/10.1016/j.socscimed.2004.05.024 [HUI3; Construct Validity]

Lindeboom, M., & van Doorslaer, E. (2004). Cut-point shift and index shift in self-reported health. Journal of Health Economics, 23(6), 1083–1099. https://doi.org/10.1016/j.jhealeco.2004.01.002 [HUI3; Construct Validity]

Luo, N., Johnson, J. A., Shaw, J. W., Feeny, D., & Coons, S. J. (2005). Self-reported health status of the general adult U.S. population as assessed by the EQ-5D and Health Utilities Index. Medical Care, 43(11), 1078–1086. https://doi.org/10.1097/01.mlr.0000182493.57090.c1 [HUI2; HUI3; Construct Validity; Population Norms]

Luo, N., Ko, Y., Johnson, J. A., & Coons, S. J. (2009). The association of survey language (Spanish vs. English) with Health Utilities Index and EQ-5D index scores in a United States population sample. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 18(10), 1377–1385. https://doi.org/10.1007/s11136-009-9544-5 [HUI2; HUI3; Construct Validity]

Macran, S., Weatherly, H., & Kind, P. (2003). Measuring population health: a comparison of three generic health status measures. Medical Care, 41(2), 218–231. https://doi.org/10.1097/01.MLR.0000044901.57067.19 [modified non-standard version of HUI3; Construct Validity; Primary Care; Routine Use]

Maddigan, S. L., Feeny, D. H., & Johnson, J. A. (2005). Health-related quality of life deficits associated with diabetes and comorbidities in a Canadian National Population Health Survey. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 14(5), 1311–1320. https://doi.org/10.1007/s11136-004-6640-4 [HUI3; Construct Validity]

Maddigan, S. L., Feeny, D. H., Majumdar, S. R., Farris, K. B., & Johnson, J. A. (2006). Understanding the determinants of health for people with type 2 diabetes. American Journal of Public Health, 96(9), 1649–1655. https://doi.org/10.2105/AJPH.2005.067728 [HUI3; Construct Validity]

Maddigan, S. L., Feeny, D. H., Majumdar, S. R., Farris, K. B., & Johnson, J. A. (2006). Health Utilities Index mark 3 demonstrated construct validity in a population-based sample with type 2 diabetes. Journal of Clinical Epidemiology, 59(5), 472–477. https://doi.org/10.1016/j.jclinepi.2005.09.010 [HUI3; Construct Validity]

Manuel, Douglas G., and Susan E. Schultz. (2001). Adding years to life and life to years: Life and health expectancy in Ontario. Institute for Clinical Evaluative Sciences Research Atlas Report 1: The Health of Ontarians. Toronto, Institute for Clinical Evaluative Sciences. https://www.ices.on.ca/publications/research-reports/adding-years-to-life-and-life-to-years-life-and-health-expectancy-in-ontario/ [HUI2; Description; Health-Adjusted Life Expectancy]

Manuel, D. G., Goel, V., Williams, J. I., & Corey, P. (2000). Health-adjusted life expectancy at the local level in Ontario. Chronic Diseases in Canada, 21(2), 73–80. http://www.eurohex.eu/bibliography/pdf/Manuel_CDC_2000-4220546050/Manuel_CDC_2000.pdf [HUI3; Construct Validity; Health-Adjusted Life Expectancy]

Manuel, D. G., Schultz, S. E., & Kopec, J. A. (2002). Measuring the health burden of chronic disease and injury using health adjusted life expectancy and the Health Utilities Index. Journal of Epidemiology and Community Health, 56(11), 843–850. https://doi.org/10.1136/jech.56.11.843 [HUI3; Construct Validity; Health-Adjusted Life Expectancy]

Manuel, D. G., Luo, W., Ugnat, A. M., & Mao, Y. (2003). Cause-deleted health-adjusted life expectancy of Canadians with selected chronic conditions. Chronic Diseases in Canada, 24(4), 108–115. Link [HUI3; Health-Adjusted Life Expectancy]

Manuel, D. G., Leung, M., Nguyen, K., Tanuseputro, P., Johansen, H., & Canadian Cardiovascular Outcomes Research Team (2003). Burden of cardiovascular disease in Canada. The Canadian Journal of Cardiology, 19(9), 997–1004. Link [HUI3]

Manuel, D. G., & Schultz, S. E. (2004). Using linked data to calculate summary measures of population health: Health-adjusted life expectancy of people with Diabetes Mellitus. Population Health Metrics, 2(1), 4. https://doi.org/10.1186/1478-7954-2-4 [HUI3; Health-Adjusted Life Expectancy]

Manuel, D. G., & Schultz, S. E. (2004). Health-related quality of life and health-adjusted life expectancy of people with diabetes in Ontario, Canada, 1996-1997. Diabetes Care, 27(2), 407–414.
https://doi.org/10.2337/diacare.27.2.407 [HUI3; Health-Adjusted Life Expectancy]

Manuel, D., Lagacé, C., DesMeules, M., Cho, R., & Power, J.D. (2003). Life Expectancy and Health-Adjusted Life Expectancy (HALE). In Badley, E., & DesMeules, M., (Eds.), Arthritis in Canada: An Ongoing Challenge. Ottawa: Health Canada, 3, 40-49.. Catologue #H39-4/14-2003E. https://publications.gc.ca/Collection/H39-4-14-2003E.pdf [HUI3; Construct Validity; Health-Adjusted Life Expectancy]

Martel, L., Belanger, A., Berthelot, J.M., & Carrière, Y. Health Today, Healthy Tomorrow?  Findings from the National Population Health Survey. Healthy Aging. Statistics Canada Catologue 82-618-MWE200404, 1,(4), 1-9. https://www150.statcan.gc.ca/n1/pub/82-618-m/82-618-m2005004-eng.htm [HUI3; Construct Validity]

McIntosh, C. N., Finès, P., Wilkins, R., & Wolfson, M. C. (2009). Income disparities in health-adjusted life expectancy for Canadian adults, 1991 to 2001. Health Reports, 20(4), 55–64. Link [HUI3; Construct Validity; Health-Adjusted Life Expectancy]

McGrail, K. M., van Doorslaer, E., Ross, N. A., & Sanmartin, C. (2009). Income-related health inequalities in Canada and the United States: a decomposition analysis. American Journal of Public Health, 99(10), 1856–1863. https://doi.org/10.2105/AJPH.2007.129361 [HUI3; Construct Validity]

McLeod, C. B., Lavis, J. N., Mustard, C. A., & Stoddart, G. L. (2003). Income inequality, household income, and health status in Canada: a prospective cohort study. American Journal of Public Health, 93(8), 1287–1293. https://doi.org/10.2105/ajph.93.8.1287 [HUI3; Construct Validity]

Millar, W.J. (1996). Chronic Pain. Health Reports, 7(4), 47-53. https://www150.statcan.gc.ca/n1/en/pub/82-003-x/1995004/article/2819-eng.pdf?st=IU0ZfRQl [HUI3; Construct Validity of HUI3 pain scale]

Millar, W.J. (2004). Vision Problems Among Seniors. Health Reports, 16(1), 45-49. https://www150.statcan.gc.ca/n1/en/pub/82-003-x/2004001/article/7041-eng.pdf?st=M8p5eVxC [HUI3 Vision; Construct Validity]

Millar, W.J. (2005). Hearing Problems Among Seniors. Health Reports. 16(4), 49-52. https://www150.statcan.gc.ca/n1/en/pub/82-003-x/2004004/article/8044-eng.pdf?st=kTUbxEsV [HUI3 hearing; Construct Validity]

Mittmann, N., Trakas, K., Risebrough, N., & Liu, B. A. (1999). Utility scores for chronic conditions in a community-dwelling population. PharmacoEconomics, 15(4), 369–376. https://doi.org/10.2165/00019053-199915040-00004 [HUI3; Scoring]

Mittmann, N., Chan, D., Trakas, K. & Risebrough, N. (2001) Health Utility Attributes for Chronic Conditions. Disease Management & Health Outcomes, 9(1), 11-21. https://doi.org/10.2165/00115677-200109010-00002 [HUI3; each HUI3 attribute; Construct Validity]

Mo, F., Choi, B. C., Li, F. C., & Merrick, J. (2004). Using Health Utility Index (HUI) for measuring the impact on health-related quality of Life (HRQL) among individuals with chronic diseases. The Scientific World Journal, 4, 746–757. https://doi.org/10.1100/tsw.2004.128 [HUI3; Construct Validity]

Molina, M., Humphries, B., Guertin, J.R., Feeny, D. & Tarride, E.J. (2023). Health Utilities Index Mark 3 Scores for non-adults: Population Norms Based on the Cycle 5 (2016-2017) and 6 (2018-2019) Canadian Health Measures Survey. Health Reports, 34(2), 29-39. https://www150.statcan.gc.ca/n1/en/pub/82-003-x/2023002/article/00003-eng.pdf?st=6a8M8U6r [HUI3; Construct Validity; Population Norms for Children]

Muggah, E., Graves, E., Bennett, C., & Manuel, D. G. (2013). Ascertainment of chronic diseases using population health data: a comparison of health administrative data and patient self-report. BMC Public Health, 13, 16. https://doi.org/10.1186/1471-2458-13-16 [HUI3; Descriptive]

Nadeau, C., Wong, S. L., Flanagan, W. M., Oderkirk, J., Manuel, D., Wall, R., & Tremblay, M. S. (2013). Development of a population-based microsimulation mode of physical activity in Canada. Health Reports, 24(10), 11–19. https://www150.statcan.gc.ca/n1/en/pub/82-003-x/2013010/article/11873-eng.pdf?st=grYD0G91 [HUI3; Use of HUI3 to Compute Health-Adjusted Life Expectancy]

National Research Council. (2011). Summary of Fryback, D.G.’s session: Measuring Health-Related Quality of Life, Workshop: The Importance of Common Metrics for Advancing Social Science Theory and Research, 2010. The Importance of Common Metrics for Advancing Social Science Theory and Research: A Workshop Summary. (p22). The National Academies Press. http://ndl.ethernet.edu.et/bitstream/123456789/22418/1/104.pdf.pdf [HUI2; HUI3; Review Article]

Nault, F., Roberge, R., & Berthelot J.M. (1996). Esperance de vie et esperance de vie en sante selon le sexe, l'etat matrimonial et le statut socio-economique au Canada [Life expectancy and health expectancy by sex, marital status, and socioeconomic status in Canada]. Cahiers Auebecois de Demographie, 25(2), 241–259. (In French). https://www.erudit.org/fr/revues/cqd/1996-v25-n2-cqd581/010211ar/ [HUI3; Construct Validity]

Newbold, K. B., & Danforth, J. (2003). Health status and Canada's immigrant population. Social Science & Medicine, 57(10), 1981–1995. https://doi.org/10.1016/s0277-9536(03)00064-9 [HUI3; Construct Validity]

Newbold, K. B., & Filice, J. K. (2006). Health status of older immigrants to Canada. Canadian Journal on Aging, 25(3), 305–319. https://doi.org/10.1353/cja.2007.0009 [HUI3; Construct Validity]

Ng, E., McGrail, K. M., & Johnson, J. A. (2010). Hospitalization risk in a type 2 diabetes cohort. Health Reports, 21(3), 29–35. https://www150.statcan.gc.ca/n1/en/pub/82-003-x/2010003/article/11326-eng.pdf?st=vwvofTIP [HUI3; Construct Validity; Predictive Validity]

O'Neill, J. & O'Neill, D. (2008). Health Status, Health Care and Inequality: Canada vs. the U.S. Forum for Health Economics & Policy, 10(1), pp 1-43. https://doi.org/10.2202/1558-9544.1094 [HUI3; Construct Validity]

Orpana, H. M., Ross, N., Feeny, D., McFarland, B., Bernier, J., & Kaplan, M. (2009). The natural history of health-related quality of life: a 10-year cohort study. Health Reports, 20(1), 29–35. https://publications.gc.ca/collections/collection_2009/statcan/82-003-X/82-003-x2009001-eng.pdf
[HUI3; Construct Validity; Responsiveness]

Palta, M., Chen, H. Y., Kaplan, R. M., Feeny, D., Cherepanov, D., & Fryback, D. G. (2011). Standard error of measurement of 5 health utility indexes across the range of health for use in estimating reliability and responsiveness. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 31(2), 260–269. https://doi.org/10.1177/0272989X10380925 [HUI2; HUI3; Reliability; Responsiveness]

Patten, S. B., Williams, J. V., Lavorato, D. H., Terriff, D., Metz, L. M., Berzins, S., & Bulloch, A. G. (2012). Perceived met and unmet health-care needs in a community population with multiple sclerosis. International Journal of MS Care, 14(1), 2–8. https://doi.org/10.7224/1537-2073-14.1.2 [HUI3; Construct Validity]

Patten, S. B., Williams, J. V., Lavorato, D. H., & Bulloch, A. G. (2013). Recreational physical activity ameliorates some of the negative impact of major depression on health-related quality of life. Frontiers in Psychiatry, 4, 22. https://doi.org/10.3389/fpsyt.2013.00022 [HUI3; Construct Validity; Responsiveness]

Patten, S. B., Williams, J. V., Lavorato, D. H., Bulloch, A. G., Currie, G., & Emery, H. (2014). Depression and painful conditions: patterns of association with health status and health utility ratings in the general population. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 23(1), 363–371. https://doi.org/10.1007/s11136-013-0449-y [HUI3; Construct Validity]

Pereira, C. C., Palta, M., Mullahy, J., & Fryback, D. G. (2011). Race and preference-based health-related quality of life measures in the United States. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 20(6), 969–978. https://doi.org/10.1007/s11136-010-9813-3 [HUI2; HUI3; Construct Validity]

Pereira, C.C., Palta, M., & Mullahy, J. (2010). Health domains and race in generic preference-based health-related quality of life instruments in the United States literature. Revista Brasileira de Estudos de População, 27(2),425-437. https://doi.org/10.1590/S0102-30982010000200011 [HUI2; HUI3; Review Article]

Petrou, S., McCann, D., Law, C. M., Watkin, P. M., Worsfold, S., & Kennedy, C. R. (2007). Health status and health-related quality of life preference-based outcomes of children who are aged 7 to 9 years and have bilateral permanent childhood hearing impairment. Pediatrics, 120(5), 1044–1052. https://doi.org/10.1542/peds.2007-0159 [HUI3; Construct Validity; Hearing]

Petrou, S., & Kupek, E. (2009). Estimating preference-based health utilities index mark 3 utility scores for childhood conditions in England and Scotland. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 29(3), 291–303. https://doi.org/10.1177/0272989X08327398

·      Russell L. B. (2010). Comment on Petrou and Kupek: use unadjusted HUI3 scores, not adjusted disutilities. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 30(1), 143. https://doi.org/10.1177/0272989X09350078 [HUI3; Construct Validity]

Phipps, Shelley, and Lynn Lethbridge, AIncome and the Outcomes of Children. (2006) Analytical Studies - Research Paper Series, Catologue No. 11F00019MIE-No. 281. Business and Labour Market Analysis, Statistics Canada. https://publications.gc.ca/Collection/Statcan/11F0019MIE/11F0019MIE2006281.pdf [HUI3; Construct Validity]

Piérard E. (2014). The effect of physician supply on health status: Canadian evidence. Health Policy, 118(1), 56–65. https://doi.org/10.1016/j.healthpol.2014.07.003 [HUI3; Construct Validity]

Piérard E. (2016). The effect of health care expenditures on self-rated health status and the Health Utility Index: Evidence from Canada. International Journal of Health Economics and Management, 16(1), 1–21. https://doi.org/10.1007/s10754-015-9176-y [HUI3; Construct Validity]

Pogany, L., Barr, R. D., Shaw, A., Speechley, K. N., Barrera, M., & Maunsell, E. (2006). Health status in survivors of cancer in childhood and adolescence. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 15(1), 143–157. https://doi.org/10.1007/s11136-005-0198-7 [HUI3; Construct Validity]

Petrou, S., & Kupek, E. (2009). Estimating preference-based health utilities index mark 3 utility scores for childhood conditions in England and Scotland. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 29(3), 291–303. https://doi.org/10.1177/0272989X08327398 [HUI3; Construct Validity]

Pohar, S. L., Jones, C. A., Warren, S., Turpin, K. V., & Warren, K. (2007). Health status and health care utilization of multiple sclerosis in Canada. The Canadian Journal of Neurological Sciences, 34(2), 167–174. https://doi.org/10.1017/s0317167100005990 [HUI3; Construct Validity]

Pohar, S. L., & Allyson Jones, C. (2009). The burden of Parkinson disease (PD) and concomitant comorbidities. Archives of Gerontology and Geriatrics, 49(2), 317–321. https://doi.org/10.1016/j.archger.2008.11.006 [HUI3; Construct Validity]

Prus, S. G., & Gee, E. (2003). Gender differences in the influence of economic, lifestyle, and psychosocial factors on later-life health. Canadian Journal of Public Health, 94(4), 306–309. https://doi.org/10.1007/BF03403611 [HUI3; Construct Validity]

P Prus S. G. (2004). A life course perspective on the relationship between socio-economic status and health: testing the divergence hypothesis. Canadian Journal on Aging, 23 Suppl 1, S145–S153.
https://doi.org/10.1353/cja.2005.0040 [HUI3; Construct Validity]

Prus S. G. (2007). Age, SES, and health: a population level analysis of health inequalities over the lifecourse. Sociology of Health & illness, 29(2), 275–296. https://doi.org/10.1111/j.1467-9566.2007.00547.x [HUI3; Construct Validity]

Prus, S. G., Tfaily, R., & Lin, Z. (2010). Comparing racial and immigrant health status and health care access in later life in Canada and the United States. Canadian Journal on Aging, 29(3), 383–395. https://doi.org/10.1017/S0714980810000358 [HUI3 cognition; Construct Validity]

Public Health Agency of Canada Steering Committee on Health-Adjusted Life Expectancy. (2012). Health-Adjusted Life Expectancy in Canada: 2012 Report by the Public Health Agency of Canada. Public Health Agency of Canada. https://publications.gc.ca/collections/collection_2012/aspc-phac/HP35-32-2012-eng.pdf [HUI3; Construct Validity; Health-Adjusted Life Expectancy]

Raina, P., Bonnett, B., Waltner-Toews, D., Woodward, C., & Abernathy, T. (1999). How reliable are selected scales from population-based health surveys? An analysis among seniors. Canadian Journal of Public Health, 90(1), 60–64. https://doi.org/10.1007/BF03404102 [Reliability of selected HUI3 items]

Ramage-Morin P. L. (2006). Successful aging in health care institutions. Health Reports, 16 Suppl, 47–56. https://www150.statcan.gc.ca/n1/en/pub/82-003-s/2005000/pdf/9089-eng.pdf?st=eNH_JvpL [HUI3; Construct Validity of Pain, Speech, and Hearing items]

Ramage-Morin P. L. (2008). Chronic pain in Canadian seniors. Health Reports, 19(1), 37–52. https://www150.statcan.gc.ca/n1/en/pub/82-003-x/2008001/article/10514-eng.pdf?st=4NmrLMnO
[HUI3; Construct validity of HUI3 pain and HUI3 emotion]

Ramage-Morin, P. L., Shields, M., & Martel, L. (2010). Health-promoting factors and good health among Canadians in mid- to late life. Health Reports, 21(3), 45–53. https://wocrc.ca/wp-content/uploads/2016/04/HealthPromotingFactors-eng.pdf [HUI3; Construct Validity of HUI3 Attributes]

Ramage-Morin, P. L., & Gilmour, H. (2010). Chronic pain at ages 12 to 44. Health Reports, 21(4), 53–61. https://www150.statcan.gc.ca/n1/en/pub/82-003-x/2010004/article/11389-eng.pdf?st=TdwZCbgo
[HUI3; Construct Validity of HUI3 pain]

Ramage-Morin, P. L., Bernier, J., Newsom, J. T., Huguet, N., McFarland, B. H., & Kaplan, M. S. (2012). Adopting leisure-time physical activity after diagnosis of a vascular condition. Health reports, 23(1), 17–29. https://www150.statcan.gc.ca/n1/en/pub/82-003-x/2012001/article/11615-eng.pdf?st=5HZWPpGj
[HUI3 disability categories; Construct Validity]

Ramage-Morin, P. L., & Gilmour, H. (2013). Urinary incontinence and loneliness in Canadian seniors. Health Reports, 24(10), 3–10. https://www150.statcan.gc.ca/n1/en/pub/82-003-x/2013010/article/11872-eng.pdf?st=ANlCqbR9 [HUI3; Use of HUI3 Disability Classification; Construct Validity]

Ramage-Morin P. L. (2016). Hearing difficulties and feelings of social isolation among Canadians aged 45 or older. Health Reports, 27(11), 3–12. https://www150.statcan.gc.ca/n1/en/pub/82-003-x/2016011/article/14671-eng.pdf?st=_FvTDA9_ [HUI3 Hearing; HUI3 Vision; HUI3 Speech; HUI3 Ambulation; HUI3 Dexterity; HUI3 Pain and Discomfort; HUI3; Construct Validity]

Ratcliffe, J., Stevens, K., Flynn, T., Brazier, J., & Sawyer, M. (2012). An assessment of the construct validity of the CHU9D in the Australian adolescent general population. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 21(4), 717–725. https://doi.org/10.1007/s11136-011-9971-y [HUI2; Construct Validity]

Rehm, J., & Frick, U. (2010). Valuation of health states in the US study to establish disability weights: lessons from the literature. International Journal of Methods in Psychiatric Research, 19(1), 18–33. https://doi.org/10.1002/mpr.300 [HUI3; Review Article]

Richardson, C.G., & Zumbo, B.D. (2000). A Statistical Examination of the Health Utilities Index - Mark III As a Summary Measure of Health Status for a General Population Health Survey. Social Indicators Research, 51(2), 171-191. https://doi.org/10.1023/A:1007012607012 [HUI3; Construct Validity]

Rizzo, J. A., Pashko, S., Friedkin, R., Mullahy, J., & Sindelar, J. L. (1998). Linking the health utilities index to National Medical Expenditure Survey data. PharmacoEconomics, 13(5 Pt 1), 531–541.
https://doi.org/10.2165/00019053-199813050-00006 [HUI1; Construct Validity]

Rizzo, J. A., & Sindelar, J. L. (1999). Linking health-related quality-of-life indicators to large national data sets. PharmacoEconomics, 16(5 Pt 1), 473–482. https://doi.org/10.2165/00019053-199916050-00005 [HUI1; Construct Validity]

Roberge, R., Berthelot, J. M. and Wolfson, M. (1995) Health and socio-economic inequalities. Canadian Social Trends, 37, 15–19. (also available in French). No link available. [HUI3; Construct Validity]

Roberge, R., Berthelot, J. M., & Wolfson, M. (1995). The Health Utility Index: measuring health differences in Ontario by socioeconomic status. Health reports, 7(2), 25-32(Eng); 29-37(Fre). https://www150.statcan.gc.ca/n1/en/pub/82-003-x/1995002/article/2508-eng.pdf?st=n7yqOQtb [HUI3; Construct Validity]

Roberge, R., Berthelot, J.M. & Wolfson, M.C. (1997). Adjusting Life Expectancy to Account for Morbidity in a National Population. Quality of Life Newsletter, Number 17(March, 1997 - August, 1997), 12-13. No link available. [HUI3; Scoring]

Roberge, R., Berthelot, JM. & Cranswick, K. (1999). Adjusting Life Expectancy to Account for Disability in a Population: A Comparison of Three Techniques. Social Indicators Research, 48, 217-243. https://doi.org/10.1023/A:1006946903652 [HUI3; Scoring]

Robert, S. A., Cherepanov, D., Palta, M., Dunham, N. C., Feeny, D., & Fryback, D. G. (2009). Socioeconomic status and age variations in health-related quality of life: results from the national health measurement study. The Journals of Gerontology. Series B, Psychological Sciences and Social Sciences, 64(3), 378–389. https://doi.org/10.1093/geronb/gbp012 [HUI3; Construct Validity]

Ross, N. A., Tremblay, S. S., & Graham, K. (2004). Neighbourhood influences on health in Montréal, Canada. Social Science & Medicine, 59(7), 1485–1494. https://doi.org/10.1016/j.socscimed.2004.01.016 [HUI3; Construct Validity]

Ross, N. A., Garner, R., Bernier, J., Feeny, D. H., Kaplan, M. S., McFarland, B., Orpana, H. M., & Oderkirk, J. (2012). Trajectories of health-related quality of life by socio-economic status in a nationally representative Canadian cohort. Journal of Epidemiology and Community Health, 66(7), 593–598. https://doi.org/10.1136/jech.2010.115378 [HUI3; Construct Validity]

Safaei J. (2007). Income and health inequality across Canadian provinces. Health & Place, 13(3), 629–638. https://doi.org/10.1016/j.healthplace.2006.09.003 [HUI3; Construct Validity]

Sanmartin, C., & White, K. (2004). Joint Canada/United States Survey of Health, 2002-03. Au Courant, Statistics Canada Catologue 82-005-XIE, pp 2-3. https://www150.statcan.gc.ca/n1/en/pub/82-005-x/82-005-x2004002-eng.pdf?st=uSFYEGrk [HUI3; Construct Validity]

Sanmartin, C., Ng, E., Blackwell, D., Gentleman, J., Martinez, M., & Simile, C. (Joint Canada/United States Survey of Health, 2002-03. Statistics Canada Catologue 82M0022-XIE, Ottawa, Minister of Industry, 2004. https://www.cdc.gov/nchs/data/nhis/jcush_analyticalreport.pdf [HUI3; Construct Validity]

Sanmartin, C., Berthelot, J. M., Ng, E., Murphy, K., Blackwell, D. L., Gentleman, J. F., Martinez, M. E., & Simile, C. M. (2006). Comparing health and health care use in Canada and the United States. Health Affairs (Project Hope), 25(4), 1133–1142. https://doi.org/10.1377/hlthaff.25.4.1133 [HUI3; Construct Validity]

Sanmartin, C., McGrail, K., Dunbar, M., & Bohm, E. (2010). Using population data to measure outcomes of care: the case of hip and knee replacements. Health Reports, 21(2), 23–30. https://www150.statcan.gc.ca/n1/en/pub/82-003-x/2010002/article/11235-eng.pdf?st=M7rcrktS [HUI3; Construct Validity]

Sarma, S., & Simpson, W. (2006). A microeconometric analysis of Canadian health care utilization. Health Economics, 15(3), 219–239. https://doi.org/10.1002/hec.1057 [HUI3; Construct Valiidty]

Sawka, A. M., Thabane, L., Papaioannou, A., Gafni, A., Ioannidis, G., Papadimitropoulos, E. A., Hopman, W. M., Cranney, A., Hanley, D. A., Pickard, L., Adachi, J. D., & CaMos Investigators (2005). Health-related quality of life measurements in elderly Canadians with osteoporosis compared to other chronic medical conditions: a population-based study from the Canadian Multicentre Osteoporosis Study (CaMos). Osteoporosis International, 16(12), 1836–1840. https://doi.org/10.1007/s00198-005-1949-6 [HUI3; Construct Validity]

Sawatzky, R., Liu-Ambrose, T., Miller, W. C., & Marra, C. A. (2007). Physical activity as a mediator of the impact of chronic conditions on quality of life in older adults. Health and Quality of Life Outcomes, 5, 68. https://doi.org/10.1186/1477-7525-5-68 [HUI3; Construct Validity]

Schultz, S. E., & Kopec, J. A. (2003). Impact of chronic conditions. Health Reports, 14(4), 41–53. (also available in French). https://www150.statcan.gc.ca/n1/en/pub/82-003-x/2002004/article/6596-eng.pdf?st=rgDOMEw_ [HUI3; Construct Validity]

Sellers, S., Cherepanav, D., Hanmer, J., Fryback, D. G., & Palta, M. (2013). Interpersonal discrimination and health-related quality of life among black and white men and women in the United States. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 22(6), 1307–1312. https://doi.org/10.1007/s11136-012-0258-8 Erratum, Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 22(6), 1313–1318. https://doi.org/10.1007/s11136-012-0278-4 [HUI3; Construct Validity]

Shaw, A. K., Morrison, H. I., Speechley, K. N., Maunsell, E., Barrera, M., Schanzer, D., Pogany, L., & Desmeules, M. (2004). The late effects study: design and subject representativeness of a Canadian, multi-centre study of late effects of childhood cancer. Chronic Diseases in Canada, 25(3-4), 119–126. Link [HUI3]

Shields M. (2004). Proxy reporting of health information. Health Reports, 15(3), 21–33. https://www150.statcan.gc.ca/n1/en/pub/82-003-x/2003003/article/6847-eng.pdf?st=QJ4C5saB [HUI3]

Shields M. (2004). Use of wheelchairs and other mobility support devices. Health Reports, 15(3), 37–41. https://www150.statcan.gc.ca/n1/en/pub/82-003-x/2003003/article/6848-eng.pdf?st=LCEHV0iu
[HUI3 ambulation; Construct Validity]

Shields, M., & Martel, L. (2006). Healthy living among seniors. Health Reports, 16 Suppl, 7–20. https://www150.statcan.gc.ca/n1/en/pub/82-003-s/2005000/pdf/9086-eng.pdf?st=ahR34Xc- [HUI3; construct validity]

Shields, M., Garner, R. E., & Wilkins, K. (2013). Dynamics of smoking cessation and health-related quality of life among Canadians. Health Reports, 24(2), 3–11. https://www150.statcan.gc.ca/n1/en/pub/82-003-x/2013002/article/11769-eng.pdf?st=pY6_9K9M [HUI3; Construct Validity; Smoking]

Shiroiwa, T., Noto, S., & Fukuda, T. (2021). Japanese Population Norms of EQ-5D-5L and Health Utilities Index Mark 3: Disutility Catalog by Disease and Symptom in Community Settings. Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research, 24(8), 1193–1202. https://doi.org/10.1016/j.jval.2021.03.010 [HUI3; Construct Validity]

Shooshtari, S., Menec, V., & Tate, R. (2007). Comparing predictors of positive and negative self-rated health between younger (25-54) and older (55+) Canadian adults: A longitudinal study of well-being. Research on Aging, 29(6), 512–554. https://doi.org/10.1177/0164027507305729 [HUI3; Construct Validity of HUI3 Cognition, Hearing, and Pain]

Sikdar, K. C., Wang, P. P., MacDonald, D., & Gadag, V. G. (2010). Diabetes and its impact on health-related quality of life: a life table analysis. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 19(6), 781–787. https://doi.org/10.1007/s11136-010-9641-5 [HUI3; Construct Validity; Health-Adjusted Life Expectancy]

Smith, P. M., Frank, J. W., Mustard, C. A., & Bondy, S. J. (2008). Examining the relationships between job control and health status: a path analysis approach. Journal of Epidemiology and Community Health, 62(1), 54–61. https://doi.org/10.1136/jech.2006.057539 [HUI3; Construct Validity]

Statistics Canada. (1992). The 1991 General Social Survey - Cycle 6: Health - Public Use Microdata File Documentation and User's Guide. Statistics Canada.
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Statistics Canada. (1994). Health Status of Canadians: Report of the 1991 General Social Survey. Statistics Canada, Catologue 11-612E,(8). https://publications.gc.ca/collections/collection_2017/statcan/11-612/CS11-612-8-eng.pdf

Statistics Canada, Statistical Report on the Health of Canadians. (1999). Statistics Canada, Catologue 82-570-X1E, https://www150.statcan.gc.ca/n1/en/pub/82-570-x/4227736-eng.pdf?st=4EhXt9Uq

Steensma, C., Loukine, L., Orpana, H., Lo, E., Choi, B., Waters, C., & Martel, S. (2013). Comparing life expectancy and health-adjusted life expectancy by body mass index category in adult Canadians: a descriptive study. Population health metrics11(1), 21. https://doi.org/10.1186/1478-7954-11-21

Steensma, C., Loukine, L., Orpana, H., McRae, L., Vachon, J., Mo, F., Boileau-Falardeau, M., Reid, C., & Choi, B. C. (2016). Describing the population health burden of depression: health-adjusted life expectancy by depression status in Canada. Health Promotion and Chronic Disease Prevention in Canada: Research, Policy and Practice, 36(10), 205–213. https://doi.org/10.24095/hpcdp.36.10.01 [HUI3; Construct Validity]

Sun J. (2003). Adjusting distributions of the Health Utilities Index Mark 3 utility scores of health-related quality of life. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 12(1), 11–20. https://doi.org/10.1023/a:1022017130014 [HUI3; Construct Validity]

Sutton, D. A., Moldofsky, H., & Badley, E. M. (2001). Insomnia and health problems in Canadians. Sleep, 24(6), 665–670. https://doi.org/10.1093/sleep/24.6.665 [HUI3 pain; Construct Validity]

Tambay, J. L., & Catlin, G. (1995). Sample design of the national population health survey. Health Reports, 7(1), 29–42. https://www150.statcan.gc.ca/n1/en/pub/82-003-x/1995001/article/1661-eng.pdf?st=MijXtg6r
[HUI3; Survey Design]

Terriff, D. L., Williams, J. V., Patten, S. B., Lavorato, D. H., & Bulloch, A. G. (2012). Patterns of disability, care needs, and quality of life of people with Parkinson's disease in a general population sample. Parkinsonism & Related Disorders, 18(7), 828–832. https://doi.org/10.1016/j.parkreldis.2012.03.026 [HUI3; Construct Validity]

Thomas, V. S., Darvesh, S., MacKnight, C., & Rockwood, K. (2001). Estimating the prevalence of dementia in elderly people: a comparison of the Canadian Study of Health and Aging and National Population Health Survey approaches. International Psychogeriatrics, 13 Supp 1, 169–175. https://doi.org/10.1017/s1041610202008116 [HUI3; Construct Validity]

Trakas, K., Lawrence, K., & Shear, N. H. (1999). Utilization of health care resources by obese Canadians. CMAJ: Canadian Medical Association Journal, 160(10), 1457–1462. https://www.cmaj.ca/content/160/10/1457 [HUI3; Construct Validity]

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